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Author Topic: Dr. Donohue: Alport's and kidney stones  (Read 1154 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: January 22, 2009, 01:39:46 PM »

DEAR DR. DONOHUE: My twin sister is serious with a man who has Alport syndrome. I have read about this on the Web, and it sounds ominous to me. Can it be cured? My family and I feel it's not wise for her to pursue this relationship. We are waiting to hear what you have to say.

— L.P.

Your sister and her friend are the ones to make a decision about their relationship. I don't see anything wrong with it.

Alport syndrome is an inherited disorder whose prominent feature is kidney inflammation. Most Alport patients are men, because the gene for the common variety of Alport syndrome is on the X chromosome. Men have only one X chromosome. Women have two, and their second chromosome protects them.

There is no cure for this illness. Kidney dialysis and kidney transplant can give Alport patients a normal and long life.

DEAR DR. DONOHUE: I never could have believed what pain a kidney stone brings. I finally passed the stone, but it was an experience I don't ever want to repeat.

My mother asked if I have been told to avoid calcium foods. I haven't. Should I? The stone was a calcium stone.

— R.C.

The most common kind of kidney stone is a calcium oxalate stone. It's logical to think that limiting calcium foods would be the appropriate thing to do. It isn't.

For many years, doctors told their patients who had calcium oxalate stones to cut back on their calcium intake. It turns out, however, that calcium restriction isn't necessary and can raise the risk of coming down with a second stone: Cutting back on calcium increases the absorption of oxalate, and that favors the formation of another stone.

Readers may write to Dr. Donohue or request an order form of available health newsletters at P.O. Box 536475, Orlando, FL 32853-6475. Readers may also order health newsletters from www.rbmamall.com.

http://www.southcoasttoday.com/apps/pbcs.dll/article?AID=/20090122/LIFE/901220321
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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