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Author Topic: starting to feel the effects of the immunosuppressants  (Read 3645 times)
draven
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« on: December 22, 2008, 10:55:37 PM »

My daily regiment:


when i wake up
1X amloc (amlodipien) 10mg for blood pressure
1X Concor 5mg Beta blocka

at breakfast
Cyclosporin 200 mg (anti rejection)
5 X Prednisone @ 5mg (anti rejection)
1 X Pyridoxine (vitamin b6)
3 X isoniazid (to protect me against T.B tuberculosis)
2X Lasix (diuretic)

At Supper
Cyclosporin 200 mg (anti rejection)
2 X Azapress / imuran (anti rejection)

When i go to bed
1x Co tareg / Co diovan (blood pressure)
1X omeprazole 20mg (for heart burn)

 :stressed;

The first side effect i got was soon as i could eat or drink after the transplant i had Severe heartburn thanks to cyclosporin. it was really bad felt like i was drinking or eating hot lava and could not sleep at night.

been doing fine since then but i noticed the past few days that my feet were tingling and feeling slightly numb. and are also a bit swollen. i watched my fluid intake and I'm not overloaded. my output is very good and weight is fine. and since yesterday my ankles are really sore and I'm having a hard time walking.

also my blood sugar went from 7 which is normal up to 10 which is not good. i watched my sugar intake for the day and it went down to 4. so i think i just need to watch my sugar intake.

i am going to my transplant unit for my weekly checkup tomorrow.

anyone have these problems. did they go away. my feet are killing me
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: December 22, 2008, 11:36:25 PM »


Jenna had no side effects but she is on Cellcept and Prograf.
Has your blood pressure gone down since the transplant?
Exercise is good to help lower your blood sugar, even just walking daily.
Hope the soreness in your ankles goes away, not sure what causes that.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
draven
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« Reply #2 on: December 22, 2008, 11:54:55 PM »

My blood pressure has gone down perfectly since i have been home. normally 128 over 74. has not gone higher than 138 over 80.
i did find out that imuran can cause joint pains. will discuss this with the unit tomorrow.
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nursewratchet
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« Reply #3 on: December 25, 2008, 09:00:34 AM »

Watch the sugars carefully.  Prednisone can REALLY increase that.  Other symptoms may\should level off after a while.  Good Luck, and keep posted.   :flower;
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Vicki
Chris
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« Reply #4 on: December 25, 2008, 09:54:37 AM »

It's not just the sugars you need to watch, but what food and how much. This was a coomon thinking among diabetic doctors till they finally realized that portion control and other foods cause sugar to rise. Meat is the slowest for the body to process, so sugars won't rise fast, it is absorbed gradually. Carbohydrates and simple sugars (glucose) are more easily absorbed into the body. So lets say a 100% juice is druank and you go test your blood in 15 to 30 minutes, well your blod sugar is going to rise because the body can absorb it quickly. This is used to help treat diabetics with hypoglycemia (low blood sugar). As for the other foods, my memory isn't to clear, so I won't say since I haven't had to follow a diabetic diet in 8 years.

Also your blood sugar is affected by prednisone and can cause some swelling. I posted this in another forum, but I'll post it again for you about side effect. One is the whole article and the other is just the chart on back of the page.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
draven
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« Reply #5 on: December 31, 2008, 07:07:02 AM »

just a update my cyclosprine leves are too high 300 is considered toxic. my levels this week are 415 so reducing from 400mg a day to 300mg.

my predisone is being reduced from 6 to 5 pills a day.

feet still paining and i have developed a lovely rash on my back :2thumbsup; :sarcasm;

hoping this will help with the side effects
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chris73
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« Reply #6 on: December 31, 2008, 05:51:14 PM »

I had a bad rash on my back after a couple of weeks after transplant..disscussed it with the Dr and said it was the high doses of prednisone and that it would go away as my  dose decreased...and now im on 10mg 2xday and no rash...my ankles swell too  and  it was the norvasc (bp med) that was culprit there so it may be one of your bp meds...  everything will get better...Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
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