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Author Topic: A new member from Olathe, KS  (Read 3476 times)
iamtimj
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« on: December 11, 2008, 12:46:17 PM »
Hi all,  I am a 43yr old man from Olathe KS. I have been married to an Elementary School teacher for 21 years and I have a 14 year old daughter.

I was diagnosed with kidney disease about 10 years ago and have been monitored pretty regularly by a nephrologist over the years.  All of my numbers have been getting worse over the past couple of years.  I was placed on the UNOS database back in the Summer.  We thought I had a live donor, but in the testing it was discovered that he has crystals on one of his kidneys.  This past Tuesday, my nephrologist told me that she's ready for me to  go on dialysis whenever I'm ready.

I work as a consultant and travel to a different city in the US almost every week so we are planning to do PD and try to coordinate delivery of fluids/supplies.  I have a ton of questions about PD and figuring out when is the right time to get started, but I'll post those in the right forum rather than here in my intro.  I'm looking forward to chatting with folks.
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Tim
paul.karen
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« Reply #1 on: December 11, 2008, 12:50:21 PM »
 :waving;

Ill be starting PD myself soon.   :waiting;
There is a section here about PD and other home types of treatment.  Two members just in the last month or so started doing PD and have written a diary of sorts in one of the threads that i found very useful.  They take you almost step by step as to what to expect.
 :welcomesign; Aboard

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
wrandym
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Whatever, dude!
« Reply #2 on: December 11, 2008, 12:51:17 PM »
Hiya Tim!
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
MiSSis
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« Reply #3 on: December 11, 2008, 01:09:44 PM »
Hi Tim.  Welcome to IHD.  I've been on PD for 5 years now and although I don't work, my husband and I travel quite frequently by plane and also by car.  Not sure which company you'll be working with but Fresenius has been really helpful and cooperative with all of my travel arrangements.  Wishing you luck as you start this next chapter of your life and feel free to ask lots of questions.  There are a lot of knowledgeable people here.
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
willieandwinnie
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« Reply #4 on: December 11, 2008, 01:35:18 PM »
:welcomesign; Tim. You found the perfect place for information and support. We hope to hear more from you and check out some of our older posts for lots of topics that will help you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Joe Paul
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« Reply #5 on: December 11, 2008, 02:14:23 PM »
Welcome Tim, good to have you aboard
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jessup
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Gemma - the tucker monster
« Reply #6 on: December 11, 2008, 02:35:48 PM »
G'day and  :welcomesign;
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monrein
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Might as well smile
« Reply #7 on: December 11, 2008, 03:00:55 PM »
 :welcomesign; Tim.  You've found the best place for tips and information.  We have several members who are on PD so feel free to ask any questions or raise any concerns you may have.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #8 on: December 11, 2008, 04:12:28 PM »
Welcome Tim to IHD we are glad your here and look forward to your posts

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
G-Ma
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« Reply #9 on: December 11, 2008, 04:55:35 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #10 on: December 11, 2008, 06:44:13 PM »
 :welcomesign; Hi Tim!
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Sluff
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« Reply #11 on: December 12, 2008, 06:31:52 AM »
Welcome to IHD Tim,

Thank you for the pm you sent me. I hope you will learn a lot about PD from us and that you can continue to work the way you are accustomed to. You sound like you have explored your options and have made your decision. Good for you for doing your homework.  :thumbup;  Hope all turns out well.

Sluff/Admin
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #12 on: December 12, 2008, 07:06:02 PM »
Welcome to our community, Tim!  Glad you found us and decided to join us.  I know that you will receive lots of helpful information here.  And a lot of your information will come from people who are actually living the experience and not just giving theories.  In my area our only option is HD, but many of our members do PD so they will be able to give advice.  Please know that you have now joined our wonderful IHD family :grouphug;  Please take advantage of all this site has to offer.  Keep reading and keep posting.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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"Still crazy after all these years."
« Reply #13 on: December 12, 2008, 07:21:14 PM »
It's good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kellyt
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« Reply #14 on: December 14, 2008, 06:50:37 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #15 on: December 15, 2008, 04:06:00 PM »
Tim, so glad you joined us.  There are many people here on PD and they will be very happy to answer any questions you have.  This is the best place for information straight from others in the same spot you are in.  We are also very good at support.  We are always here for each other.   Keep posting so we can hear how your process goes.  Welcome!!






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
coorsbob
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I dont live for dialysis, I do dialysis to live.
« Reply #16 on: December 29, 2008, 05:45:16 AM »
Hey Tim!

Bob here I used ti live in Wichita for 20 years or so. I then moved to California with the rest of my family to be closer to them. Ive been on PD for about three months now and it is (I feel) the best thing out there. Look into it it will make you feel allot more healthier. Also you may prolong the little kidney  you have. Keep in touch and post often.  :welcomesign; Aboard
Bob A fellow Kansan at heart :guitar:
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Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
thegrammalady
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« Reply #17 on: December 29, 2008, 09:22:33 AM »
 :welcomesign; this is a great place to land. i'm sure you'll find answers to all your questions.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Wenchie58
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Always carrying the big silly grin!
« Reply #18 on: December 29, 2008, 10:30:57 AM »
Welcome!  I have found more information here in the past few weeks than my doctors have offered me in YEARS!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Ang
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« Reply #19 on: December 29, 2008, 09:49:41 PM »
 :welcomesign;  Tim
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live  life  to  the  full  and you won't  die  wondering
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