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Author Topic: So worried  (Read 3402 times)
desperadosgirl
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« on: December 25, 2008, 05:43:00 PM »

Ron had another heart attack #6 Christmas Eve. One of the stents they put in in Oct started growing scar tissue. Doc says he WOULD be a candidate for bypass BUT he wouldn't make it. Heart has too much damage. MERRY FREAKING CHRISTMAS!!!!!! I don't want it to seem like I am on a pity trip but here's another thing. His doc said we would be home early today, the main docs came before 10:30 but we had to wait 5 HOURS for his primary (substitute) to show up and sign release papers and she didn't even do anything with him. Ron is very impatient, but what gets me most of all is that he was complaining all day of being cold chilling etc. When he got up to get dressed to finally come home he was nauseated etc, we told the nurse, they didn't check nothing after 10:00 this morning, well now we are home.. He has a 101 temp won't eat. Feels nauseated. Now we have checked his bag for cloudiness and for pesky lil things that require the heparin, and everything in that perspective is clear.. Hopefully it is just a 24 hour bug. We were suppose to go tomorrow for clinic and training for his new peritoneal machine but we may not make it. I feel so alone, not being able to actually talk to someone right now. He is trying to sleep but is very restless and what's really bad is: Deal or no deal is on and he doesn't even want to watch the girls.. THATS BAD for him. I'm about sick with worry Xanax isn't working.. I am so tired but I am afraid he will need me so I don't dare fall asleep. Sleep too heavy.. He even went for and hour yesterday with shoulder pain and in chest because he didn't want to wake me.. I love him so much, I'm just afraid he won't make it much longer. Maybe I worry toooooo much. Thanks for letting me join you alls group, at least I know there are caretakers out there going thru this too.. 
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monrein
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Might as well smile

« Reply #1 on: December 25, 2008, 05:52:43 PM »

I'm so sorry that this is what your Christmas has been.  Life is not fair.  I just want you to know that now that you're a member of this community you will always have people to talk to and ones that understand what you are going through too.  We are all too familiar with the ups and downs, the highs and the lows and we don't like roller coaster rides either.

Sending you hugs and hoping that you both manage to get some sleep tonight.   :grouphug; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #2 on: December 25, 2008, 05:53:19 PM »

I have no advice to give you.
I just want to let you know that my hospital does the same thing. Once the nurses know that most of the doctors are saying we can go home, nurses, cna's do not come back to check on you. Discharge takes forever to do even after doc say's you can go home. It must be taught in nursing school to torment patients who are waiting to go home. But it's bad when they don't care if you are complaining.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #3 on: December 25, 2008, 06:07:33 PM »



I hope Ron feels better - poor guy. Sorry about Christmas, that sucks.  Best wises to you both.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #4 on: December 25, 2008, 06:31:42 PM »

I hope you are looking at a better time soon. As was already said the rollercoaster rides are only fun at the amusement parks, not in real life!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #5 on: December 25, 2008, 08:25:20 PM »

What a stressful time to have at Christmas.  I hope tomorrow is better.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
The Wife
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« Reply #6 on: December 26, 2008, 07:00:05 AM »

I'm so to hear to hear this.  I'm giving you a big hug.    :grouphug;








EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: December 26, 2008, 10:35:59 AM by kitkatz » Logged
desperadosgirl
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« Reply #7 on: December 26, 2008, 05:52:48 PM »

 :grouphug; Thanks guys. Today was a lil better. Ron FINALLY got to eat Christmas dinner tonight.  He was even wantng to get out in the garage and work on the bikes late this afternoon. He can be so stubborn sometimes, which is good because that means he won't give up easy but he has to realize that he can't do everything he use to. He needs time to heal up from everything. Again :thx;
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G-Ma
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« Reply #8 on: December 26, 2008, 06:43:05 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
ODAT
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Nala - Mom's Cat

« Reply #9 on: December 29, 2008, 09:51:14 AM »

 :grouphug;

Hope Ron is feeling better today and you got a bit of sleep. Keeping himself occupied can be refreshing - just to have his mind totally involved in something other than his health for a time. It is all-consuming. As a caregiver to my mom, I try to help her balance her worries. She frets some days more than others.
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