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Michelle
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Hi
« on: November 09, 2005, 02:54:09 PM »
Hello all

This place is so needed and I thank you for setting it up. ;D

I turn 30 this month and have been a patient since birth. They found that only my right kidney existed, but it was small and malformed. I went on CAPD at 6 and had a transplant at 6 which lasted 1 week and another at 8 which lasted 8 months. I was then on CAPD and APD until 6 years ago when I transferred to haemo and decided that I couldn't be rebellious any longer and put my name back on call for a transplant. Unfortunately the fates had other ideas and decided that this wasn't going to be an option for me and 3 years ago I was given a grave warning and adamant refusal that to go ahead would be too dangerous. However they could have been wrong there and I am about to put a post in general discussion explaining and asking for input.

Look forward to speaking with you all soon.
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Epoman
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« Reply #1 on: November 09, 2005, 09:34:57 PM »
Wow, since birth? That really sucks. I know you have some storys/rants to tell and we look forward to reading them. Welcome to the board and I am glad you found this site also your welcome. I set this site up for YOU!  :)

Enjoy!
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
angieskidney
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« Reply #2 on: August 30, 2006, 08:57:50 PM »
Have you ever read Lori Hartwell's book Chronically Happy? The reason I ask is she had been on dialysis the first time when she was only 2 years old (HD though) and her life experiences and input in her book are a very good read and I figured that you could really relate and enjoy the book! :)

Glad you are here! I have been sick since birth but because of undetected reflux that wasn't discovered until I was 9. I wasn't on PD until I was 16 though and my first transplant lasted longer than your 2nd one (11 yrs) and now I am on HD. I enjoy seeing people who are young like me (I am 32). We have a lot of common ground ;)
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
sandman
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« Reply #3 on: August 30, 2006, 09:18:51 PM »
Wow Michelle, sorry to hear that you had two very short lived transplants and so early in life as well.  Sorry for my questioning but will that hurt your chances for another transplant attempt?

anyway, welcome to IHD.  I hope you enjoy your stay here.
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goofynina
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He is the love of my life......
« Reply #4 on: August 30, 2006, 11:36:51 PM »
Hi Michelle and Welcome to Ihatedialysis.com, not only a website but a support group as well.  I am glad you found us and i look forward to hearing all that you have to share...
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Joe Paul
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« Reply #5 on: August 31, 2006, 03:05:50 AM »
Welcome Michelle, glad you found us here, looking forward to hearing more from and about you.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sluff
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« Reply #6 on: September 02, 2006, 05:25:00 AM »
Welcome Michelle.
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BigSky
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« Reply #7 on: September 02, 2006, 06:37:18 PM »
Welcome
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Zach
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"Still crazy after all these years."
« Reply #8 on: September 03, 2006, 10:01:49 AM »
Hey Michelle ... welcome to the site!         :)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
thom
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« Reply #9 on: September 03, 2006, 10:36:19 AM »
Welcome welcome! looking forward to hearing (reading) more about you!  :D
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