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Author Topic: My Essay  (Read 2432 times)
Mariposa
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« on: September 25, 2008, 10:36:53 AM »

I would like to share a copy of my essay "A Memory of Butterfly Wings" it was the 2004 Ikidney.com  Essay Contest - 1st Place Winner.


After 12 years of living dialysis free, I faced transplant failure. It was difficult to accept for I knew very well the life that was awaiting me. I would once again have to go through the process of hemodialysis week-after-week, month-after-month, and year-after-year. I struggled through the feelings of anger, hopelessness, and finally acceptance. I thank family and friends for being there, for holding my hand and wiping away the tears...
 
But, most of all, I'd like to thank a Butterfly.
 
I clearly remember the day. It was warm. The sun was shining brightly, and I was kneeling in my garden pruning the Shasta daisies. My heart was heavily burdened, and my Soul felt like it could never be mended. How could I face going back on dialysis, being tied to a machine again, week- after-week, and month-after-month?
 
As I tended to the flowers, a Butterfly came fluttering near the daisies. I was surprised, for she came so close and began dancing around me. Every so often, she would come and land on my hands. As I watched her, I noticed that, although she had a broken wing, she danced as if she was perfection. She played with me for a while and then, just as she came, she flew away. I cried there in the open sun for she reminded me of myself, a Soul with broken wings.
 
She came to visit me that afternoon to tell me "fly" in spite of your imperfections, "dance" in spite of your limitations, for life is beautiful and worth dancing to. An important lesson, God's message sent to me on Butterfly Wings, a reminder that Life goes on, that the sun still shines, and that, after the storm, there are still rainbows to be seen. That no matter how winding the road, within us is the strength and the courage to carry on.

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Love Is Like A Butterfly }i{
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 25, 2008, 10:52:06 AM »

 :clap; Nice!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
devon
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« Reply #2 on: September 25, 2008, 11:08:17 AM »

Inspiring!  Thanks!


As I sit during Dx, I will try to imagine myself a butterfly warming its wings one beautiful, sunny day.

-Devon
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Joe Paul
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« Reply #3 on: September 25, 2008, 11:33:43 AM »

 :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile

« Reply #4 on: September 25, 2008, 05:39:40 PM »

http://ihatedialysis.com/forum/index.php?topic=8308.msg164346#msg164346

Pelagia posted this photo of a butterfly with a broken wing sitting on a zinnia.  The perfect accompaniment to your Mariposa essay.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #5 on: September 25, 2008, 05:44:43 PM »

Beautiful thought provoking "essay" and "photograph".  Thanks both of you.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #6 on: September 25, 2008, 05:50:08 PM »

Mariposa - Thanks for posting the essay.  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Mariposa
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« Reply #7 on: September 25, 2008, 07:25:32 PM »

I just saw the picture of the butterfly on the zinnia posted by Pelagia it is beautiful. The butterfly I saw that day was a pale yellow cabbage butterfly. That was about 7 years ago. About 2 weeks ago I saw another cabbage butterfly with a broken wing a little  reminder to continue to enjoy life inspite of the lows that afflict us in our daily lives. I have always felt that life is what you make of it and I also feel that i'm not a person that is tied to dialysis, i'm a person living life who goes to dialysis.
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Love Is Like A Butterfly }i{
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