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Author Topic: QUESTIONS FOR THE CONGRESSMAN  (Read 6401 times)
MooseMom
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« on: March 18, 2011, 02:23:30 PM »

My newly elected Congressman, Rep. Randy Hultgren (R) is going to have a couple of town hall meetings next week, the 23rd and 24th of March.  I am going to try to go.   What dialysis/CKD/Medicare related question(s) would you all like for me to ask him?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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« Reply #1 on: March 18, 2011, 06:06:28 PM »

There are some topics that are policy and kidney related on the Renal Support Networks website:
Be an Advocate for Kidney Care
The Wellness & Education Kidney Advocacy Network (weKAN) consists of “patient activists” from across the country whose common goal is to ensure that people with CKD receive quality care. If you are a person who lives with kidney disease and would like to receive information about weKAN, please email weKAN@rsnhope.org.
http://www.rsnhope.org/1weKAN/RSN_initiatives1.php
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #2 on: March 18, 2011, 07:00:23 PM »

I'd like to present him with more pointed questions whose answers may lie with Congress, things like maybe extending the period of time before a person with private insurance is forced onto Medicare (extension of the MSP).
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Zach
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« Reply #3 on: March 18, 2011, 07:35:49 PM »


I'd like to present him with more pointed questions whose answers may lie with Congress, things like maybe extending the period of time before a person with private insurance is forced onto Medicare (extension of the MSP).


Be careful what you ask for.
Extension of the MSP beyond its current 30-month period may not end up in the best interests of people on dialysis.

 8)
« Last Edit: March 19, 2011, 08:28:44 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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« Reply #4 on: March 18, 2011, 07:40:58 PM »

I'd ask how close are we as a Nation to "Presumed Conscent" for organ donation? 

   :cheer:
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Jean
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« Reply #5 on: March 18, 2011, 09:36:49 PM »

Good one ReRun. I would ask him why we are giving SSI to legal aliens who have never contributed a dime to Social Security in their lives.
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MooseMom
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« Reply #6 on: March 18, 2011, 10:18:14 PM »


I'd like to present him with more pointed questions whose answers may lie with Congress, things like maybe extending the period of time before a person with private insurance is forced onto Medicare (extension of the MSP).


Be careful what you ask for.
Extension of the MSP beyond its current 30-month period by not end up in the best interests of people on dialysis.

 8)

I'm not advocating for one thing or the other.  But if anyone had a question on that topic for whatever reason, I'd be willing to ask on their behalf if I had the chance.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #7 on: March 18, 2011, 10:19:08 PM »

I'd ask how close are we as a Nation to "Presumed Conscent" for organ donation? 

   :cheer:

That IS a good one.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: March 18, 2011, 10:35:29 PM »

 :twocents; Presumed consent is a fine idea, but we are already using the majority of deceased donors available. With better built cars, seat belts required, more airbags, and also helmet laws, there are less brain-injured victims on life support who end up as deceased donors. People always use Spain as an example of how well it works, but from what I understand, they don't allow patients over 60 years old to get transplants, so that alters the wait list patient profile.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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