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Author Topic: *** The Power of People Like Us -- Be Your Own Best Advocate ***  (Read 5443 times)
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Gender: Male
Posts: 4820

"Still crazy after all these years."

« on: February 25, 2009, 12:14:16 PM »

Join the National Kidney Foundations People Like Us: Coffee House Conversations™ telephone series!

Next call:

“The Power of People Like Us Be Your Own Best Advocate”
Wednesday, March 4, 2009
7:00 - 8:30 p.m. EST
Telephone: 888-603-9220
Pass-code: KIDNEY

Registration is required. Please complete this registration form, fax it to Marilyn Jones at (212) 689-9261 or mail to:

The National Kidney Foundation
30 E. 33rd Street
New York, NY 10016
Attn: Marilyn Jones

Got feedback? If you have participated on previous Coffee House Conversations calls, we ask that you please take just a few minutes to complete a survey to let us know your thoughts. http://www.zoomerang.com/Survey/survey.zgi?p=WEB228FKW693VS

Want to hear previous calls? Visit http://www.kidney.org/coffeehouse/ to hear information about other topics that may be of interest to you.

Any questions? Call us at 1-800-622-9010, or email us at coffeehouse@kidney.org.

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Member for Life
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Gender: Female
Posts: 100878

Photo is Jenna - after Disneyland - 1988

« Reply #1 on: March 02, 2009, 09:43:51 AM »

I just registered by calling - online was not available to register...?

Join us for the next Coffee House Conversations™ telephone call!

To empower and educate individuals affected by chronic kidney disease (CKD), transplantation and donation, the National Kidney Foundation’s People Like Us hosts monthly Coffee House Conversations™ telephone calls. On these free, interactive telephone calls, you will hear from experts, and be given an opportunity to ask them questions. The next call is: 

    * “The Power of People Like Us – Become Your Own Best Advocate”
      Wednesday, March 4, 2009
      7:00 p.m. – 8:30 p.m. ET

Dial in to the toll free number and enter the password below for all Coffee House Conversations™ telephone series calls.

Call-In Number: 888-603-9220
Password: KIDNEY

*Space is limited! Register online now, or call 1-888-JOIN-NKF (888-564-6653)
or fill out this registration form (PDF* download).

Also, you can E-mail us at coffeehouse@kidney.org for more information or to submit questions about upcoming calls.

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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