Hello - low platelets - uremia - & neprhologist referral

Hi everyone. First post. I began dialysis in September after surgery to remove my second kidney. My first kidney was removed 2 years ago - both as a result of bladder cancer. I am 51, married and have one amazing 10-year-old son. I am trying to remain as normal and active as possible but am experiencing some problems associated with uremia as far as I can tell. High potassium and phosphorus. Low platelets. I was feeling very faint at the gym yesterday while doing cardio.

1. Ever since surgery and dialysis the day following, my platelets have been a problem going as low as in the 20's. They hover between 40 and 80 most of the time. I suspect strongly that is it associated with something going on in dialysis. I have found an article here and there referencing dialysis associated platelet loss but my current nephrologist, my past nephrologist, and the dialysis team say they are not familiar with this. Has anyone here experienced dialysis associated platelet loss? I have has the heparin antibody test 3 times. Each time was negative. Even so, I do not receive heparin during dialysis nor for my catheter blocks. I read somewhere that the membrane composition of some dialyzers can influence platelet loss. Any other ideas? I am to begin training for home dialysis in a couple of weeks and am concerned about bleeding due to low platelets.

2. I am also experiencing symptoms of uremia. Difficulty walking, chewing, writing etc. (very disturbing), restless leg syndrome, sweats/chills, feeling toxic/cruddy, tired. My nephrologist seems disinterested and is unavailable for an appointment for 4 weeks (my first appointment with her). My phosphorus and potassium are high although I feel like I am watching what I eat fairly well. I am concerned about the symptoms. Any input from anyone?

3. I live in the Seattle/Tacoma area and am looking for the best nephrologist that I can find. I hope I am not limited to the geographical area surrounding my dialysis unit. The rest of my medical team is in Seattle. I often travel to Seattle for the rest of my care. I am very proactive in my care and need a nephrologist that welcomes that and is willing to work & communicate with me and the rest of my medical team. ANY REFERRALS FOR A NEPHROLOGIST FOR ME?

Because I'm new here, if any of these questions should be posted elsewhere for better exposure, please let me know. Thank you. I am grateful for the resource that this email group will hopefully provide.