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Author Topic: Meinuk got the call  (Read 47432 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #150 on: November 17, 2008, 06:08:11 PM »


 :) Nov. 1, All Saint's Day will always be a very special day to me. That's the day that Jenna's transplant coordinator called to tell us that the living donor "is a match!"
Now Nov. 2nd is special too! Anna's kidney day!  :cheer: And it's All Soul's Day too.

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Meinuk
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« Reply #151 on: November 26, 2008, 09:19:57 AM »

Well, I am sitting in an empty apartment.  My unit rented a u-haul and took away my machine, pureflow and supplies.  Even though the transplant is going great, I have some serious mixed feelings about my machine and supplies being gone.  After all that happened in August/September, I feel like my security blanket has been taken away. (I may just have a few supplies "just in case"  -  you never know when someone might forget to pack drain lines...)

I get my stent out next week, and I am back to work the week of December 15th.  I'm still in shock as to the impact that this is having on my life, but I'm lucky to have amazing people for support and comfort. And so it goes, the beginning of another chapter.

Happy Thanksgiving everyone!

Anna

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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
willieandwinnie
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« Reply #152 on: November 26, 2008, 09:26:10 AM »

Anna, I am so happy for you. I actually put off letting them come pick up Len's machine and supplies after his transplant. Like you, I felt like it was some kind of security blanket or maybe things would be jinxed if I let them come get stuff. Funny how your mind plays games with you. Please continue to let us know how you are and good luck with returning to work. Don't overdo yourself and remember to drink plenty.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #153 on: November 26, 2008, 02:42:11 PM »

I feel the same way about my fistula that stopped working the day after surgery.  I want to talk to MY nephrologist before I allow anyone to touch that arm!  It was never used, but still my "security blanket".  I hope I never have to use it EVER!

Congrats again!   I get my stent out on Dec. 22nd.  Let me know what it's like!!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #154 on: November 28, 2008, 10:54:54 PM »

I know what you mean Meinuk. I put off sending my insulin pump back for sometimeand ordered insulin just for back up purposes. I had to send it back though, Medicare was renting my insulin pump from the manufacture. But even though my graft is somewhat working, I wish the would take it out. It just looks so bad to me.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Zach
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"Still crazy after all these years."

« Reply #155 on: November 29, 2008, 10:25:15 AM »


And so it goes, the beginning of another chapter.

Happy Thanksgiving everyone!


To a long and healthy kidney!
And have an extra yam for me.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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