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Author Topic: questions to ask  (Read 2217 times)
Ang
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« on: November 07, 2008, 05:56:18 PM »

in  early  december  i'm  off  to  see  a  surgeon
about  getting  my  2nd  kidney  removed,  i'm  interested  in
the  pros  and  cons  of  doing  this  ,  the  idea  behind  it  is
at  last  measurement  its  about  27cm,i'm  5 ft  tall, 124cm  abdomen
and  its  function  is  under  5%

generally  trying  to  ease  the  squeeze, i get  bloated  most  times  i  eat  there  fore don't  eat  a  great  deal, 
there  fore  not  taking enough  meds  with  food as  i  should.
then  the  constipation,tried all  stuff  for  that ,  not  much  seems  to  work.

neph  says  i  need  to  lose weight  to  be  at  my  prime  for  a  transplant,
when  i  try  to  exercise(bike riding)  i  seem  to  gain  weight
fortnight  ago  i  went  to dialysis  nearly  6  kilos  over  my  base  weight  WTF
 :thx;  in  advance
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live  life  to  the  full  and you won't  die  wondering
monrein
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« Reply #1 on: November 07, 2008, 06:43:26 PM »

Ang it sounds so painfully uncomfortable that I can see why you'd want to have it out.  Does your 5% function mean that you still pee some?  Could you eat more fresh veggies to get more fibre to help with the constipation?  I have more questions than answers but it does seem to me that you need to exercise, for many reasons but most especially to be in shape for a transplant.  If having it out would help with that goal, and assuming that transplant is your goal, then it makes sense to do it. 

I'm hoping that Pelagia will respond to your questions because her husband had both kidneys out before his transplant. 

Start making a long list of questions for the appointment in December.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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« Reply #2 on: November 07, 2008, 06:49:33 PM »

I'm sorry mate that I don't have any advice but
 :cuddle; :cuddle; :cuddle;

My Dad has had both kidneys removed but I don't know if that is of any help either

I'm sure other IHD family will help ya out
Just remember my thoughts and wishes are with ya

Cheers cobber
xxx ooo xxx
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karen547
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« Reply #3 on: November 08, 2008, 05:28:47 AM »

I don't have any advice since I don't know the pro/cons. I wish you luck! :cuddle;
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Ang
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« Reply #4 on: November 09, 2008, 04:23:07 PM »

thank  you
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live  life  to  the  full  and you won't  die  wondering
Wattle
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« Reply #5 on: November 09, 2008, 06:06:01 PM »

Hey Ang...

I have PMed you.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
G-Ma
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« Reply #6 on: November 09, 2008, 07:02:56 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
502Blues
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« Reply #7 on: November 10, 2008, 01:02:11 PM »

Benefiber has really helped my with constipation, and eating high fiber foods. Fiber One cereal is very high in fiber, it doesnt taste very good but you dont have to eat a lot of it for it to work. Getting in shape is best for you for when you get a transplant.  You shouldnt be neglecting your meds,they take those things in consideration when deciding who is a good candidate for transplant.
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1991: kidney failure, undetermined cause
1991: right and left clavicle temporary catheters
1991: catheter for PD
1992:transplant
1998: June, Fistula placement
1998: july, back to dialysis,Hemo
1999: transplanted kidney removed
2001: parathyroidism
2006:march, fstula cant be fixed due to too many stents in damaged vessels caused by temp caths
2006: april, Pd catheter placement
 PD would not drain properly
2006: finally after much pain and misery, AV Graft placed in abdomen, its working fine thank god
Quit dialysis sometime in 2009, had a change of heart and  returned before I died
transferred waiting list time to another city/state and was transplanted almost right away August 9,2013
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