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Author Topic: Hi my name is Tina  (Read 3936 times)
Tinah1968
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ME

« on: January 09, 2009, 05:35:21 AM »

I have Stage 5 kidney Disease and I am not ready to deal with the dialysis. I have been fighting this disease for about 8 years now and just now can actually say it our loud. I have been trying not to really talk about it thinking it would just go away. That never happened.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
willieandwinnie
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« Reply #1 on: January 09, 2009, 06:25:46 AM »

:welcomesign; Tinah. Hope you find information and support you need here. We are a great group and will answer your questions and listen to your rants. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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« Reply #2 on: January 09, 2009, 06:31:19 AM »

Welcome Tinah,

Unfortunately not talking about it does not help it go away, if it did we wouldn't be here. I understand your nervousness about dialysis but you have made the first step by facing it head on and talking about it. Please feel free to browse the contents of IHD and ask as many question as necessary to feed the wonder. Post often and you will enjoy being here and your Dr visits will be easier as you understand the process more through the knowledge you gain here. Good luck.

Sluff/Admin
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coorsbob
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I dont live for dialysis, I do dialysis to live.

« Reply #3 on: January 09, 2009, 06:37:20 AM »

 :welcomesign; Tinah Feel free to look around and get as much knowledge you can muster, if you ant find in in here just ask away. You will get your answer in a short time. Again  :welcomesign;






EDITED: Fixed smiley error - Sluff/Admin




« Last Edit: January 09, 2009, 06:40:32 AM by Sluff » Logged

Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
Zach
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"Still crazy after all these years."

« Reply #4 on: January 09, 2009, 06:37:25 AM »

Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paul.karen
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« Reply #5 on: January 09, 2009, 06:39:25 AM »

:waving; Tinah

I also didnt want to deal with it.  Until i found IHD.  I have not started Dialysis yet but i have come to terms with it and realized there is much worse that could happen.
It is scary but being here at least for me has been a godsend.  The people here are great and can walk you through what you can expect.  And can give you REAL answers that a doctor may overlook or not even bring up to you in your discussions.
Please stick around. (no pun intended)

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Tinah1968
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ME

« Reply #6 on: January 09, 2009, 06:44:03 AM »

I think your right you know last night I talked to a friend and I never really talk about this. But, When I finally told her what was happening in my life I felt relief like this was a new beginning and all I can do is quit worrying about what has happened and try to focus on what I can do. I may not get better but worrying about it may only make it worse. I do already have a fistula and have had it since October. So I am ready for it but just afraid.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
monrein
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Might as well smile

« Reply #7 on: January 09, 2009, 06:50:16 AM »

 :welcomesign;  Tinah.  We can all understand your fears and your wishing it would all just go away.  However, I firmly believe that the best way to deal with ESRD and it's complications is to pull our heads out of the sand and learn everything we can about the illness and the treatment so that we can maintain as much power and control as we can.  Information is power and we each possess incredible strength when we use it.  Joining this site is a great way to reclaim some control as together we know a lot about kidney disease and dialysis.
It's also a great place to complain and rant about the fact that we have to be bothered with it all in the first place.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Tinah1968
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ME

« Reply #8 on: January 09, 2009, 06:55:44 AM »

Thank you all and I am sure that in the days and weeks to come I will have lots of questions...
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
RichardMEL
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« Reply #9 on: January 09, 2009, 09:04:17 AM »

G'day Tinah,

Welcome to IHD!

It is important to focus on how you will handle ESRD and dialysis when it comes along because unfortunately it's not something you can ignore and sadly it won't go away.

Just remember while it is difficult to contemplate it's NOT the end of the world and you need to be aware of that. Yes, changes are in store, but you can handle it just like many others have to.

You will do OK and hopefully we can help answer some of your questions and alay your fears so you can go into this next stage of life with a positive attitude so you can get on top of this so kidney failure won't control you.

 :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
peleroja
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I have 16 hats, all the same style!

« Reply #10 on: January 09, 2009, 09:06:56 AM »

Welcome aboard.  Is it Tinah or Tina?  There is a ton of great information here.  I hope we can all help you adjust to your new life.  Please post often and let us know how you're doing.
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Tinah1968
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ME

« Reply #11 on: January 09, 2009, 10:54:14 AM »

My name is TINA the H is for my last name. But Tina is fine.. I do have lots of Questions, About the foods I can eat, do you reaaly feel terrible after Dialysis like they say you do,  I should know about some of this as my aunt died from Kidney failure about a week ago. the only reason I don't know is becasue she lived in anothe town about 4 hours from here and we did not see eachother often.  Now I wish I would have asked questions instead of shutting it out. becasue it never went away.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
MandaMe1986
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« Reply #12 on: January 09, 2009, 11:17:51 AM »

Hello, I just joined too.  But can already tell you, you found the right place.   :2thumbsup; Hope to see you around.

~Manda
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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Joe Paul
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« Reply #13 on: January 09, 2009, 11:27:41 AM »

Welcome Tina, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
pelagia
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« Reply #14 on: January 09, 2009, 06:32:26 PM »

Welcome Tina!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Romona
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« Reply #15 on: January 09, 2009, 06:40:35 PM »

 :welcomesign;
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Wenchie58
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Always carrying the big silly grin!

« Reply #16 on: January 10, 2009, 08:54:43 AM »

Welcome Tina!  You'll find lots of information here, but sometimes more important, you'll find hugs, laughs and many many informed ears to listen to you and understand what you're going through.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
jessup
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« Reply #17 on: January 10, 2009, 10:12:03 AM »

G'day and  :welcomesign;
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wrandym
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Whatever, dude!

« Reply #18 on: January 10, 2009, 10:52:11 AM »

Hiya Tina!
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
boxman55
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« Reply #19 on: January 10, 2009, 03:44:21 PM »

Hi Tina, Sorry it took so long to welcome you but  :welcomesign; I am so glad you found this site everyone here is willing to help with your concerns and questions


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #20 on: January 13, 2009, 01:45:39 PM »

Welcome to our community, Tina!  I understand exactly what you are going through.  I even have a similar experience.  My brother died after 10 years on dialysis 11 months before I was diagnosed and had to start.  I wish now I had asked more questions and had been a bit more aware of exactly what he was going through, but for the last eight years of his life I was in another country.  But this website was a godsend to me.  [I even claim that it was started especially for me since it started the month before I was on dialysis!!]  We are more than a website - we are family. :grouphug;  Here is the place for information and support.  So keep reading and keep posting.  Let us know how you are doing.  Vent and rant and rage whenever you need to.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #21 on: January 13, 2009, 02:05:26 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #22 on: January 21, 2009, 06:59:12 PM »

 :welcomesign;   I think many of us can understand the feeling of just wanting it to go away.  We can't do that, but we can be here to give you support. This is a great site for information and for friendship.  Looking forward to hearing more from you.  Keep posting  :cuddle;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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Ellie

« Reply #23 on: January 27, 2009, 07:27:32 PM »

Hi Tina and  :welcomesign;

I know just how you feel.  It has been about a year and a half since I found out about my kidneys failing.  I was hopeful that they would get better and still do to this day.  I had kidney damage.  I am back and forth.  I am holding out hope that I can regrow my kidneys as they do continuously make new cells.  I am working with a natural type person and she is hopeful or even confident that this will work.  I still have a GFR of 72 so still have most of my function.  Don't know if it will work, but by being here and learning what I can--I will be ready either way. 

Good luck to you,

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Tinah1968
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ME

« Reply #24 on: January 28, 2009, 05:33:01 AM »

Thanks again everyone.. I have been working hard to try to stay off Dialysis but, I  know it will not be long. Mentally I am not sure how prepared I am for Dialysis but, Physically I am since I have my Fistula and I am ready...
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
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