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Author Topic: OPTN/UNOS meetings are open to the public  (Read 4986 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: September 11, 2009, 04:12:17 PM »

OPTN/UNOS Meeting

Meetings are open to the public. You have a right to attend.

Event: 09/21/2009
OPTN/UNOS Living Donor Committee Meeting
Hilton Chicago O’Hare


Contact:
Jeff Schmid
E-mail Address:   schmidjw@unos.org
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #1 on: September 11, 2009, 11:26:51 PM »

Going to a low vision conference on that day to see new technology even though UNOS emailed me earlier about it. It was probably in their newsletter they send me in the (snail) mail, but didn't read it yet. Don't think I can do two confrences in one day that are no close.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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