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Author Topic: Anyone have any clues about how to increase peeing? PD  (Read 1320 times)
kickingandscreaming
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« on: January 17, 2019, 01:55:21 PM »

Obviously, drinking more should help.  But I'm not sure it does.  Anyone know any secrets?
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: January 17, 2019, 02:22:07 PM »

Hi KaS while I was on Pd I took Solidago tabs (goldenwort) which worked for me for a while. After that I got Frusemide (sp?) from the learned ones. Frusemide is not very good for the kidneys but it's the rock and hard place scenario.


Good luck, love and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
rcjordan
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« Reply #2 on: January 17, 2019, 02:28:37 PM »

Quote
Furosemide in high dosages is the only therapeutic intervention currently available to increase urine production, but it has no effect on the other aspects of residual kidney function

Preservation of Residual Kidney Function and Urine Volume in Patients on Dialysis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5338694/


I still produce urine and would like to keep it that way ...not looking good, though, as Simon keeps mentioning.
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Coastal US, NE North Carolina
2018 right nephrectomy - cancer. Left kidney not filtering, start hemo. After 3 months, start Nxstage home hemo
Michael Murphy
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« Reply #3 on: January 17, 2019, 09:51:23 PM »

For my first 4 years I drank, I went no fluid removal.   Then a massive heart attack I had 2 angioplastys and the dye hammered my residual kidney function. now I take  furosemide (lasix) which increases my output slightly.
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iolaire
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« Reply #4 on: January 18, 2019, 06:14:00 AM »

Beer seems to flow more quickly than anything, and for me that has nothing to do with the volume (or lack of volume) consumed.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Simon Dog
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« Reply #5 on: January 18, 2019, 01:56:19 PM »

The way to preserve peeing is to stay on PD as long as possible.   It will probably slow down and then stop, making you an ideal road trip companion, after 6 months or so on hemo.
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kickingandscreaming
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« Reply #6 on: January 18, 2019, 03:44:40 PM »

I still pee but am already an ace road trip companion:)  Problem is, if I don't start peeing more, I will be kicked off PD.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Riki
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« Reply #7 on: January 19, 2019, 02:30:16 PM »

I still pee but am already an ace road trip companion:)  Problem is, if I don't start peeing more, I will be kicked off PD.

That makes absolutely no sense.  If your kidneys aren't making it, it's not gonna come out.  There's no way around it.  I was on PD about a year after I stopped peeing.  The only reason I'm not on PD now is because I got peritonitis and wasn't able to go back to it after the infection cleared.  Fluid gains via absorption can be regulated on PD with solution strengths.  If you are getting good dialysis on PD, it shouldn't make a difference if you pee or not.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
kickingandscreaming
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« Reply #8 on: January 20, 2019, 06:11:53 AM »

Every time I do a clearance test, I hold my breath.  If my numbers are good enough they increase my RX.  I'm already dialysing nearly 14 hours/night and that's will still making some pee.  The threat is that I will not pass clearance with my peeing decreasing as it is.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Mr Ken
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« Reply #9 on: January 20, 2019, 04:01:32 PM »

Every time I do a clearance test, I hold my breath.  If my numbers are good enough they increase my RX.  I'm already dialysing nearly 14 hours/night and that's will still making some pee.  The threat is that I will not pass clearance with my peeing decreasing as it is.



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Charlie B53
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« Reply #10 on: January 20, 2019, 08:44:57 PM »


Residual function is only the Volume of urine produced, but the quality of that urine.

We can still produce volumes of 'water' but still not have the toxin and mineral removal which dialysis does for us.

I don't remember the volume I made while on PD but it pretty much stayed the same for my first year on Hemo.  This last year as we kept reducing my 'Dry Weight' my urine production has dwindled until it is now almost non-existant.
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rcjordan
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« Reply #11 on: January 21, 2019, 09:12:31 AM »

I've been on HD for a year now.  I still have one kidney that looks good on the scans, but just doesn't work. Last time the neph checked, he said it had about 3% of function. But, I do produce about 1.25 L of urine per day.  I tell people that puts me on one of the outer rings of hell as I don't have fluid restrictions. I just measured a couple of days ago 'cause Simon keeps scaring me, heh! Still 1.25 +. Woo hoo!
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Coastal US, NE North Carolina
2018 right nephrectomy - cancer. Left kidney not filtering, start hemo. After 3 months, start Nxstage home hemo
iolaire
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« Reply #12 on: January 21, 2019, 04:44:28 PM »

I've been on HD for a year now.  I still have one kidney that looks good on the scans, but just doesn't work. Last time the neph checked, he said it had about 3% of function. But, I do produce about 1.25 L of urine per day.  I tell people that puts me on one of the outer rings of hell as I don't have fluid restrictions. I just measured a couple of days ago 'cause Simon keeps scaring me, heh! Still 1.25 +. Woo hoo!
Enjoy your pee. Iím thankful I never lost the ability prior to my transplant. I felt it helped make life seriously easier.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
sahern
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Frozen in Alaska

« Reply #13 on: January 23, 2019, 12:34:30 PM »

My nep said during one of my appointments that they were not sure what was the best KT number.  They just use 1.7.  I am going to ask about that at my appointment today.  My number is still good and has gone up.  On my last test I read the wrong number when I first looked at my labs and it gave me quite the scare.  I figure as long as my labs are good and I still feel fine I will fight to stay on PD.  I am like you I do not think I could do HD.  If I have to I will try it but if it goes the same as it did the first time I will say my good byes.
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kickingandscreaming
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« Reply #14 on: January 24, 2019, 05:51:16 AM »

I have read (can't link to where) that the whole KT/P  number is irrelevant to PD.  It's based on HD.  But it still reigns supreme.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
sahern
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Frozen in Alaska

« Reply #15 on: January 27, 2019, 04:15:27 PM »

I did ask at my Drs appointment about it.  The answer I got is that it boiled down to the numbers looking bad for the clinic if the number goes below the magic number of 1.7.  It has to do with Medicare.  I asked if all the labs were good and a person felt fine what did it matter what the KT/V was.  The Dr agreed but it kept coming back to perceived numbers and no other reason.  All of us are different the 1.7 number should only be a guideline.  The rest should be based on our labs how we feel. 
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iolaire
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« Reply #16 on: January 27, 2019, 10:25:41 PM »

Up to my transplant in July of 2017 I think the minimum was 1.25. I had a hard time meeting that with a larger filter, what I thought was a great fistula, a weight of about 87 kg at 3:30 treatment time.  I would have had serious trouble hitting 1.75. 
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
sahern
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Frozen in Alaska

« Reply #17 on: January 29, 2019, 02:34:31 AM »

The 1.7 is for PD I do not what the numbers are for Hemo.
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kristina
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« Reply #18 on: January 29, 2019, 07:57:33 AM »

I went from the very start to a dialysis-center and for many years before I had already tried to keep my kidneys going for one more day by eating vegetarian food with no spices whatsoever and I also ate every single day two to three cooked asparagus (asparagus acts as a natural inspiration for the kidneys to continue and "produce" despite little function, but please check up on the potassium !!) and I also drank every single day the natural pressed juice of half a lime, which was always mixed with water to half a glass, mainly because I was only allowed 500 ml of liquid every single day.
Good luck and all the best wishes from Kristina and please check-up with your doctor just in case... :grouphug;
« Last Edit: January 29, 2019, 07:59:27 AM by kristina » Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #19 on: January 29, 2019, 11:42:51 AM »

with no spices whatsoever

That I would disagree with, some spicy foods make me pee more.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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