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Author Topic: My opinion and your welcome to it LOL  (Read 3326 times)
Melinoir
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Does anyone have an asprin?

« on: December 23, 2008, 03:19:48 PM »

Hey I was asked how I feel about what is happening to me!  It wasn't just the Dialysis either. I've had major surgery from 3 car accidents in the last 10 years have plates, rods, screws, bone grafts, in my legs and arms.  I also lost the leg the surgeons worked so hard to save.  Lost it to MRSA gangrene (BKA) I am bleeding in both eyes and having laser surgery (for awhile I was blind in my right eye, hope that gets better) Now I'm on Dialysis PD.  I say I go through what I do because I have no choice suicide is NOT an option for me.  I don't presume to tell others how to feel or what to do with their lives it belongs to them.  I however know that in life we have very little control over what happens to us, it's not what happens TO me that to me defines who I am.  It's the one thing I do have control over, how I RESPOND  :sir ken; to what happens to me. I can whine and complain, and cry, and I do. but I find that is counter productive..... so I try not to.  I choose instead to concentrate on humor, laughter, love, kindness, compassion, and all the positive things I want to define who I am.  All of us are going to die... I want to live life every second I'm gifted with it...... Melinoir
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There is no normal life there is just life "Tombstone" (Doc Holiday on his deathbed to Wyatt)
monrein
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Might as well smile

« Reply #1 on: December 23, 2008, 03:30:40 PM »

Absolutely right on the money Melinoir.     :flower;  It sure isn't easy but there's much to be gained by trying to live this way. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cris
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Nanay, superwoman, super dooper, best mother

« Reply #2 on: December 24, 2008, 01:22:11 AM »

hats off to you Melinoir :2thumbsup; :2thumbsup;
You are a very rare kind of species, a gem.
Bless you!

love,
cris
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there is no greater love than this: "that a man lays down his life for his friend"
Zach
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"Still crazy after all these years."

« Reply #3 on: December 24, 2008, 05:45:27 AM »

Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
peleroja
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I have 16 hats, all the same style!

« Reply #4 on: December 24, 2008, 08:58:32 AM »

Great attitude, and a lot like the way I feel.  I never have been one of those "poor, poor pitiful me" types.  As they say, poop happens and sometimes it happens to you.  Keep on smiling (or at least grimacing) and get on with your life.  I think those of us with that kind of attitude live longer.  I applaud your attitude.   :clap;  :clap;  :clap;  :clap;  :clap;
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pelagia
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« Reply #5 on: December 24, 2008, 09:09:50 AM »

 :clap;  sounds good  :clap;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #6 on: December 25, 2008, 12:51:35 AM »

 :thumbup; :thumbup;
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live  life  to  the  full  and you won't  die  wondering
circleNthedrain
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« Reply #7 on: December 25, 2008, 11:07:38 PM »

Your positive attitude will  serve you well on this rocky ride.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Chris
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WWW
« Reply #8 on: December 26, 2008, 12:29:00 AM »

I find humor helps me the most, then animals, followed by my goal to finish college and start working again. Family is not at the top of my list, I need a very long  break from them ::) ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Melinoir
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Does anyone have an asprin?

« Reply #9 on: December 26, 2008, 03:49:45 AM »

Hey Cris,  :waving; I have found that if you live your life like your going to do something as a matter of course you usually do.   :thumbup; So by telling me  what you plan to do I'm thinking you will do it.  It is my wish for you that you never stop planning and looking at what you will do  That you live each day with good expectations and face each experience as an adventure and something to make life more interesting and varied  ...... Melinoir
PS as you can see I'm full of opinions and give them out freely they are gifts to be done with as the receiver wishes .... LOL ::)
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There is no normal life there is just life "Tombstone" (Doc Holiday on his deathbed to Wyatt)
boxman55
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« Reply #10 on: December 26, 2008, 02:56:25 PM »

Melinoir, do you use a prothesis for your leg? ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: December 26, 2008, 10:36:12 PM »

Excellent attitude!   I am with you all the way.  I notice that there are lots of people with good health and lots of money, and yet they are depressed and have to seek psychotherapy.  That shows me that those things are not what makes you ultimately happy.  I has to be your inside - your personal determination to enjoy life, even with its challenges.  That keeps me going!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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