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Author Topic: New member, I guess this is where I start.  (Read 3685 times)
LT514
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« on: September 02, 2006, 03:59:30 PM »
I'll go fast.
I have had CKD since I was 11, now 28. On dialysis four times (both peritoneal and hemo), and have had three kidney transplants. One living-related, two deceased. I volunteer at Gift of Life and National Kidney Foundation. My disease was caused by a rheumatoid disease. I am not on dialysis now. I was, last stretch was for 2.5 years. Hated it.
I have a two-pronged goal in regards to my life.
1. Get people on the organ and tissue donation list
2. Catch CKD before it does the damage

That's as much of an intro as I can give, for now.
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Leslie Taylor
1989 - Diagnosed with ESRD/CKD; began PD
1991 - Transplant from my mom
3/2000 - Transplant rejection, began in-center hemo
8/2000 - Deceased donor transplant #2
11/2003 - Rejection
07/2005: Deceased donor transplant #3 - R.I.P Steven Ecklid
04/2007: Graduated with an MSW
10/2007: Began working as dialysis social worker


No one can make you feel inferior without your consent - Eleanor Roosevelt

I will get by, I will survive - Grateful Dead
Epoman
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« Reply #1 on: September 02, 2006, 04:37:05 PM »
Quote from: LT514 on September 02, 2006, 03:59:30 PM
I'll go fast.
I have had CKD since I was 11, now 28. On dialysis four times (both peritoneal and hemo), and have had three kidney transplants. One living-related, two deceased. I volunteer at Gift of Life and National Kidney Foundation. My disease was caused by a rheumatoid disease. I am not on dialysis now. I was, last stretch was for 2.5 years. Hated it.
I have a two-pronged goal in regards to my life.
1. Get people on the organ and tissue donation list
2. Catch CKD before it does the damage

That's as much of an intro as I can give, for now.

Welcome to the site, glad to see you are such an advocate for patients well being. We have some great members here and I hope you post a lot and share your experiences with others and help some people along the way. Again welcome to the site.

- Epoman
Owner/Admin
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: September 03, 2006, 12:03:35 AM »
That was a great intro!  Welcome to our community.  It is clear that while I know we have much to offer you, you also have much to offer us.  I am looking forward to hearing more from you in the other threads, or maybe you can start some yourself.  Welcome!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #3 on: September 03, 2006, 12:14:42 AM »
Welcome LT514, glad to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
angieskidney
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« Reply #4 on: September 03, 2006, 04:05:05 AM »
wow you are young like me! Welcome to the site!
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Sluff
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« Reply #5 on: September 03, 2006, 06:33:59 AM »
Welcome to the site.
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Zach
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"Still crazy after all these years."
« Reply #6 on: September 03, 2006, 09:44:38 AM »
Greetings and welcome to the site!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
redheadedangel
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Smiling for you!
« Reply #7 on: September 03, 2006, 09:53:04 AM »
WOW so youngto go through so much,and full of wisdom! You sound like a real asset to this site. Welcome Sassy
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mmmmdeedee
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« Reply #8 on: September 04, 2006, 07:33:09 PM »
Welcome to the site! Just curious and not trying to be nosey, do you have lupus? That's what caused my kidneys originally to go bad. Just thought your arthritis disease might be Lupus. Haven't seen too much of "us" on this site so I'm curious.
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1st on dialysis: 1986
1st transplant: 1990
1st failure: 05/06
CCPD
2nd transplant 07/24/07
Rerun
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Going through life tied to a chair!
« Reply #9 on: September 04, 2006, 10:38:50 PM »
Welcome to the site.  Once you see what a great find this site is, maybe you could promote us to the patients you come in contact with.  I wish you well on your goals.  They are worthy.
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mallory
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« Reply #10 on: September 05, 2006, 10:01:35 AM »
Wow, LT514, you've been through a lot for someone so young.  Glad you found the site, welcome!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
MattyBoy100
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What's dialysis?
« Reply #11 on: September 05, 2006, 11:06:17 AM »
Wow,

you sound like you been through the mill!
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SCOTLAND NO.1
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