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Author Topic: My Family  (Read 4415 times)
southyard
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« on: October 11, 2008, 06:09:26 PM »

when I wrote easrlier I mentioned that I wanted to quir dialysis as I was being a drag on my Wife and family. They had all been informed earlier that I did not want to end up in a nursing home. Now dialysis has me right next door.  Earlier I mentioned that I would kill my self soon.  After a deep discussion with my dr and the social worked I spelled out my plan.  I have had to delay that option due to the financial situation on Wall street.  Dialysis is not really helping me and they want me to increase my time by 30 minutes. I refused this but did settle for 10 minutes.

After I find out in dece,ber where my wife will stand with my pensions I willo make the final decision.  Since she would be very distraught caring foer me at home we have settled on my going to a hospise for my final weeks.  I have been organizing all my affairs accordingly and they are all at ease with them.

Botgh my DW and I have willed our bodies to the Medical College of WI so all funeral and cremation expenses are covered.. I know that some on here will think me batty  but I am me and will always be that way

Should I not write again I wish all of you the best. Live your life to fullestand enjoy what the LORD has provided us with
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G-Ma
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« Reply #1 on: October 11, 2008, 06:24:30 PM »

It's wise of you to take the time to make sure everything is in order.  That's also what my 2nd husband did when we knew death was close...we just had an evening of coffee and candlelight, I wrote and he talked and then we had all the signatures done.  Actually very peaceful for us althought he had nothing to leave anyone except his art, buckle and knife collection but he named people that he wanted to have each piece,  at least he got to do that and the pieces are all scattered among my family members so I still get to see them at times and the kids all had their chance at closure too.  I don't think you are being crazy at all, just very thoughtful.  I'm also getting things "in order" basically because I don't ever want my kids to have to rearrange their lives to fix my end.  I just need to make arrangements to donate my body as I want done.  My family knows how I feel about quality of life and I think I will feel better living life once I have all this in order.
Thank you southyard for giving us your time that you have.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #2 on: October 11, 2008, 06:32:42 PM »

Not for me, Southyard. I will fight until the bitter end. I love life too much.
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That which does not kill me only makes me stronger - Neitzsche
monrein
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Might as well smile

« Reply #3 on: October 11, 2008, 06:46:56 PM »

Southyard, thank you so much for taking the time to include us in the process you're going through.  It's always a good idea to get things in order and also to keep talking to your family as well as your doctor and social worker about where you're at with your decision.

I wish you all possible peace and am very happy to have met you here.  :cuddle; :grouphug; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ang
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« Reply #4 on: October 11, 2008, 11:07:17 PM »

thank  you  southyard  for  including  us  in  your  decision  making,good to  get  all  your  affairs in  order,i  wish  you  peace  and  harmony  in  your  journey  going  forward
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live  life  to  the  full  and you won't  die  wondering
Joe Paul
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« Reply #5 on: October 12, 2008, 02:24:53 AM »

I respect your decision, and pray you will not suffer if you do decide to go through with hospice, and death. Peace to you and your family, glad you joined us here, will see you one day in glory. Take care and if I don't see you post again, God bless you and yours  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #6 on: October 12, 2008, 05:01:33 AM »

:cuddle; southyard you and your family are in my thoughts and prayers. I respect the decision you have made for yourself and hope when my time comes I'll do it with the foresight you have. Thank you for letting us know and God Bless you and your family.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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« Reply #7 on: October 12, 2008, 09:25:18 PM »

I'm sad that you have had to make a decision like this. May you find peace in your decision and thank you for taking the time to let us know.

Godspeed my friend.  :grouphug;
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paris
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« Reply #8 on: October 14, 2008, 08:47:44 PM »

Southyard, thank you for sharing your thoughts with us.  You sound at peace with your decision.  Our prayers are with you as you come to the end of one journey and begin another.  May you be surrounded by those who love you.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: October 17, 2008, 12:08:56 PM »

I am very touched by your care and concern for others at this time.  May you have peace in your decision.  Please know that our caring thoughts and prayers are with you all the way.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #10 on: October 17, 2008, 01:50:46 PM »

I think you are very brave and honest. You explored your options and made a choice that is right for you.

This couldn't have been easy on you and your family. Love and Peace to you.  :grouphug;
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kellyt
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« Reply #11 on: October 19, 2008, 06:12:26 PM »

Southyard, thank you for coming here and sharing your story and thoughts.  We all learn from each other and I'm sure your posts will help someone who might also be struggling with that terribly difficult decision.  You're a blessing on this earth and you will be missed.    :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
pelagia
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« Reply #12 on: October 19, 2008, 06:23:40 PM »

Thank you for sharing your thoughts with us.  Thank you for being a part of the IHD family.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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