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Author Topic: Are you looking for ways to educate others about kidney disease?  (Read 5370 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: January 30, 2011, 12:16:09 AM »

KidneySpeak from the Renal Support Network

Are you looking for ways to educate others about kidney disease?

Are you looking for patient speakers for a healthcare meeting?

You've come to the right place. KidneySpeak is designed to have the tools and resources to help patient presenters become as effective as possible in educating their community about organ donation and chronic kidney disease.

Part of KidneySpeak is the Patients Educating Patients & Professionals (PEPP) program. The PEPP program has a series of educational programs geared to people who are on dialysis and healthcare professionals.

RSN patient-speakers are respected throughout the renal community providing inspiration and information to patients and professionals across the country. RSN is happy to share tools with you to help communicate and spread awareness about chronic kidney disease.

To join the speaker group, or to request a speaker go to: http://rsnhope.org/programs/KSpeak/KSpeak_Home.php
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #1 on: January 30, 2011, 10:31:08 AM »

How much do they pay?

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
looneytunes
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Wishin' I was Fishin'

« Reply #2 on: February 01, 2011, 06:29:39 PM »

I think they are offering a free dialysis session for anyone that volunteers to speak....   :rofl;
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"The key to being patient is having something to do in the meantime" AU
okarol
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******
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Gender: Female
Posts: 100876


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #3 on: February 01, 2011, 11:56:16 PM »

How much do they pay?

8)

Pay? I wish i got some!  :rofl;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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