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Author Topic: New to PD for the past 3 weeks..  (Read 2817 times)
Noahsmum
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« on: October 07, 2008, 01:06:10 PM »
Hi All
My son had his PD catheter fitted just over 3 weeks ago (he's 12) and we are still riding the rollercoaster that is now our lives!
He has already had his first bout of peritionitis, then had an allergic reaction to the antibiotics (gentamycin & vancomycin) that they used to treat him, we finally came out of hospital last week and he still isn't 100%.
He has had a negative UF 300+ the last 2 nights and he had a large bit of fibrin in his drain bag after his initial drain tonight, bit of a tummy ache (although he has been a bit constipated), no temperatures , his weight and BP are normal...we have clinic tomorrow, so will check all this out with the docs then, just really worried he'll have to go on heamo....

Thanks for listening!  Amy-Noahs Mum x
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: October 07, 2008, 01:10:46 PM »

Welcome Amy.  :welcomesign;

Sorry about Noah's problems. I hope they can sort them out.
My daughter began hemo at 18 years old - she couldn't do PD due to prior urinary/abdominal surgery.
It worked fine for her.
Hang in there.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #2 on: October 07, 2008, 01:21:00 PM »
:welcomesign; Amy. I'm so sorry about your sons problems. I hope you get answers tomorrow. This is a great site for information and support and we hope to hear more from you. Have Noah join us.  :cuddle;
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monrein
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« Reply #3 on: October 07, 2008, 02:28:34 PM »
I'm so sorry that Noah is having such a tough time and I really hope that things get themselves sorted out soon.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #4 on: October 07, 2008, 03:42:40 PM »
 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rookiegirl
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« Reply #5 on: October 07, 2008, 04:18:13 PM »
Hi Noahsmum,

I've been on PD going on 1 year this coming October 22, 2008.  The 1st 4 weeks was very hard.  The 1st time I drained during the PD Training, I had lots and lots of fibrin. The PD Nurse injected in my solution Heparin and that helped.  I haven't had any problem with fibrin since then.

I pray that Noah will get better with PD as I did because now, I'm really doing well with the treatment.  I wish you both the best.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
paris
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« Reply #6 on: October 07, 2008, 08:44:17 PM »
Hi Noah's Mom,   First, I am so very sorry that Noah is dealing with this at age 12.   Children shouldn't have to worry about their health.   Second, I am glad you joined us.  You will find so much information here.  And everyone is always ready to help when you have a question.   On days when it all seems to much to handle, members will quickly give a shoulder to cry on.  We are all here for each other.  Welcome to our family  :grouphug;





Paris,moderator
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Joe Paul
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« Reply #7 on: October 08, 2008, 12:10:19 AM »
Welcome Noahsmum, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Romona
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« Reply #8 on: October 08, 2008, 04:46:37 AM »
 :welcomesign; Amy.
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devon
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« Reply #9 on: October 08, 2008, 06:08:52 AM »
Welcome Amy and Noah!

I'm am sorry y'all have to be going through this! Being 12 is not the time one would pick to be on PD!  I hope you find comfort and peace here.  We'll be happy to do what we can to help.

-Devon
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peleroja
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« Reply #10 on: October 08, 2008, 07:58:42 AM »
Welcome aboard, Amy.  I've been on PD for 5 years  Hang in there and keep us posted about Noah.
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boxman55
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« Reply #11 on: October 08, 2008, 04:58:05 PM »
Welcome Amy, please keep the faith. We all want your son to get past the troubles and do better. Please post so we know how you all are doing

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Noahsmum
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« Reply #12 on: October 11, 2008, 10:52:17 AM »
I'd first like to say a very BIG Thankyou for making me (us) feel so welcome, we have had another rollercoaster week, after clinic on Wednseday Noahs white cell count had shot up again to 28, 000!
He still has symptons of peritonitis with yucky coloured fluid on his initial drain so they have started him on a 10 days course of cefataxin..fingers crossed this will knock the bug on the head!
Otherwise he may have to have his catheter removed  :(
Luckily he still has some kidney function left to go a few weeks without any dialysis but then they would have to put him on hemo which is going to be a nightmare travelling 50 miles 3 days a week, not to mention what i'll do about work and my other son....

Once again, thanks for being able to rant to people who know exactly how we feel
Amy & Noah
xxx
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monrein
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« Reply #13 on: October 11, 2008, 12:29:34 PM »
Sending you and your boys hugs today.  I really hope they can get Noah's infection cleared up so he can get back on track.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Ang
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« Reply #14 on: October 11, 2008, 11:31:23 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Bajanne
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« Reply #15 on: October 18, 2008, 07:55:05 AM »
welcome to our community!  so sorry for the great challenge you and  your family are facing.  You gave your son a good name.  I trust he will make it through the flood and come out victorious.  Please consider this  your new extended family.  We are here for you all. :grouphug;  My caring thoughts and prayers are with you at this demanding time.  Feel free to rant, vent, rage as much as you need to.
Looking forward to hearing from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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