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Author Topic: hi, my name is Judy but everyone calls me tesse  (Read 4006 times)
tesse
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« on: December 01, 2008, 07:07:44 AM »
 :flower;       Hi my name is Judy but everyone calls me tesse, I am kind of new to dialysis, it has been only 1 1/2 since told that I would be hooked to a machine to clean my blood and that I would be feeling 100% better.... yea right....

I don't have the usuall problems that come with end stage renal failure, as a matter of fact, the only thing wrong with me is that the kidneys stopped working...

I live in southern Calif. in the OC area, my husband has been great with helping me deal with being on dialysis, which he will tell you I hate with a huge passion.  If I can find a reason not to go, I will not go..... depends on really how I am feeling, that morning of treatment....

I would love to hear from others, maybe you can help me adjust... which I am having a hard time with...

sorry this is sooo short  I just don't know what to say, other than I hate dialysis
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willieandwinnie
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« Reply #1 on: December 01, 2008, 08:43:20 AM »
:welcomesign; tesse. So glad you found us. We are a great group, loaded with information and support. Check out some of the older posts also. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
502Blues
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« Reply #2 on: December 01, 2008, 08:59:48 AM »
How old are you? Do you plan to get a transplant? If so,one of the things they look at while considering if you'll be a good candidate is your dialysis attendance, if you dont go to all your treatments they will look at it like you dont follow rules and may not allow you to be listed. Ive been on dialysis for 10 years now, i dont feel like i need to go for evey treatment because i feel fine, I go because i have to and because i know whether if  I can tell the difference or not, I am a little better off if i go to each session Im spposed to
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1991: kidney failure, undetermined cause
1991: right and left clavicle temporary catheters
1991: catheter for PD
1992:transplant
1998: June, Fistula placement
1998: july, back to dialysis,Hemo
1999: transplanted kidney removed
2001: parathyroidism
2006:march, fstula cant be fixed due to too many stents in damaged vessels caused by temp caths
2006: april, Pd catheter placement
 PD would not drain properly
2006: finally after much pain and misery, AV Graft placed in abdomen, its working fine thank god
Quit dialysis sometime in 2009, had a change of heart and  returned before I died
transferred waiting list time to another city/state and was transplanted almost right away August 9,2013
monrein
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« Reply #3 on: December 01, 2008, 02:26:47 PM »
 :welcomesign; Tesse. glad you found us and I hope we can help you with the adjustment.  It takes time to adjust to the whole thing but generally speaking we do best if we follow the schedule and the diet, as awful as both are.  I went on D at 26, did 5 years, had a transplant for just over 23 years and now am back on D, until I can (hopefully) get another.

I hope you'll post often with questions, experiences to share, concerns or even a good joke.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kidney4traci
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« Reply #4 on: December 01, 2008, 02:30:06 PM »
 :welcomesign;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kellyt
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« Reply #5 on: December 01, 2008, 02:40:18 PM »
:waving; Tesse.  So glad you found us.  This site will change your life for the better, I guarantee!  You will not find a more knowledgeable and understanding group anywhere!
I feel for you and all the others on dialysis.  I hope you find that happy balance between life and dialysis soon.  I'll be thinking of you!   What days are you on dialysis and for how long?  Post as much as you can and get the support and motivation you need.  Thank God you have a good Husband who understands your needs and desires.  He's a keeper!

Keep in touch and rant whenever you need to.   We're here for ya!     :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jessup
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« Reply #6 on: December 01, 2008, 04:44:25 PM »
G'day and  :welcomesign;
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G-Ma
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« Reply #7 on: December 01, 2008, 05:28:05 PM »
 :welcomesign;     welcome to a great group who has helped me deal with so much of this.  You and I have been on about the same amount of time and some days I still feel like an uphill battle.  Hang in there with us.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #8 on: December 01, 2008, 06:37:27 PM »
Welcome Tesse, Glad you joined IHD. Your intro was perfect. We have a number of members from So. Cal We are here to help if you need it. Please read some of the posts to get to know us. Also post often with your questions or thoughts

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
southyard
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« Reply #9 on: December 01, 2008, 07:44:46 PM »
Quote from: tesse on December 01, 2008, 07:07:44 AM
:flower;       Hi my name is Judy but everyone calls me tesse, I am kind of new to dialysis, it has been only 1 1/2 since told that I would be hooked to a machine to clean my blood and that I would be feeling 100% better.... yea right....

I don't have the usuall problems that come with end stage renal failure, as a matter of fact, the only thing wrong with me is that the kidneys stopped working...

I live in southern Calif. in the OC area, my husband has been great with helping me deal with being on dialysis, which he will tell you I hate with a huge passion.  If I can find a reason not to go, I will not go..... depends on really how I am feeling, that morning of treatment....

I would love to hear from others, maybe you can help me adjust... which I am having a hard time with...

sorry this is sooo short  I just don't know what to say, other than I hate dialysis
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southyard
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« Reply #10 on: December 01, 2008, 07:55:04 PM »
Hi Tesse

I have been on dialysis since aug 08. At 1st I was dead against it but agreed with drs to try it for 6 months. As of this date I am not to pleased with it but things have improved somewhat.. I finally got tyhen to cut the flow and finished this morning w/o feeling faint or having BP drop. 
I have already talked about stopping same and family still agrees its my decision  I still feel I am a drag on the family but my Dear Wife says no way.  My 3 offspring also are pitching in to take up the slack but personally I am not 100% satisfied.  On Thanksgiving I turned 85 and ralize I have lived the best years of my life

My best to you and yuours
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Ang
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« Reply #11 on: December 01, 2008, 09:54:22 PM »
 :welcomesign; Tesse
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live  life  to  the  full  and you won't  die  wondering
Joe Paul
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« Reply #12 on: December 01, 2008, 10:50:01 PM »
Welcome Tesse, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
ODAT
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« Reply #13 on: December 02, 2008, 05:39:31 AM »
 :waving; Tesse, I am a caregiver to my mom who is 76 and predialysis. She is having trouble just accepting that dialysis will happen at some point. It is a life-altering condition that affects you and all around you. IHD makes that a bit easier. Talking helps, a lot. take care
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As is your sort of mind, so is your sort of search: you will find what you desire.
Bajanne
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« Reply #14 on: December 02, 2008, 10:04:48 PM »
Welcome to our community, Tesse!  I am really glad that you found us!  I know the difference that this site made to the way I looked at my dialysis.  I was extremely scared at first, but the guys that I met talked me through it and then things went so much better.  You will find that this site is not only a great source of information, but above that, a real place for support, and even fun.  Here you can rant, rave, rage or vent to your heart's content, knowing that there are people who understand EXACTLY what you are going through.  This IHD family is with you for the long haul.  :grouphug; So keep reading and keep posting.  Let us know how you are doing. Looking forward to hearing from you.



Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Mimi
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« Reply #15 on: December 02, 2008, 11:19:13 PM »
Welcome Tesse!!  Glad you joined us.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Zach
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« Reply #16 on: December 02, 2008, 11:24:09 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Normie
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Ellie
« Reply #17 on: December 11, 2008, 04:50:21 PM »
 :welcomesign;  Judy

Glad you joined. 

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Romona
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« Reply #18 on: December 11, 2008, 06:45:48 PM »
 :welcomesign; Hi Judy!
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Yvonne
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Yvonne
« Reply #19 on: December 11, 2008, 11:21:33 PM »
:welcomesign;
Hi Judy  I am the wife and care giver to John.  He has been ill now for 2 years with renal failure, not yet on dialysis but knows he will have to go on it one day and is not looking forward to it. But he knows at the end of the day it will make him feel better and I will make sure he goes and be there for him. He is 73 and I have found this site to be a great comfort for me (he will not use it) but sometimes he does ask me to ask a question about different things he has gone through, the people on this site are now just great friends to me and will be there for you to. Just ask and rant whenever you feel like it.  Yvonne the wife.
 :ukflag; :rudolph;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Sluff
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« Reply #20 on: December 12, 2008, 06:26:02 AM »
Welcome to IHD Tess,

I like your name reminds me of a TV show Touched by an Angel.  :) Thanks for joining our community and I hope you enjoy the time you spend here. If you have any questions feel free to ask. 

Sluff/Admin
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wrandym
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Whatever, dude!
« Reply #21 on: December 12, 2008, 11:33:46 AM »
Hiya, Tesse!!
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
thegrammalady
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« Reply #22 on: December 12, 2008, 11:36:02 AM »
 :welcomesign;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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