I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 17, 2019, 09:42:21 AM

Login with username, password and session length
Search:     Advanced search
528853 Posts in 33250 Topics by 12317 Members
Latest Member: Caregivingsister
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Traveling Tips and Stories (Moderator: Vt Big Rig)
| | |-+  vacationing while on transplant list
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: vacationing while on transplant list  (Read 1146 times)
jenb
Newbie
*
Offline Offline

Gender: Female
Posts: 17

« on: January 12, 2018, 12:08:28 PM »

So what happens when you get the call if you are on vacation?  Don't you have a limited amount of time to get to the hospital.  You can't say I will be there the next day can you?
Logged
iolaire
Elite Member
*****
Online Online

Gender: Male
Posts: 1710


« Reply #1 on: January 12, 2018, 01:43:34 PM »

So what happens when you get the call if you are on vacation?  Don't you have a limited amount of time to get to the hospital.  You can't say I will be there the next day can you?

I'd say for international travel you basically probably need to give up the offer, but be happy if you were a primary for a call.  If you are in another state and can drive or fly in say 6 hours it probably would be possible but you run the risk of rushing back and then them not transplanting you for whatever reason.

Don't delay your life waiting for a transplant.  I had three and half years were it looked like a transplant was close, in that time I visited (and received dialysis treatments) Singapore, South Africa (twice), Chile, Argentina, Brussels, Montreal, Ireland, Spain, Portugal and took internal US trips.  All of those vacations added to my quality of life and I'm VERY happy I didn't stay around home because it felt like a transplant was very close. 

I vacationed extensively well on the list. Its a nice thought to think you might be able to get back on an overnight trip but not really practical.  I'm in DC, my first call was when I was on vacation in Cabo San Lucas Mexico over a Thanksgiving, they were calling fairly far down the list so I might have had time but it was not a good match.

The only time I flat out missed call was the Brussels trip where overnight 7 hours later I found the message where they wanted someone that could have came into the hospital quickly - so that missed call wouldn't have worked because I would have had to wait for say a 10 am flight back home that would take 7 hours and they wanted to do the transplant long before that.

My real call resulting in a transplant was at 5 am with them telling me to come into the hospital once they got the room ready. I had time to take a bath and use public transportation to go in (versus rushing in with the car and paying for parking).  I don't think I was actually sent down to be prepared until about 2 pm.  But they were pumping me with IV medicines starting after I arrived.

Otherwise I received a ton of alternate calls and for those it took well over six hours to figure out if I was even a valid alternate.
« Last Edit: January 12, 2018, 01:44:51 PM by iolaire » Logged

Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kristina
Member for Life
******
Offline Offline

Posts: 5013


« Reply #2 on: January 12, 2018, 02:14:46 PM »

So what happens when you get the call if you are on vacation?  Don't you have a limited amount of time to get to the hospital.  You can't say I will be there the next day can you?

Hello jenb,
Having been on the kidney-transplant-waiting-list for just over two years, I have not been on vacation and always stay within a certain ratio of the hospital for obvious reasons.
I send you my best wishes and good luck from Kristina. :grouphug;
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Paul
Sr. Member
****
Offline Offline

Gender: Male
Posts: 997


That's another fine TARDIS you got me into Stanley

« Reply #3 on: January 13, 2018, 08:43:31 AM »

Not sure if it is the same in the US, but in the UK they ask you to tell them if you go away, and where you are going. They then calculate if it is close enough for you to come back if a transplant comes up, and if not temporarily suspend you from the list.

Of course Britain is smaller than the US, and there is nowhere in the country that is "too far". And the coastal regions of several European countries are nearer to the closest British transplant hospital than some of your homes are to your nearest transplant clinic!
Logged

Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Tío Riñon
Full Member
***
Offline Offline

Posts: 181

« Reply #4 on: January 14, 2018, 05:30:56 AM »

So what happens when you get the call if you are on vacation?  Don't you have a limited amount of time to get to the hospital.  You can't say I will be there the next day can you?

I agree with iolaire.  Don't put your life on hold waiting for your transplant.  There are too many factors in play (e.g. your blood type, average wait time for transplants, etc.).  I've been on the list for 6, going on 7, years.  In that time, I've completed a degree and traveled both nationally and internationally.  Before I left on a trip of a few weeks or longer, I'd discuss my plans with the transplant coordinator nurse and we would decide together whether I might be close enough to return should I get the call or instead temporarily suspend participation.  I never lost my position on the list; just deactivated until my return.

I have now been told that I am towards the top of the list, so I will take that into consideration when I make plans.  For example, my relatives live 4-6 hours from me.  I still attended holiday gatherings because I could get back to the hospital if called.  Good luck with your decision and transplant!
Logged
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.15 | SMF © 2017, Simple Machines Valid XHTML 1.0! Valid CSS!