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twirl
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« on: October 17, 2008, 05:14:58 PM »
this is not to start the thread again
but to add a note
today I found out I was not the only patient given the wrong shot
several patients were mixed up
and our last names are no alike

please lock this post if needed
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monrein
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Might as well smile
« Reply #1 on: October 17, 2008, 05:18:12 PM »
And Twirl, did they make a jokey circus of it with the others too? 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MIbarra
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Stopping to smell the bluebonnets
« Reply #2 on: October 17, 2008, 06:17:08 PM »
Horrible Twirl!  =(   That's not good.
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Cadaver transplant April 29, 2007
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #3 on: October 17, 2008, 06:34:57 PM »
Sorry Twirl. Ruth & I send hugs in your direction.  :grouphug;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: October 17, 2008, 07:36:21 PM »


I hope all of you patients complain to the health department.  :banghead;

I locked the other thread because it was way off topic. Don't worry.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #5 on: October 17, 2008, 07:38:39 PM »
no, I was the only clown act
but then I would not sign a consent form to get the pneumonia shot
and I was the first patient to be approached
maybe they learned something
and let me add
they were not friendly to me today
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MIbarra
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Stopping to smell the bluebonnets
« Reply #6 on: October 17, 2008, 08:27:48 PM »
stick your tongue out at them when they walk passed.. it always made me feel better anyway... especially if another patient saw    8)
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Cadaver transplant April 29, 2007
thegrammalady
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« Reply #7 on: October 17, 2008, 10:28:16 PM »
Quote from: twirl on October 17, 2008, 07:38:39 PM
no, I was the only clown act
but then I would not sign a consent form to get the pneumonia shot
and I was the first patient to be approached
maybe they learned something
and let me add
they were not friendly to me today


to bad! you're not responsible for covering their collective buts. if asked again remind them that requesting/requiring you to complete paperwork to cover their mistake is FRAUD!, NOT LEGAL in any way shape or form. i like the idea of reporting them to the health department, i probably would, but that's just me. sorry you have to put up with this sort of thing.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
alrightstill
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BAH!
« Reply #8 on: October 17, 2008, 10:54:21 PM »
Oh no twirl!  What happened?? 

I have to find your other post to see whats going on!

EDIT:  Nevermind, I found it.  Just .. wow!  Usually my unit makes me sign the consent form first.  I would DEFINITELY get in touch with your doctor.. the nurses were just trying to cover their butts by saying "its the nurses job to tell the doc, not the patient's".  Eff that.  I was just talking to a social worker today about that - we need to take charge of our own health as much as we can!   

Keep us updated if anything results from this!
« Last Edit: October 17, 2008, 11:09:21 PM by alrightstill » Logged
1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
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