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Rare Kidney Disease Foundation
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SooMK
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0
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676
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January 30, 2023, 01:18:32 PM
by SooMK
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Public Comment: Deceased donor initiated KPD chains
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okarol
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0
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2422
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August 11, 2017, 11:47:15 PM
by okarol
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Anyone PERSONALLY know anyone in advocacy in San Francisco area?
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CW
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1
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2530
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January 15, 2017, 12:26:08 PM
by Michael Murphy
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Announcement: 10th ANNUAL CKD/ESRD Patient Education & Awards Luncheon in NYC
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SugarBear
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1
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2624
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October 28, 2015, 05:19:39 PM
by Zach
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Understanding Patients’ Preferences: Stimulating Medical Device Development
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Zach
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0
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2726
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June 15, 2015, 07:28:23 PM
by Zach
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You can provide input into the development of new devices for kidney patients
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Zach
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0
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2736
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August 07, 2015, 11:19:46 AM
by Zach
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AAKP's 41st Annual Meeting Sept. 25-27 in Nashville
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noahvale
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4
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3027
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September 15, 2015, 05:16:08 AM
by noahvale
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HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST]
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nsdq
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2
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3106
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July 07, 2014, 10:41:30 AM
by SooMK
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Home Dialyzors United, Indiana University Team Up to Present “The Road Home”
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Zach
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0
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3117
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August 31, 2014, 06:01:13 PM
by Zach
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Information on Disaster Relief and Assistance
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okarol
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0
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3310
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July 02, 2008, 03:39:43 AM
by okarol
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How can I help
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stuman413
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2
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3625
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January 29, 2014, 01:50:42 PM
by cassandra
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Sign Petition- US House of Reps: H.R.3976--Dialysis Help
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kickingandscreaming
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3
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3663
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April 13, 2018, 09:21:54 AM
by iolaire
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Senate Bill 2320
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isurvived
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0
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3710
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April 20, 2008, 06:31:10 AM
by isurvived
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Tell Congress to Support Organ Donation Programs
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okarol
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0
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3863
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April 27, 2007, 08:29:52 AM
by okarol
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Living Kidney Donation and Sharing Your Story (Free Talk)
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EndPKD
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0
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3870
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March 08, 2013, 05:59:44 PM
by EndPKD
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RSN SALUTES KIDNEY MONTH ON YOU TUBE
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okarol
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0
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3881
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March 07, 2008, 03:34:27 PM
by okarol
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*** August 19, 2013 Deadline for ESRD Patient Comments on Quality Care ***
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Zach
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0
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3917
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August 11, 2013, 05:11:01 AM
by Zach
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OPTN/UNOS Nominating Committee Seeks Board Nominations
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okarol
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1
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4288
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July 02, 2008, 09:59:58 AM
by pelagia
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UNOS - participate in the policy-making process
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okarol
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2
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4302
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July 02, 2008, 09:49:16 AM
by pelagia
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Sign a petition to Congress asking them to improve US dialysis program this year
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Bill Peckham
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4
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4447
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April 25, 2008, 02:21:08 PM
by Bill Peckham
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It's always either cops or cancer
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MooseMom
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3
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4544
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January 05, 2013, 06:17:36 PM
by boswife
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To All Southern Californians
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peleroja
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0
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4663
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August 01, 2008, 10:59:17 AM
by peleroja
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TRIO will be having a 3-day symposium in St. Louis Sept. 25-27
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okarol
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0
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4720
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August 27, 2008, 12:40:51 PM
by okarol
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Have an Impact: U.S. Dialysis Center Standards Up for Revision
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Zach
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5
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4787
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April 13, 2015, 06:15:53 AM
by Zach
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ProPublica launches a new patient safety section
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okarol
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0
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4841
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September 24, 2012, 01:24:23 AM
by okarol
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Kidney Patients & Physicians Team-Up for Hill Day Visits
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Zach
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1
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5085
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December 22, 2012, 07:02:01 AM
by Dgayle
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Senate Passes PKD Awareness Week
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okarol
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1
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5101
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September 25, 2008, 02:55:16 PM
by willieandwinnie
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*** Webinar on Latest Dialysis Practice Monitor Data ***
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Zach
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2
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5142
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April 13, 2015, 06:08:27 AM
by Zach
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AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info
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natnnnat
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0
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5279
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May 02, 2012, 08:50:45 PM
by natnnnat
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Free Webinar with PKD Expert Dr. Ronald Perrone
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okarol
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0
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5285
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October 07, 2008, 11:24:56 AM
by okarol
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Los Angeles Walk for PKD
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livecam
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4
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5308
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October 07, 2008, 05:15:20 AM
by pelagia
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NEW BOOK: “Giving Life” - compelling stories about organ transplantation
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okarol
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3
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5373
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July 29, 2008, 07:12:31 PM
by Chris
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Make Your Voice Heard About Allocation for Kidney Transplant
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okarol
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0
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5466
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November 03, 2008, 10:55:45 AM
by okarol
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Call to Action via NKF re proposed Commisioning. Act Now
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JW77
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9
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5486
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January 29, 2015, 02:30:51 PM
by okarol
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Policy Proposals Issued for Public Comment
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okarol
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0
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5560
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October 15, 2008, 04:58:21 PM
by okarol
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OPTN: Public comment is needed on these current proposals
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okarol
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0
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5576
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March 16, 2012, 11:13:41 AM
by okarol
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Medigap Supplemental Policy
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okarol
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1
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5615
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July 02, 2008, 08:45:01 AM
by Zach
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Patients influencing quality of care
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hatedialysis2
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10
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5664
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May 16, 2016, 05:11:25 PM
by Simon Dog
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the nerve of people mistreating the elderly patients, amoung others...
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gothiclovemonkey
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9
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5728
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May 16, 2014, 06:50:14 PM
by Charlie B53
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Policy Proposals Issued for Public Comment
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okarol
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0
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5820
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February 06, 2009, 02:11:12 PM
by okarol
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Join AAKP at its 39th Annual Patient Meeting August 9-11, 2012 in Atlanta, GA!
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Zach
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3
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5865
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August 03, 2012, 10:22:52 AM
by noahvale
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Opinions needed from living donors
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okarol
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0
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5913
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November 19, 2008, 04:48:26 PM
by okarol
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Oprah recommends Giving Life
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okarol
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2
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5954
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November 17, 2008, 01:23:13 PM
by okarol
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OPTN/UNOS: Upcoming kidney allocation public forum
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okarol
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0
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5962
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November 21, 2008, 10:35:37 AM
by okarol
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S 323 and H.R. 1325 should not be supported
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Bill Peckham
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5
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5982
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March 31, 2013, 06:25:12 PM
by Speedy1wrc
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March is National Kidney Month
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Zach
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1
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5999
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March 02, 2012, 09:12:10 AM
by Rerun
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**Dial In for Dialysis Info**
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Zach
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0
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6065
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January 14, 2011, 07:42:40 AM
by Zach
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Free Webcast: Cardiovascular disorders in patients with chronic kidney disease
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okarol
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0
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6082
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December 05, 2008, 11:58:37 AM
by okarol
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Nominations for 2011 AAKP Medal of Excellence Award Being Accepted
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okarol
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0
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6083
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October 16, 2010, 08:02:57 PM
by okarol
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Etta's Gift Business Card
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kellyt
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2
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6088
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December 20, 2010, 06:08:41 PM
by jbeany
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NxStageUsers Announces 2nd Annual Meet-Up and Conference
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M3Riddler
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0
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6161
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April 12, 2011, 06:57:03 PM
by M3Riddler
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2nd Annual NxStageUsers Meet-Up and Conference
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M3Riddler
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0
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6161
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August 20, 2011, 02:13:13 PM
by M3Riddler
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** Speak Up and Be Heard ! **
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Zach
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3
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6182
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January 30, 2009, 03:52:32 PM
by paul.karen
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OPTN/UNOS Nominating Committee Seeks Board Nominations
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okarol
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0
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6295
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September 10, 2010, 05:05:49 PM
by okarol
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QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb
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Bill Peckham
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0
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6330
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August 28, 2011, 06:25:59 PM
by Bill Peckham
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PKD Nutrition: FREE Healthy Eating Webinar
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okarol
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0
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6332
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January 02, 2009, 02:50:35 PM
by okarol
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Tell Your Senators to Co-Sponsor the Organ Donation Clarification Act
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okarol
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1
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6349
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November 18, 2008, 07:39:21 PM
by pelagia
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PKD Foundation: Learn the latest news and information about kidney transplants
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okarol
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0
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6363
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February 25, 2009, 05:49:44 PM
by okarol
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*** NKF conference call to address patients' rights and responsibilities ***
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Zach
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2
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6382
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February 10, 2009, 11:07:20 AM
by Chris
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Transplant Recipients International Organization
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rsudock
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0
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6395
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June 26, 2011, 11:27:45 AM
by rsudock
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meeting the costs of stem cell therapy
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Everlasting
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0
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6408
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November 16, 2009, 04:13:50 PM
by Everlasting
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Advocate for Kidney Patients - Join AKF’s Advocacy Network
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okarol
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0
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6410
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September 02, 2010, 08:03:23 AM
by okarol
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cell phones and sense of well-being
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Everlasting
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0
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6418
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August 11, 2009, 10:28:27 AM
by Everlasting
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OPTN/UNOS meetings are open to the public
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okarol
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1
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6450
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September 11, 2009, 11:26:51 PM
by Chris
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New blog post from DaVita CMO on quality of life
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cattlekid
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5
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6460
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May 09, 2012, 08:01:40 PM
by dialysisadvocate
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UNOS: Policy Proposals Issued for Public Comment
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okarol
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0
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6465
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September 24, 2011, 02:50:48 PM
by okarol
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Home Dialysis Actin Plan for Bundling
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M3Riddler
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0
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6487
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October 28, 2009, 09:32:10 PM
by M3Riddler
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DaVita Asking Us To Support Congress
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Rerun
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6
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6533
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July 17, 2008, 07:52:31 PM
by Jill D.
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NKF: Get Ready for an Emergency
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okarol
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1
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6599
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September 03, 2009, 05:32:33 PM
by Rerun
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financially supported airfares for out of province/country treatments
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Everlasting
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1
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6607
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August 21, 2009, 03:11:12 AM
by kimcanada
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Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada
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EndPKD
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2
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6645
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February 27, 2012, 05:22:00 PM
by EndPKD
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March 2009 PKD E-News: Today is World Kidney Day!
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okarol
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0
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6660
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March 12, 2009, 02:31:30 PM
by okarol
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World Kidney Day 2010
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okarol
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2
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6675
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March 01, 2010, 12:54:12 PM
by okarol
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RSN bracelets honoring our Okarol!
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MooseMom
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6
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6678
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November 05, 2012, 01:40:24 AM
by natnnnat
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OPTN/UNOS Policy Proposals Distributed for Public Comment
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okarol
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1
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6727
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October 15, 2009, 03:34:14 PM
by Sunny
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Getting hemodialysis unit in your own town
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littlesister
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3
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6736
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November 18, 2009, 01:17:21 PM
by Hanify
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Open Door Forum Panel - development of new quality measures for ESRD
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okarol
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0
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6755
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February 05, 2010, 06:50:08 PM
by okarol
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My homework assignment RE: Etta's Gift
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jbeany
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5
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6778
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December 20, 2010, 08:37:29 PM
by kellyt
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FREE HDC Webinar: Treatment Options & Informed Consent
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M3Riddler
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0
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6805
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August 12, 2009, 09:43:32 PM
by M3Riddler
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Organ donors and health insurance - fact or spam??
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okarol
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2
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6809
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October 21, 2009, 05:44:15 AM
by tyefly
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*** The Power of People Like Us -- Be Your Own Best Advocate ***
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Zach
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1
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6815
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March 02, 2009, 09:43:51 AM
by okarol
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UNOS public comments accepted until Sept. 14, 2009
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okarol
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1
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6824
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August 03, 2009, 12:16:08 AM
by Chris
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Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar
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okarol
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0
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6824
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April 28, 2011, 08:53:48 AM
by okarol
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Join George Lopez and his celebrity friends
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okarol
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0
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6826
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March 10, 2009, 01:09:45 PM
by okarol
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World Kidney Day - videos found on the internet
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okarol
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1
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6852
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March 16, 2009, 05:41:56 PM
by Sluff
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Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill!
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okarol
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2
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6904
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March 31, 2009, 12:25:18 PM
by paul.karen
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SSI for children with ESRD
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willieandwinnie
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0
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6933
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March 28, 2009, 11:43:13 AM
by willieandwinnie
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Your support and loving kindness
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Everlasting
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3
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6980
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September 26, 2009, 12:32:14 PM
by thegrammalady
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Emergency Contact Information
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willowtreewren
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0
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6984
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December 17, 2009, 12:40:44 PM
by willowtreewren
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Immunosuppressive Drug Coverage Legislation Introduced
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okarol
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2
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7031
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April 06, 2009, 10:07:07 PM
by Rerun
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DC Diary: Bringing Kidney Disease to Capitol Hill
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Meinuk
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1
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7033
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February 17, 2010, 07:04:32 PM
by paris
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Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy
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okarol
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4
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7152
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April 29, 2010, 05:02:46 PM
by Meinuk
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CMS End Stage Renal Disease (ESRD) Open Door Forum
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okarol
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1
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7180
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February 15, 2009, 04:35:34 PM
by dialysisbiller
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NKF Calls for Action in Organ Donation “END THE WAIT!” Campaign
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okarol
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3
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7190
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February 20, 2009, 05:38:26 PM
by karen547
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Are you looking for ways to educate others about kidney disease?
|
okarol
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3
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7256
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February 01, 2011, 11:56:16 PM
by okarol
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House GOP eyeing major Medicare overhaul in 2017
|
Bill Peckham
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21
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7289
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December 14, 2016, 05:44:36 PM
by Simon Dog
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perseverence - donor searching
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Everlasting
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4
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7307
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October 22, 2009, 06:36:16 PM
by okarol
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Are you on the road to transplant?
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natlarson
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4
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7335
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October 12, 2010, 05:39:36 PM
by MooseMom
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establishing an informal support group
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Everlasting
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3
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7391
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July 31, 2009, 10:17:44 AM
by peleroja
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DSEN: Deeply confused New York Times article is a disservice to dialyzors
|
Zach
|
5
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7490
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April 27, 2012, 12:39:00 PM
by MomoMcSleepy
|
I Hate Dialysis Message Board
Topic you have posted in
Very Hot Topic (More than 25 replies)
Locked Topic
Sticky Topic
Poll
