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Topic: about me... (Read 3239 times)
gilgirl76
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about me...
«
on:
November 07, 2008, 08:10:34 PM »
hi, my name is jen and i am 32 and have been on HDialysis since April 2008. I was diagnosed with diabetes when i was twelve andi guess i can safely say that my uncompliance with a proper diabetic lifestyle is what caused my kidneys to fail....( i enjoyed being thin more than taking my insulin...yep- i was one of those with diabetic bulimia...smart, huh?)anyway...i went to westchester med center to meet with a transplant team in January and since august i have been placed on the transplant list. So far, my father and both brothers have been tested; they werent perfect matches( equally in fact- with my bros being perfect matches for each other) so i leave my fate to the list i suppose...my mother has not been tested, i think shes worried that if she is in fact a match she wont ever be able to meet the medical requirements needed to give me her kidney. i think the scariest part of all of this was meeting with Dr. Buttts(yeah- i giggled too). he seems like a very caring doctor, but he told me that the prognosis of a diabetic on dialysis was 10 years......but as of now i take each day with my fiance as it comes. were quite the couple- he and i. Right after i was told i would need a transplant in jan. he herniated two disks in his lower back at work in feb., which spirlled into a workmans comp nightmare.. but thats has finally been resolved but his back , well, i suppose its better... but it seems like his back will never be the same... but we have each other, and we take turns taking care of each other.. its kindof become a joke among friends.. we have both been told we need helmets and to live in protective bubbles( did i mention how hes adventuous and im accident prone{dang neuropathy}) so, i guess thats pretty much were im at now...nice to meet you all...
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G-Ma
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Re: about me...
«
Reply #1 on:
November 07, 2008, 08:16:29 PM »
to a great group of people.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Zach
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"Still crazy after all these years."
Re: about me...
«
Reply #2 on:
November 07, 2008, 08:19:55 PM »
Welcome to our community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: about me...
«
Reply #3 on:
November 07, 2008, 09:00:37 PM »
Welcome to our community, Jen! I am so glad you decided to join us. I already like the spirit that you show in your interesting intro. There is so much here for you - information, support, fun. So please take advantage of all this site has to offer. You will soon find that this is not just a forum; it's a family
So keep reading, and keep posting.
Looking forward to hearing from you.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Joe Paul
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Re: about me...
«
Reply #4 on:
November 07, 2008, 11:50:08 PM »
Welcome Jen, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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Re: about me...
«
Reply #5 on:
November 08, 2008, 04:37:00 AM »
Jen. You landed in a great place. Plenty of information and more support that you could imagine. Hope you post often.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
Re: about me...
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Reply #6 on:
November 08, 2008, 04:58:11 AM »
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www.caringbridge.org/visit/ottomachado
monrein
Member for Life
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Might as well smile
Re: about me...
«
Reply #7 on:
November 08, 2008, 05:52:19 AM »
to IHD Jen and I hope we can be a support to you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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Re: about me...
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Reply #8 on:
November 08, 2008, 07:53:11 AM »
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Rerun
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Going through life tied to a chair!
Re: about me...
«
Reply #9 on:
November 08, 2008, 10:05:12 AM »
Welcome to IHD. Usually transplant people gain weight, so just be prepared. I'd rather be a little chubby and feel good and be free of the machine. Best of luck.
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boxman55
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Re: about me...
«
Reply #10 on:
November 08, 2008, 11:47:45 AM »
Welcome to IHD we look forward to your posts. Just a FYI please research here on the site all the life expectency posts. You will find them to be encouraging.
Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
jessup
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Gemma - the tucker monster
Re: about me...
«
Reply #11 on:
November 08, 2008, 01:56:43 PM »
G'day and
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Razman
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Re: about me...
«
Reply #12 on:
November 08, 2008, 02:19:52 PM »
Its great that you joined.
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idahospud
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Re: about me...
«
Reply #13 on:
November 09, 2008, 01:17:37 AM »
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Ang
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Re: about me...
«
Reply #14 on:
November 09, 2008, 04:27:07 PM »
jen
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live life to the full and you won't die wondering
RichardMEL
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Re: about me...
«
Reply #15 on:
November 09, 2008, 07:15:37 PM »
Welcome Jen. Glad to have you with us. I think now that you know he importance of keeping to the diets and restrictions you'll do much better - as sucky as it is - but you've learned the hardest of hard ways how important it is. It sounds like you could well get transplanted from one of your siblings though? I mean you don't need a perfect match for a living donation to work out just fine so hopefully that's something that can be explored.
Anyway again welcome to IHD!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paris
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Re: about me...
«
Reply #16 on:
November 10, 2008, 12:12:09 PM »
Nice to meet you, too, Jen. Well, it is a good thing you and your husband have each other! What a time you two have been having. I am glad you joined this great group. There is a lot of information and support here. We really do care about each other and it is good to have a place to come to where everyone understands what you are saying. Looking forward to reading more of your posts.
paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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