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Author Topic: RSN bracelets honoring our Okarol!  (Read 4197 times)
MooseMom
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« on: November 01, 2012, 12:22:54 PM »

I received an email today from Lori Hartwell's Renal Support Network giving details on bracelets she has made honoring various people who have helped her through her life with renal failure.  One of those people is our own Okarol.  Here is the link to where you can view the bracelets, read about the people to whom they are dedicated, and even get one if you donate.

We all know that Okarol is utterly tireless in advocating for her daughter, Jenna, and for all of us who are fighting to survive CKD.  It is nice to have a tangible way in which we can thank her.

Thank you for all you do here on IHD and "in real life".   :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #1 on: November 01, 2012, 07:51:06 PM »

MM, where's the link?   :waiting;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

RichardMEL
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« Reply #2 on: November 01, 2012, 08:05:15 PM »

Way to go!! So well deserved!!!!!!!! Karol is the uber-advocate and works so hard on all our behalf - both here with IHD, supporting RSN not to mention, and most importantly, supporting the lovely Jenna with so many efforts. I wonder where she finds time to sleep and recharge.

 :2thumbsup; :yahoo; :clap; :2thumbsup; :yahoo; :clap; :2thumbsup;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bill Peckham
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« Reply #3 on: November 01, 2012, 09:05:13 PM »

MM, where's the link?   :waiting;


http://www.rsnhope.org/embracehope/bracelets/


Grrl power!
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: November 02, 2012, 01:53:39 AM »

 :bandance; Thanks - what an honor!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe
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« Reply #5 on: November 02, 2012, 05:56:17 AM »

Congratulations Karol!
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natnnnat
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« Reply #6 on: November 05, 2012, 01:40:24 AM »

Brrr!!! They gave me the shivers!  In a good way of course. Congratulations Karol.
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Natalya Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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