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Author Topic: New member - aintnorock  (Read 3837 times)
aintnorock
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« on: January 27, 2009, 02:56:23 PM »
Hi all-

My name is Carl, I'm 61, live in Slidell, LA.  Been married 39 years to Barbara, have a daughter Theresa who is 37 and a grandson Jackson, 22 months.

I have PKD.  Was diagnosed when I was 40.  My kidneys were failing, slowly but surely - I got on the Kidney transplant list 3 1/2 years ago.  As a condition for transferring from one list to another (I moved), the new center asked me to go through all the physicals all over again because I had had a silent heart attack.  (the heart attack was minor and no treatment was necessary.)  So, I went through all sorts of tests including a stress test which I failed.  I then had an angiogram which I also failed - 99% blockage in the right main coronary artery and two other blockages.  I had a triple bypass.  Good news, my heart is now working fine.  Bad news, the surgery killed my kidneys.  I started dialysis 2 days after surgery with the hopes that I'd get some kidney function back.  Never happened.  I've been on dialysis since October.  Good news is that I'm on a transplant list and shouldn't have to wait more than a couple years.
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monrein
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Might as well smile
« Reply #1 on: January 27, 2009, 03:02:20 PM »
 :welcomesign;  Carl.  I hope your name comes up soon on that list.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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A meow massages the heart.
« Reply #2 on: January 27, 2009, 03:10:45 PM »
Welcome, Carl!  I guess the positive spin on your story would be that they caught the coronary artery disease before a major heart attack occurred.

You will find a great deal of useful information on this site, and the members are very helpful. 

Good luck to you, and again, welcome!   :welcomesign;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willieandwinnie
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« Reply #3 on: January 27, 2009, 03:13:45 PM »
 :welcomesign; Carl. I am the caregiver to my hubby who is 60 and had a transplant 9/07. You have found a wonderful group that shares information and offers support. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #4 on: January 27, 2009, 03:16:46 PM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wallyz
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« Reply #5 on: January 27, 2009, 03:31:15 PM »
Hi Carl.  Carl and I know each other from a Youth Ministry Website, ymexchange.com.  He's  a great guy.
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aintnorock
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« Reply #6 on: January 27, 2009, 03:36:55 PM »
Quote from: Wallyz on January 27, 2009, 03:31:15 PM
Hi Carl.  Carl and I know each other from a Youth Ministry Website, ymexchange.com.  He's  a great guy.

thanks.  {blush}
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MIbarra
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Stopping to smell the bluebonnets
« Reply #7 on: January 27, 2009, 03:47:15 PM »
 :welcomesign;  Carl, welcome to IHD! I have a sister-in-law in Slidell.
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Cadaver transplant April 29, 2007
G-Ma
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« Reply #8 on: January 27, 2009, 04:22:36 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Normie
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Ellie
« Reply #9 on: January 27, 2009, 06:17:18 PM »
Hi Carl and  :welcomesign;

Glad you have joined us. 

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Romona
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« Reply #10 on: January 27, 2009, 07:19:32 PM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #11 on: January 27, 2009, 07:24:05 PM »
Welcome to our community, Carl!  Great to have you with us. This is a great place for you to be.  We are here for all the way.  Hope things work out for your transplant.  when the time comes, we will go through that with you to, if you let us.  Just keep reading and keep posting, letting us know how things are going with you.  this is not just a website - it's a genuine family  :grouphug;
By the way, we are contemporaries - just had my 59th on Friday last.
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jessup
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Gemma - the tucker monster
« Reply #12 on: January 28, 2009, 10:43:42 AM »
G'day and  :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #13 on: January 28, 2009, 10:47:51 AM »
Good the have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #14 on: January 28, 2009, 11:28:44 AM »
Welcome Carl, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #15 on: January 28, 2009, 11:31:32 AM »
 :waving;    Welcome Carl!  It's always good to meet new friends.  Welcome to the IHD family.  I look forward to hearing more about you and Barbara!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Razman
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« Reply #16 on: January 28, 2009, 12:51:22 PM »
It' great that you joined .  Hope the transplant comes real soon.
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paul.karen
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« Reply #17 on: January 28, 2009, 01:37:48 PM »
Welcome to IHD Carl.
Hope to see you on many of the boards.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
thegrammalady
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« Reply #18 on: January 28, 2009, 01:41:45 PM »
 :welcomesign;
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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