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Author Topic: transplant newbie dialysis oldbie!  (Read 3077 times)
glowbrightly
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« on: December 15, 2008, 01:52:37 PM »
Hi everyone,

I have only recently got into using these message boards to talk about kidney related stuff and I must say I think they're fab!! Was reading some of the threads and it seems like there are a lot of lovely caring people on here.

I am 23 years old (24 on Thursday!) and I was diagnosed with ESRF in Dec 2003 when I was 19 and on holiday in California. I had been feeling utterly rubbish for ages beforehand but being a stubborn teenager I didn't want to go to the doctor and instead put it down to being young and burning the candle at both ends!

After being taken seriously ill in California and spending a week in ICU I flew back to London, England and started hemodialysis. After a while, once I had got a bit stronger I transferred to APD which worked for me for a while, but after 3 years I was spending 10 hours on the machine at night not to mention a day time exchange. I was ill and fed up, and due to a mean doctor threatening me with hemodialysis like it was the worst thing in the world I kept quiet about how ill I felt and instead waited till it was so bad I had to be admitted. I switched over to hemo for 2 years which worked really well for me. During this time my whole family had been tested to be a donor but they were not matches. In August of this year a very good friend of mine, Oli, came forward to be a donor and miraculously was a match! The op went ahead  on 17th Oct and 8 weeks down the line I feel fab! He is an utter hero.

I wrote a day by day account of my transplant on my blog questforakidney.blogspot.com if you would like to check it out.

Best wishes to all of you.

Holly
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http://questforakidney.blogspot.com

Received new kidney (christened Kasper) on 17.10.08 from fab friend Oli.
boxman55
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« Reply #1 on: December 15, 2008, 02:26:58 PM »
Hi Holly, welcome to IHD. Your intro was great. Oli is a true hero and I am glad you get to move forward with your life. Please keep us posted on your transplant and we all look forward to having you as a member

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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« Reply #2 on: December 15, 2008, 02:43:11 PM »
 :welcomesign;   :canadaflag;  Welcome Holly.  Loved your blog and your intro here.  Oli is a hero, I don't have to tell you that.  I went on dialysis the first time at 26, did 5 years of D and then had a transplant for just over 23 years.  I'm now back on hemo, waiting for a trx from my sister-in-law.  We're now just waiting for a date and hoping nothing gets screwed up in the meantime.

Post often Holly.  Your attitude sounds wonderful and I'm so glad that your life is getting back on track
« Last Edit: December 15, 2008, 03:23:41 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #3 on: December 15, 2008, 02:44:08 PM »
 :welcomesign; Hi Holly!
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kellyt
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« Reply #4 on: December 15, 2008, 02:48:45 PM »
 :welcomesign;  Holly!  Congratulations on your transplant!  You're two weeks ahead of me!  I celebrate six weeks on Wednesday!  What a blessing, huh?  I got my new kidney from my sister-in-law (husband's sister).  Oli is a true hero!  They BOTH are!    I'm going to go read your blog!

Again, welcome!  You will love it here.    :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willieandwinnie
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« Reply #5 on: December 15, 2008, 03:02:37 PM »
:welcomesign; Holly. Glad you found us and congratulations on your transplant. You'll love it here. We hope to hear more from you and I'm going to check your site too.  :cuddle;
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jessup
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« Reply #6 on: December 15, 2008, 03:30:20 PM »
G'day and  :welcomesign;
I will now go and check out your blog
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kidney4traci
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« Reply #7 on: December 15, 2008, 04:04:09 PM »
 :welcomesign; lovely intro... will check out your blog....  congrats on the new kidney and great friend!!!!!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Bajanne
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« Reply #8 on: December 15, 2008, 10:31:58 PM »
Welcome to our community!  So glad that you found us!  What wonderful news :yahoo;  We will add you to our list of those with transplants.  Oli is a hero!  Let him know that we would love to have him join us.  We have people here from every perspective of this renal challenge - patients, loved ones, donors, doctors, nurses, you name it!  And we are together a lovely caring and sharing family  :grouphug;  Looking forward to hearing more from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #9 on: December 15, 2008, 10:38:22 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #10 on: December 15, 2008, 10:41:07 PM »
Welcome Holly, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
glowbrightly
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« Reply #11 on: December 16, 2008, 05:17:23 AM »
Thank you so much for all your lovely replies! Great to hear from you! Can't wait to get stuck in reading and posting on the rest of the forum now! x
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http://questforakidney.blogspot.com

Received new kidney (christened Kasper) on 17.10.08 from fab friend Oli.
paris
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« Reply #12 on: December 16, 2008, 04:37:59 PM »
 :welcomesign;   Glad you joined this great group.  This is the best site for information and for valuable support.  We really care for each other.  I look forward to more of your posts.   
Welcome to the IHD family   :grouphug;




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It's not what you gather, but what you scatter that tells what kind of life you have lived.
RichardMEL
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« Reply #13 on: December 16, 2008, 08:25:05 PM »
Welcome Holly!! What an introduction to dialysis/ESRD you had - on holiday in another country to boot!!! I am so glad in the end your friend came forward and you have the beautiful gift right before your birthday!!!! That's just sensational! Hoping it lasts for many years to come and you can live a full and happy life!! Happy Birthday!!!!

 :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
glowbrightly
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« Reply #14 on: December 17, 2008, 04:45:12 AM »
Aw thank you so much! This'll be the first birthday that I haven't felt ill in years! woop!
x
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http://questforakidney.blogspot.com

Received new kidney (christened Kasper) on 17.10.08 from fab friend Oli.
nursewratchet
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« Reply #15 on: December 17, 2008, 05:07:41 AM »
[b]Happy Birthday to You![/i] [/b]  Welcome... :flower;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
paul.karen
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« Reply #16 on: December 17, 2008, 05:28:12 AM »
 :waving; Holly,

What a story that is.  Nothing like being so many miles away from home and getting stuck in an ICU unit.
I am so glad thart Oli stepped up to the plate for you.
Nothing like a happy ending to a sad story.  Welcome to IHD.
P&K
And an Early Happy Borthday to you  :birthday; :bestwishes;
 :beer1;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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