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Author Topic: NxStage soon  (Read 485 times)
Jayy
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« on: March 01, 2019, 12:35:14 PM »

So, I'm going to train for NxStage machine soon and do dialysis at home but my major problem with this is doing the self-cannulation part. I already know I'm going to struggle just holding the needle because I can't even inject myself with the Aranesp shot, what more of self-cannulating with the HD needles. I'm petrified just thinking about it, what if I mess up causing my fistula to swell and blood clot? Which has already happened before when my fistula was still new and it was really dang painful.

My hands are already shaky as it is and with nervousness it'd be almost similar to the "flash" phasing through walls.

How did you manage to calm yourself with your first AV fistula self-cannulation?
Need some advice and tricks, Thank you :sos;
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GA_DAWG
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« Reply #1 on: March 01, 2019, 05:08:08 PM »

Wish I could help, but that is why I go to the dialysis center.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: March 02, 2019, 04:53:06 AM »

Hi Jayy I get you, took me to get to 'the point' too. Just thinking about the times of infiltrations by other people made me 'angry' enough, thinking of the realisation that the chance of living longer on D with a pretty good quality of life, concentrating on the needle, using Emla spray/creme made me do it. Oh and I took some Diazepam  :angel;


Just feel the fistula (where it's going, how deep and thick it is) and concentrate on how and at which angle you're going to stick it in.


You can do it, get to the point, and smash it, and you'll feel brilliant for it.


Good luck my friend, let us know how you get on.


Lots of love, Cas





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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
kickingandscreaming
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« Reply #3 on: March 02, 2019, 08:43:48 AM »

I'm with you, Jayy.  That's why I do PD.  Really don't understand why anyone (with a choice- some don't have a choice) would choose self-inflicted HD.  My mind just can't stretch that far.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Cowdog
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« Reply #4 on: March 04, 2019, 12:58:49 PM »

Jayy,
I've been self cannulating for about 8 years. I am assuming you are doing in center now. If so I'm also assuming you have at least one and probably two or three go to stickers that you trust.
Google "Stuart Mott Tandem Cannulation". You will see a PDF with basically that title. Print that PDF and take it to your favorite sticker. Using Stuart's methods as a guideline I suspect you and your sticker can come up with a plan to get you going on your own.
You will do fine. It's all mind over matter. Get control in your mind and the rest won't matter.
BTW when sticking myself the needles don't hurt. I've never used any creams or sprays.
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Hemo in Center since 11/2008
Self Cannulate since 2011
In Center Self Care since 2012
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