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Author Topic: Here for my dad, 5 years on PD  (Read 1928 times)
KimT
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Here for my dad
« on: October 06, 2008, 02:37:37 PM »
This looks like a great site.  I am hopeful that I can get some direction and information to help my dad.  He has been on PD for a little over 5 years.  He uses a Fresenius machine and they switched machines in June.  He had 5 years of no infection and did reasonably well (aside from the common challenges, low protein, little appetite, weight loss, etc).  He has had 4 peritonitis bouts since June, and is now into his 5th.  We do not know if it is the system/tubing, his technique or what? 

The new system stinks as far as he is concerned.  He has trouble filling sometimes (just  does not fill) and he has to start all over with new bags (and then it goes), it drains very slow and the pumps are noisy and slow.  Breaking down the drain bags and emptying them seems much more cumbersome than the last system (at least for a 74 year old man).  Is there anyone out there that has experienced any of this?  Any ideas on what to do?  Are there better systems?

He is 74, has a decent attitude but is tired of being sick as any of us would feel.  He is so close to getting a kidney and insists he still wants to go for a transplant if one comes.  I worry  that if we do not get this figured out, he will not be considered a candidate because of the infection.

Anyone?
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paris
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« Reply #1 on: October 06, 2008, 02:45:48 PM »
 :welcomesign;  KimT.   We are so glad you joined us and we think you are great for learning all you can for you Dad.  There are many members who do PD, so hopefully they will have answers for you.  This is also a good place for caregivers to get support.  We are a wonderful, caring group and help each other through good days and bad ones.   Looking forward to more posts from you.  :2thumbsup;






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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
« Reply #2 on: October 06, 2008, 02:47:30 PM »
 :welcomesign;  Kim and thank you for being such a caring advocate for your Dad.  I'm on hemo myself so can't answer your questions about PD but I feel certain that others here will jump in soon with ideas and suggestions.  You've found the best place for support and information in equal measure and I hope you'll post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #3 on: October 06, 2008, 03:30:56 PM »
Welcome to IHD. please research the site for some answers. There are a number of people on PD that are willing to help

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
willieandwinnie
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« Reply #4 on: October 06, 2008, 03:59:39 PM »
:welcomesign; KimT. My hubby did home-hemo so I don't know what help I can be. Can you ask for the old machine back? Bless your heart for being a caregiver. Hope you can get some answers and your Dad can start doing better.  :cuddle; We are a great group.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #5 on: October 06, 2008, 04:04:26 PM »
Welcome to IHD. The best way to do a search is from the home page, otherwise you only search a section.   :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cookie2008
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« Reply #6 on: October 06, 2008, 04:55:40 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Ang
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« Reply #7 on: October 06, 2008, 07:00:36 PM »
 :welcomesign;


can't  help  you  with  PD,  but


 :thumbup; :thumbup;  for  being  a  caregiver
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live  life  to  the  full  and you won't  die  wondering
G-Ma
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« Reply #8 on: October 07, 2008, 12:13:04 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #9 on: October 07, 2008, 12:30:03 AM »
Welcome KimT, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
peleroja
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« Reply #10 on: October 07, 2008, 09:28:44 AM »
Welcome.  I've also been on PD for 5 years, but I use a Baxter machine.  Hope you find your answers here.
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Romona
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« Reply #11 on: October 08, 2008, 04:49:29 AM »
 :welcomesign; Hi Kim!
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Bajanne
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« Reply #12 on: October 18, 2008, 08:44:42 AM »
Welcome to our community, Kim!  So glad your care for your dad brought you here.  I am sorry to hear the trouble you had since the machine switch.  What are the authorities doing about it?  Keep plugging for them to do something.  Please keep us informed on how things are going with him.  We're family here.  :grouphug;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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