Maggie and Jeff
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Posts: 176
Life as a Pincushion
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« on: September 23, 2008, 01:02:10 PM » |
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Found to have 25% kidney function 1997
Five bypass heart surgery 1999
So my life as a pin cushion began August 23 2006
My husband and I (I Maggie being the one on dialysis) do daily dialysis on the Nxstage I have never been in clinic although it looks like an awful place to have to spend any of your life. We started on the NxStage at the Davita in Nashville.
I spent my entire childhood terribly afraid of needles and prayed not to be a diabetic or a junkie! “Didn't know anything about dialysis at that time.”
God answered my prayers, I'm not a junkie or a diabetic Although diabeties runs in the family... no instead I get the BIG needles!!
I think that getting to dialyze at home is wonderful, now I'm just waiting for them to come up with a machine that uses no needles and that I can strap to my back and hike around with (like a backpack!) then life will be pretty close to perfect.
I have to say I am jealous of ya'll doing nocturnal treatments. We would love any info as to how to get started doing extended daily therapy (Nocturnal) on our NxStage system one. As I understand it we would need a heparin pump and car 171. And a clinics cooperation.
Jeff and I started dialysis a little over two years ago and saw "extended dialysis" on the Davita website. We began asking about it almost immediately. Now it's been over two years and we are still asking and bugging everyone we can about it BUT nobody seems to know anything around here!
By the way this is a great site. Thank you for Building it.
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The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?
Jeff is the needle pusher Maggie is the pincushion.
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kellyt
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« Reply #1 on: September 23, 2008, 01:08:35 PM » |
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 You have come to the right place. It sounds like you and your husband will have alot to share with us. Welcome!
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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paris
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« Reply #2 on: September 23, 2008, 01:17:21 PM » |
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Maggie and Jeff, we are glad you are both here. You sound like a great team! I've always been told to be careful what you pray for! He heard you say you didn't want to be diabetic or a junkie! Glad NxStage is working out well for you. It sounds like you are very informed and have taken control of your health needs. Good for you  You have a great attitude. Looking forward to hearing more from you. Thanks for sharing your story with us. Paris,moderator |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Joe Paul
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« Reply #3 on: September 23, 2008, 01:51:59 PM » |
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Welcome Maggie and Jeff, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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monrein
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« Reply #4 on: September 23, 2008, 02:34:45 PM » |
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 Maggie and Jeff. Your intro reminded me of a thread we have on here called "Corrupt a wish"...so yours would be "I wish not to be a junkie or a diabetic" and one of us would answer "Granted but you get to shove the really big needles into your arm". A little twisted dialysis humour. It sounds as though you've done a great job of taking charge as much as possible and it looks from your avatar photo that you're a potter. Post some photos sometime. (We have a Hobbies thread and we'd love to see photos whether it's a hobby or your job.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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willieandwinnie
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« Reply #5 on: September 23, 2008, 02:52:17 PM » |
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Maggie and Jeff. You will love this site. We have lots of information and always around for support. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Maggie and Jeff
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Posts: 176
Life as a Pincushion
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« Reply #6 on: September 23, 2008, 03:19:10 PM » |
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it looks from your avatar photo that you're a potter. Post some photos sometime. (We have a Hobbies thread and we'd love to see photos whether it's a hobby or your job.
Our web-site is about our pottery We are a third generation pottery, and live in the middle of the woods with our two dogs and pottery studio. I should post some pictures of these things. Thank you for ya'lls warm welcome |
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The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?
Jeff is the needle pusher Maggie is the pincushion.
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Maggie and Jeff
Full Member
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Gender:
Posts: 176
Life as a Pincushion
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« Reply #7 on: September 23, 2008, 03:28:16 PM » |
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I'm not sure if I did this correctly
Walk bridge by pottery shop with dog wood tree on right front.
Jeff with one of the puppys.
Maggie Holding Smokey our dog who died of liver cancer in 2007.
Jeff working in the pottery shop.
Kallie and Koko Playing in the spring of 2008.
They are less than a year old in the picture.
You get the Idea this is us we make pottery and dialize almost everyday
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The LORD is my light and my salvation--so why should I be afraid? The LORD is my fortress, protecting me from danger, so why should I tremble?
Jeff is the needle pusher Maggie is the pincushion.
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monrein
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« Reply #8 on: September 23, 2008, 04:22:01 PM » |
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Very nice. Thanks. I love your dogs. I grew up with several (at the same time) Alsatians, kind of smaller Shepherds. So smart and protective.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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flip
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« Reply #9 on: September 23, 2008, 04:34:41 PM » |
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Gus should be able to help you guys. He's been doing nocturnal NxStage for some time now. I forget his user name on here but his website is www.dailyhemo.org |
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That which does not kill me only makes me stronger - Neitzsche
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Wayne
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Posts: 141
Martin (the snorer) & Mack (cat w/renal failure)
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« Reply #10 on: September 23, 2008, 04:36:25 PM » |
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
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cookie2008
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« Reply #11 on: September 23, 2008, 06:37:33 PM » |
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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G-Ma
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« Reply #12 on: September 23, 2008, 06:41:48 PM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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Bajanne
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« Reply #13 on: September 23, 2008, 11:00:16 PM » |
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Welcome to our community! You have come to just the right place for information, support, as well as some fun. Though the site's founder Epoman hated dialysis, he loved NxStage. I hope that you get the extended dialysis that you want. there is so much on this site. Please take advantage of it all. Great picts!  thanks for sharing. You are now part of the IHD family. Looking forward to hearing lots from you. Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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devon
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« Reply #14 on: September 24, 2008, 06:48:28 AM » |
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I love the Shepard blanket! Warm!
Welcome to the group!
-Devon
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boxman55
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« Reply #15 on: September 24, 2008, 04:04:14 PM » |
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Welcome to the site, great pictures. Look forward to your posts
Boxman, Moderator
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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Romona
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« Reply #16 on: September 24, 2008, 04:05:34 PM » |
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lruffner
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« Reply #17 on: September 25, 2008, 08:49:01 AM » |
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Maggie & Jeff. Cool pics....you will find many animal lovers on here!
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08
"Live for Today"
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annabanana
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« Reply #18 on: September 25, 2008, 12:16:29 PM » |
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y'all. from a near-Nashville resident and also a potter! (from MTSU)
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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pelagia
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« Reply #19 on: September 25, 2008, 07:48:52 PM » |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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