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Author Topic: Patsy's Intro  (Read 3466 times)
Patsy
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« on: January 22, 2009, 07:12:53 PM »
Hello from Patsy and Dennis
We are new to the list and and Dialysis and need  HELP and support...

We are now on Palawan island in the Philippines, We have been retired and sailing for the past nine years in Asia and the South Pacific.
Patsy has had chronic kidney problems for several years and after a urinary tract infection we find that ESRD and dialysis has changed our lives. We are eager to start Home Hemo ASAP ad will return to Washington the end of Feb.

Thank You
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swramsay
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My son, Scotland, is my heartbeat.

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« Reply #1 on: January 22, 2009, 07:23:57 PM »
Hi Patsy & Dennis.
Nice to hear from you. I'm 5 months into the dialysis thing myself. Monday, I begin training for home hemo in Lakewood, WA with Davita. Are you from Washington state or DC?
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
boxman55
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« Reply #2 on: January 22, 2009, 07:29:34 PM »
Welcome to IHD Glad you found our site. There is tons of info here that can help. Look forward to seeing your posts.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
paris
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« Reply #3 on: January 22, 2009, 07:36:46 PM »
 :welcomesign;  Patsy and Dennis,  You have found a great place for information and support.  Please ask question, vent and share your experiences.   We have many members who do home hemo and they would love to give you any help you need.   We also would love to hear about your adventures.  Post often.   :2thumbsup;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #4 on: January 22, 2009, 07:54:08 PM »
 :welcomesign;
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Wenchie58
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Always carrying the big silly grin!
« Reply #5 on: January 22, 2009, 09:14:45 PM »
Welcome to the group!  We are a fun bunch...and some of us (not me) are quite bright!  They have
given me TONS of valuable info!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
paul.karen
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« Reply #6 on: January 23, 2009, 04:40:37 AM »
:waving; Patsy & Dennis

Happy that you have found the #1 site for support and understanding when it comes to dialysis questions needs and understanding.
Sounds like you are both having some great adventures.
Have you thought of doing PD. Seems like you like to travel and get around and this may help give you the freedom to do just that.
Hope to see you on the boards.  Also you must have some awesome photos of your trips :clap;

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #7 on: January 23, 2009, 06:04:54 AM »
:welcomesign; Patsy and Dennis. We are a wonderful group full of information and support. Hope we hear lots from you and see and hear some of your sailing adventures.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Tinah1968
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ME
« Reply #8 on: January 23, 2009, 07:49:57 AM »
 :bandance; yay! You found us.... Welcome :2thumbsup;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
coorsbob
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I dont live for dialysis, I do dialysis to live.
« Reply #9 on: January 23, 2009, 09:08:26 AM »
How is/was the Philippines? My wife is from Cavite. I have been there three time now.All before my ESKD that is.  I had a great time there also. Cant wait to see and hear about your trip. Good luck on your dailysis in washington.
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Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
monrein
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Might as well smile
« Reply #10 on: January 23, 2009, 09:38:46 AM »
 :welcomesign;  Hope to hear more from you and good luck with the move back to Washington.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wallyz
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« Reply #11 on: January 23, 2009, 09:53:40 AM »
Hi Patsy and Dennis. I am in washington now.  Keep in touch, and if there is any information or contacts you need now, let me know.
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Joe Paul
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« Reply #12 on: January 23, 2009, 10:21:00 AM »
Welcome Patsy & Dennis, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #13 on: January 23, 2009, 01:22:40 PM »
 :waving;   Welcome!  Good luck with your home training!  You'll learn lots here, as well.  Post often!  I look forward to hearing more from you both!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lola
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I can fly!!!
« Reply #14 on: January 23, 2009, 04:29:17 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
G-Ma
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« Reply #15 on: January 23, 2009, 05:26:30 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: January 23, 2009, 11:06:04 PM »
Welcome to our community, Patsy and Dennis!  What a great name you have !!(Patsy is my first name, though I use my second Aurora more).  You have done a great thing by joining our website.  This is the place for information and support.  In fact, we are more than a website; we are a genuine family  :grouphug;  Please keep reading, and above all, keep posting.  We need to know how you are doing.  Not nosy, just family.
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Normie
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Ellie
« Reply #17 on: January 24, 2009, 04:56:47 PM »
 :welcomesign;  Patsy and Dennis.

Wow such adventures.  And now you are facing a new kind of adventure.  Hope things go well for your move

and then your training.

Best wishes,

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Patsy
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« Reply #18 on: January 24, 2009, 07:22:54 PM »

WOW!!!!!! what a great surprise to receive all of your great message, Thank You each and Every one of You.  I have kowen in the back of my mind that dialysis was coming for years, I had a stomach by pass operation about 30 years ago and the Dr. laid  all the facts [ both good and bad ] out to me  and gave me until age 55, I am now 65 so I feel I am ahead of the game but still not ready to throw in the towel and will fight this with all of my power.

Yes we have some great pictures of our travels and will share them with who ever is interested.  New Zealand, Tonga, and other south Pacific island.  Australia,  Solomans, P.N.G., then three years ago we started up through Indonesia, Thailand and Malaysia, then a yacht race in Borneo and it was on our entrance into the Phillippines that the kidneys gave out and my first footfall on the Island of Palawan was the emergency room at the hospital

We will be arriving home Feb 28  and will be going first to the Lakewood Washington Davita Center and hope to enroll in their Nx Stage home dialysis program ASAP.  Any experience or recommendation from you  would be very much appreciated.

One concern Dennis is dealing with is HOW MUCH IS THIS GOING TO COST ?  at this point all we have is Medicare part A & B.  Any one have any suggested on getting started on the right track the first time.

Again Thank You all very much for you Help

Patsy and Dennis
the crew of " Harrier "
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Chris
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WWW
« Reply #19 on: January 25, 2009, 02:49:55 AM »
Hi Patsy and Dennis.

Wow that ounds incredable to sail around for that amount of time and to those places.

I'm sure there are members who can have input regarding home dialysis.

God Luck.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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