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Author Topic: Nausea?  (Read 4004 times)
Jessmomto3
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« on: January 27, 2009, 09:32:03 PM »
My little one is on PD and by far the worst thing for him with renal failure in general is the nausea.  His drs said that once he was on dialysis the nausea should go away and sometimes it does for a week or so.  But most of the time he is so nauseated that he gags if he tries to eat or nurse.  Have any of you guys dealt with that and if you have what did you do?  I'm sure it's different since he's so little but maybe I can come up with something to help him.  Sometimes it is just miserable.  I feel so awful for him.  Thank God for his feeding tube!
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
aharris2
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« Reply #1 on: February 07, 2009, 08:23:17 PM »
Jess, there is some discussion of this in the Dialysis: General Discussion section. There are meds available. Based on your son's age, I wouldn't even speculate on what is right for him. Has his doctor recommended anything?

Alene
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G-Ma
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« Reply #2 on: February 07, 2009, 11:31:54 PM »
Oh, I just want to hold him for you.....   :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
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pelagia
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« Reply #3 on: February 08, 2009, 05:55:39 AM »
I'm sorry that I don't have any advice to offer, but I hope someone will.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
pelagia
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« Reply #4 on: February 08, 2009, 06:17:12 AM »
I found this link at the American Association of Kidney patients website. 

http://www.aakp.org/aakp-library/Parents-Support/index.cfm

"The Nephkids e-mail listserv group and Web site were started in January of 1998. The listserv is comprised of concerned family members, patients and medical care givers whose common goal is to share information and experiences that may benefit children and adolescents who have kidney disease."

The link for the website from the AAKP page seems to be broken, but I found the site using google:

http://cybernephrology.ualberta.ca/nephkids/

Maybe someone in that group will be able to provide some insights :grouphug;
« Last Edit: February 08, 2009, 06:41:50 AM by pelagia » Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wenchie58
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« Reply #5 on: February 08, 2009, 06:28:32 AM »
I don't know if treatment related nausea is different, but my grandson had chemotherapy from age 4 months to 23 months for brain cancer.  Docs gave him regular doses of the drug Zofran for the nausea.  Like I said before, don't know if your little fella can take this with kidney disease, but its worth asking the doctor about to make him more comfortable.  I pray for your family.
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mikey07840
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« Reply #6 on: February 08, 2009, 07:16:07 AM »
When I had bad nausea in the hospital, they gave me Zophran. I would check to see what can be given to your little one. I hope he feels better soon.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
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Jessmomto3
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« Reply #7 on: March 01, 2009, 01:06:16 AM »
Quote from: aharris2 on February 07, 2009, 08:23:17 PM
Jess, there is some discussion of this in the Dialysis: General Discussion section. There are meds available. Based on your son's age, I wouldn't even speculate on what is right for him. Has his doctor recommended anything?

Alene


His dr says the only thing that will make him less nauseated is a transplant.  But, he has to gain 3 1/2 lbs before he can have a transplant and it's hard to get him to gain weight since he can't eat. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #8 on: March 01, 2009, 01:07:24 AM »
Quote from: G-Ma on February 07, 2009, 11:31:54 PM
Oh, I just want to hold him for you.....   :grouphug;

Thank you. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
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