I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 20, 2019, 10:47:49 AM

Login with username, password and session length
Search:     Advanced search
528867 Posts in 33253 Topics by 12317 Members
Latest Member: Caregivingsister
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion (Moderator: cassandra)
| | |-+  I made it
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: I made it  (Read 574 times)
Seaweed
Newbie
*
Offline Offline

Gender: Male
Posts: 26


Great day to be alive and thankful

« on: April 28, 2019, 09:14:44 PM »

This is a follow-up on a previous post which I can't find. I've been on PD for about 6 yrs, I just had 5 major Things wrong with me. 1. quadruple bypass, 2. inguinal hernia  3. phosphorous levels 9.8 after popping 4 renvela per meal 4. open sores on my arm cause which was called prurigo nodularis it would keep me from sleeping, and last but the best was chronic constipation, everyday.

well it's been two months since surgery, I feel good, I got a  different dermatologist help me with my arms which help 100% ,I'm still knocking out the rest of the problems .for once I didn't think I was gonna make it , I was so tired. I wanted to give up, I just prayed and prayed, and cried I made it to the other side.

I got one thing to say to you new people learn everything ask question in the beginning   these nurses and neph. are like little gods , because you don't know anything but eventually 

You have to take control of your life , you need to be your own doctor nobody is going to make you feel better except you, so take control and be thankful that you got on dialysis














Sp mod Cas
« Last Edit: April 29, 2019, 02:20:11 PM by cassandra » Logged
PrimeTimer
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2208


« Reply #1 on: April 28, 2019, 10:07:49 PM »

If you don't mind my asking, what did the doctor use for the Prurigo Nodularis? Almost sounds like I have what you have but I thought mine was hives from stress and all the antibiotics I've been on for cellulitis.

You have definitely seen "both sides of life" now. Glad you made it back to OUR side! Sounds like your quadruple bypass was a success and put you on the road to recovery. You have a good attitude and sense of humor, let these attributes lead you back to the temple of strength. Please keep us posted. Thanks for sharing.   
Logged

Husband has ESRD with Type I Diabetes -Insulin Dependent.
I was his carepartner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
cassandra
Moderator
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4808


When all else fails run in circles, shout loudly

« Reply #2 on: April 29, 2019, 02:23:04 PM »

What an ordeal you’ve been trough, I hope you keep improving, and am glad to read you’ve found a good dermatologist.


Love, luck and strength, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 10756


« Reply #3 on: April 30, 2019, 08:49:17 AM »

I remember you!  I remember that photo!  It's nice to "see" you again; thank you for coming back to IHD and updating us on your progress.  And you're right; we have to be the captain of our own ship.
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Seaweed
Newbie
*
Offline Offline

Gender: Male
Posts: 26


Great day to be alive and thankful

« Reply #4 on: April 30, 2019, 02:18:51 PM »

Thank you im always having a problem signing on , cant retain password but to answer a question about purigo nodularis or Pn  what it is is constant itching and mostly on the arms

my Dem told me to weae a long sleeve shirt or wear zero cream ,it the sun that hurts my skin , i use Aquaphor healing ointment on my arms seems to work pretty good  but now its time to go to sleep.

i dont know why but everything starts to act up at night, i can feel every joint,back pain on the arms  itchy starts up and you cant go to sleep.

my dem gave me a pill call gabapentin , this shut the nerves down and i went to sleep no problems , i slept all night i had the dose lower to 100 mg and the side effects were gone,

 
Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.15 | SMF © 2017, Simple Machines Valid XHTML 1.0! Valid CSS!