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Author Topic: expectations and reassurances re stem cell benefits  (Read 5657 times)
Everlasting
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our community

« on: November 23, 2009, 10:05:45 AM »

     We have participated in a conference call with stem cell clinic personnel in Texas and have been informed that Victor can expect his kidney function rate of 20% to climb to 50%.  In addition to the function of kidneys he will also undergo therapy for post stroke symptoms.  Both will be given for the one standard price.
     We are scheduled to arrive in Texas on 1 March 2009 and both will receive the therapy -- mine include issues that are neurological in nature.  It is my hope that I will once again be on my feet and out of a wheelchair.

     If you are wondering how they do it ---- the physician makes a small incision (1 in.) and inserts stem cells together with tissue and closes the filled hole with one dissolvable suture.  In Victor's case there will be two incisions in the area of the kidneys, two at the temporal areas and one at the back of his head where the spinal cord and skull meet.
 signed:  Everlasting
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1 on: November 23, 2009, 02:06:29 PM »

Fingers crossed.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Zach
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"Still crazy after all these years."

« Reply #2 on: November 25, 2009, 08:23:34 AM »

And again I say, caveat emptor.

 8)

http://spacecityskeptics.wordpress.com/2008/11/20/americans-make-run-for-the-border-for-unproven-stem-cell-therapy/
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: November 25, 2009, 11:05:51 AM »

And again I say, caveat emptor.

 8)

http://spacecityskeptics.wordpress.com/2008/11/20/americans-make-run-for-the-border-for-unproven-stem-cell-therapy/

Oh man, that's scary!  :o
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CCStan
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« Reply #4 on: January 04, 2010, 12:03:24 PM »

And again I say, caveat emptor.

 8)

http://spacecityskeptics.wordpress.com/2008/11/20/americans-make-run-for-the-border-for-unproven-stem-cell-therapy/

Thanks Zach for bringing  me back to earth !!!  Heard of this on another board and thought WOW, this was being done in Texas,USA !!!  Forgot to tell myself, "If it should to good,etc.etc"

The sad thing that is bringing false hope to those that are in desperate need of real and factual treatments. 

Thanks again, for making me think with my head instead of my heart.

CCStan
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