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Author Topic: Speech to social workers for home dialysis advocacy  (Read 6535 times)
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Me with Baron von Fresenius

« on: June 19, 2009, 09:40:40 PM »

Today me, my nurse, and the NxStage sales rep for our region did a presentation to a group of social workers with the National Kidney Foundation about the benefits of short-daily dialysis with NxStage. I gave my own little speech which lasted about 15 min where I described my personal experience with NxStage and how it has improved my life. The social workers that we were presenting this to had all heard of NxStage, but most didn't know anything about it. By the end of our presentation, they were riveted, and they were asking all kinds of questions about NxStage. I love the opportunity to advocate home dialysis to both patients and professionals. I'm not really a good speaker, but despite this being my first ever public speech, all of my nervousness went away when I started talking, and everything turned out well. Now I'm looking forward to being able to do things like this in the future.

« Last Edit: June 19, 2009, 09:42:13 PM by Adam_W » Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.

"Don't live for dialysis, use dialysis to LIVE"
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Goofynina and Epoman - Gone But Not Forgotten

« Reply #1 on: June 19, 2009, 10:47:40 PM »

 :2thumbsup; :yahoo;  Proud of you!! :cuddle; 
Will be listening out for  more of this from you :thumbup;

"To be found in Him, not having a righteousness of my own ...but that which is based on faith"

I LOVE  my IHD family! :grouphug;
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« Reply #2 on: June 20, 2009, 03:18:09 AM »

 :2thumbsup; Well done.
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Photo is Jenna - after Disneyland - 1988

« Reply #3 on: June 20, 2009, 08:50:53 AM »

That's great Adam. I always thought your videos were also very well done. Maybe you can combine some ideas and create a good informational video too.

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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Might as well smile

« Reply #4 on: June 21, 2009, 02:01:51 PM »

Fantastic Adam and I bet that you're a better public speaker than you think you are, especially when talking about something so important that you know so much about.

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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A meow massages the heart.

« Reply #5 on: July 14, 2009, 06:18:58 PM »

Great!  Advocating for something in which you believe so strongly must have been a very gratifying experience.  I'll bet your audience gained a great deal of useful information and, hopefully, they will continue to spread the word.   :2thumbsup;

“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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