teverman
Newbie
 Offline
Posts: 11
|
 |
« on: October 23, 2008, 07:21:29 AM » |
|
Wow-not sure where to start so here goes. I have been lurking and reading for almost a year now.  My name is Tina I'm 46 and I am here for my mom who is 74. We are not sure when the kidney failure started but she has had diabetes for about 8 years now. In December of 06 her doctor of over 40 years retired and she was sent to a new doctor. Right away the new doctor picked up on her high creatin level.  She was sent to the nephologist and began with iron shots and watching her diet. By the end of 07 the doctor started talking about getting a fistula because her numbers were getting worse. She ended up in congestive heart failure in January and again in February. She had her fistula placed March 08. It was working great and she didn't need to started dialysis right away. April and May were good months. We went on vacation the end of June, the day we came back she ended up in the hospital with chf. She still didn't want to start dialysis. The end of July she had a heart attack. They wanted to do dialysis right away-they found out her fistula wasn't working so they put in a cath.  Two days of dialsys in the hospital then in center for 3 and a half hours M-W-F. First cath got infected after 2 weeks had to have a new one. Then a balloon surgery to fix the fistula that didn't work. Two weeks ago she had a graft placed in her upper arm. She will start to use that next week. She is so scared. Sorry this is so long but if I hadn't been reading this site I would not have know what questions to ask and how to go about everything.  She keeps asking me-how do you know all this stuff-you guys are great. I feel much more confident knowing everything I do from here and what to expect.  Tina |
|
|
|
|
Logged
|
|
|
|
|
Joe Paul
|
|
« Reply #1 on: October 23, 2008, 07:28:32 AM » |
|
Welcome Tina, good to have you aboard.
|
|
|
|
|
Logged
|
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
|
|
|
|
cookie2008
|
|
« Reply #2 on: October 23, 2008, 07:30:41 AM » |
|
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
Rerun
|
|
« Reply #3 on: October 23, 2008, 07:38:44 AM » |
|
Tina and Mom, welcome to IHD. Your Mom is starting out dialysis the usual way. Lots of surgeries and catheters. Things will settle down. Keep reading this site, and ask questions.  |
|
|
|
|
Logged
|
|
|
|
|
willieandwinnie
|
|
« Reply #4 on: October 23, 2008, 07:58:02 AM » |
|
Tina. Glad you decided to join us. We are a great group and are here to help you and your Mom with all the information and support that you need. Bless your heart.  |
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
teverman
Newbie
Offline
Posts: 11
|
|
« Reply #5 on: October 23, 2008, 08:51:29 AM » |
|
Thanks for the warm welcome. Mom and I both appreciate it. The knowledge here is unbelievable and the members are the greatest.  Even though you may not know it you guys have helped me through a lot of tough times by just being here. Thanks again!  |
|
|
|
|
Logged
|
|
|
|
|
monrein
|
|
« Reply #6 on: October 23, 2008, 09:31:59 AM » |
|
So glad you finally decided to join us after lurking to get to know us first. I'm also glad your Mom has you to help and support her.
|
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
|
paris
|
|
« Reply #7 on: October 23, 2008, 11:27:59 AM » |
|
Tina, That was a wonderful introduction. Your mother is very fortunate to have a daughter who care so much. I am thrilled you have found answers here, but I am really excited you decided to join. As you can tell, we are very supportive of each other. We really do care. Your Mom has been dealing with so many things. Please let her know we are here for both of you. Welcome to our family!!  paris, Moderator |
|
|
|
|
Logged
|
 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
jwaynebo
Newbie
Offline
Gender: 
Posts: 20
|
|
« Reply #8 on: October 23, 2008, 05:29:14 PM » |
|
Your mother is a very blessed woman to have a daughter like you. 
|
|
|
|
|
Logged
|
Peace,
Jeffrey
"I'm pullin' for ya, We're all in this together." - Red Green
|
|
|
|
devon
|
|
« Reply #9 on: October 24, 2008, 06:18:44 AM » |
|
Welcome and I'm glad you were keeping so well informed, for your mom's sake.
-Devon
|
|
|
|
|
Logged
|
|
|
|
|
Bajanne
|
|
« Reply #10 on: October 24, 2008, 08:40:50 PM » |
|
Welcome to our community, Tina! I was very moved reading your account. What especially made me tear up a bit is the following quote from you. This is the exact reason why Epoman started this site - to empower people- "Knowledge is Power!" He always made it clear that we can not leave it all up to the professionals. And this is how this site helps. Sorry this is so long but if I hadn't been reading this site I would not have know what questions to ask and how to go about everything. She keeps asking me-how do you know all this stuff-you guys are great. I feel much more confident knowing everything I do from here and what to expect.
Tina
Lurking for a year!!!!!! All I can say now, is welcome to the IHD family! Keep on posting. Let us know how your mom is doing. Bajanne, Moderator |
|
|
|
|
Logged
|
"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
|
|
|
Romona
|
|
« Reply #11 on: October 24, 2008, 08:46:22 PM » |
|
|
|
|
|
|
Logged
|
|
|
|
|
Ang
|
|
« Reply #12 on: October 24, 2008, 08:49:07 PM » |
|
TINA, for looking out for your mum
|
|
|
|
|
Logged
|
live life to the full and you won't die wondering
|
|
|
|
|
teverman
Newbie
Offline
Posts: 11
|
|
« Reply #14 on: October 27, 2008, 07:25:09 AM » |
|
Thanks for the welcome. I'm just sorry now it took me so long to post, but I'm here now so watch out. I might have too many questions but I know you guys will be right here waiting to answer. You are all awesome. Here's to all of you--since you guys can't partake I might have to drink enough for everyone  Tina |
|
|
|
|
Logged
|
|
|
|
coorsbob
Jr. Member
Offline
Gender:
Posts: 64
I dont live for dialysis, I do dialysis to live.
|
|
« Reply #15 on: December 29, 2008, 05:28:56 AM » |
|
Aboard and post often we are all family here
|
|
|
|
|
Logged
|
Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
|
|
|
|
Wenchie58
|
|
« Reply #16 on: December 29, 2008, 10:28:43 AM » |
|
Welcome to the IHD Family! |
|
|
|
|
Logged
|
Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"
Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match 10/24/08
|
|
|
|
I Hate Dialysis Message Board
Author
