jessup
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Gemma - the tucker monster
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« on: October 13, 2008, 01:21:22 PM » |
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Hi all. I have been hitting this site for the past four months and finally decided to join. My father is 71 yrs ESRD and goes to hemodialysis at the local renal clinic 3 times a week. I took six months long service leave to support him. Wow his life style has certainly changed and so has he. I look forward to sharing his story and mine. There are many times that are very frustrating with the support (more like the lack of support) of the renal team and Dad's apparent lack of motivation and desire to be pro active. Anyway I could ramble on but probably isn't the right place to post such rants. Anyway cheers
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willieandwinnie
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« Reply #1 on: October 13, 2008, 01:35:33 PM » |
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jessup. Glad you decided to join us. We are a great group for information and support. Hope to hear more from you.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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kellyt
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« Reply #2 on: October 13, 2008, 02:13:11 PM » |
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Welcome! And "Howdy" from Texas. Your father is lucky to have you around! We look forward to hearing his story (and yours!).
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
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twirl
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« Reply #3 on: October 13, 2008, 02:15:26 PM » |
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another Howdy from Texas friendship is our State motto twirl
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monrein
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« Reply #4 on: October 13, 2008, 03:34:33 PM » |
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Cheers jessup. Nice that you decided to join us here. Welcome.
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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boxman55
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« Reply #5 on: October 13, 2008, 03:52:55 PM » |
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hey jessup, we have been waiting for you to join. No just kidding, I am glad you signed up. Please post often we have a number of care givers that will be willing to listen along with the rest of us Boxman, Moderator
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« Last Edit: October 13, 2008, 04:04:58 PM by boxman55 »
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008
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okarol
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« Reply #6 on: October 13, 2008, 04:00:50 PM » |
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Hi jessup, Welcome to IHD – it’s a great place for caretakers to learn a lot, as well as get some support. There’s a great deal of good info and shared experiences in previous threads, but feel free to post questions too. Best wishes! okarol/admin
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Romona
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« Reply #7 on: October 13, 2008, 05:30:04 PM » |
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Ang
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« Reply #8 on: October 13, 2008, 06:53:53 PM » |
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jessup glad to have another aussie on board i'm in the western suburbs of melbourne
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live life to the full and you won't die wondering
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pelagia
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« Reply #9 on: October 13, 2008, 07:12:09 PM » |
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jessup from Pelagia in Virginia
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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jessup
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Gemma - the tucker monster
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« Reply #10 on: October 13, 2008, 10:48:10 PM » |
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Thanks to you all I am looking forward to asking questions and learning more It appears to me that renal care procedures and protocols are very different in aussie land whether you have private health care or not
Once again thanks everyone Cheers and beers Jessup
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napala turki
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Have to plan for living
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« Reply #11 on: October 13, 2008, 11:03:20 PM » |
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Hi Jessup, Your father must be proud of you..... take care and welcome to IHD...
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Joe Paul
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« Reply #12 on: October 13, 2008, 11:37:05 PM » |
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Welcome Jessup, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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RichardMEL
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« Reply #13 on: October 14, 2008, 06:13:25 AM » |
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G'day Jessup,
Welcome to IHD.
Yes, things are different down here to other parts of the world but I honestly believe we are pretty well looked after. Medicare takes care of everything under the public system and as far as I am aware that includes stuff like post-transplant drugs (WITHOUT a time limit) and so on. I have no problem paying my taxes given the taxpayers support ME to the tune of $60k+/year and keep me alive.
It would be a very big change for your father, and your whole family, having to deal with the changes and restrictions that dialysis cause and it will take time for everyone to adjust. I can certainly understand the lack of motivation though it's very difficult sometimes (and I'm supposedly one of the positive ones! LOL). I have to say though I find my renal care team to be pretty good, specially the "front line" of the nursing staff at the unit I attend. I think though you definitely hit the nail on the head with the comment about being pro-active. I mean it's very difficult for the staff to support you as a patient if you're perhaps not willing to take a part in the process. For me I take an interest in doing the best I can because well it's my body.. nobody's going to help me out more than *me*
I think it's wonderful you have taken the leave to support your father during this time - that's very supportive and caring - specially giving up your own long service leave.
All the best to you and your father and welcome to IHD!
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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paris
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« Reply #14 on: October 16, 2008, 10:42:16 AM » |
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Jessup, welcome to IHD. Thank you for taking time to learn more about all of this for your father. We love our caregivers and are grateful for all they do for us. There is so much support here for everyone involved in renal failure. Please feel free to rant all you want. We understand. I hope we can be of some help to you. Post often and ask any question you want. We are here for you and your Dad. We are glad you joined us. Paris,moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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Bajanne
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« Reply #15 on: October 17, 2008, 08:40:37 PM » |
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A big welcome to our community from a fellow Commonwealth citizen (from Barbados, living now in the British Virgin Islands). I always have a special appreciation for those who join us because of a loved one. We even have a section where you can share with other caregivers. There is so much information here. But not only that, this site has become a loving, caring and sharing family so please take advantage of all it has to offer. Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!
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jessup
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Gemma - the tucker monster
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« Reply #16 on: October 20, 2008, 03:18:37 AM » |
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Ya not ganna believe it You mob have so motivated me I told my family I am apart of this new family!!!!!! I even told Mum and my sister (blister - an aussie term) originally put me onto this site I've told them about me and I feel so proud that I have knowledge and have support from other all around the world. But more especially some aussies!! I tuely thought the experiences my dad is going through was a one off - bat alas athrough thiks site I now realise - what a blessing You all have given me confidence to share not only with my immediate family but also with this new "mob" family - A territory term!!! I am so motivatedn and dad is feeling positive at the moment Than k you so much you mob I even told another patient at the renal cliinic about this site I said it quietly whilst dad and i were waiting to get into the chairs He didn't know about it but I am sure you ( the family) would be proud that I am sharing this site with others I hope he joins as well as Mum and my sister Cheers aned beers
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monrein
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« Reply #18 on: October 20, 2008, 08:47:44 AM » |
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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jwaynebo
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« Reply #19 on: October 20, 2008, 03:58:05 PM » |
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From one newbie to another.
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Peace,
Jeffrey
"I'm pullin' for ya, We're all in this together." - Red Green
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RichardMEL
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« Reply #20 on: October 20, 2008, 05:39:04 PM » |
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Well done Jessup and specially to your sister for putting you onto IHD - A couple of good aussie sheilas!!! HEH!!!
Glad to know the community has helped you feel more motivated and able to help your dad... that's what we're here for! Unfortunately you're far from alone or unique.. but at least you know there are people out there that understand!!
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Sluff
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« Reply #21 on: October 20, 2008, 07:16:43 PM » |
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Welcome Jessup to ihatedialysis.com, Glad you found us worthy of joining. We approved you so the feelings are mutual. Anyway thanks for helping your Dad through this difficult time. I hope you and your Dad find the information here helpful. Sluff/Admin
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purple
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« Reply #22 on: October 21, 2008, 07:18:59 AM » |
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G'day mate, I am another Aussie ... well I was born in Northern New South Wales, so that is my attempt at humour, i know you want to take a baseball bat to me, but all i wanted to say was it is lovely to have another one in the mob, I pray for your Dad and your whole family, and if you can't bear to think about a day at a time, try an hour if that is still to big try 30 minutes and if that is still to big try a minute, then one day you will wake up and just think about the day it will grow on you ... May you always have a smile in your heart, a kind word on your lips and a :guitar:song in your soul ....Keep smiling Purple
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May you always have a kind word on your lips, May you always have a smile in your heart and May you always have a song in your soul..Keep Smiling
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drinkboy
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« Reply #23 on: October 21, 2008, 12:51:02 PM » |
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Welcome aboard!! It's nice to see you helping your dad through this. This site is great and the support and knowledge from everyone is so helpful. Glad you are here
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