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Subject Started by Replies Views Last post
Public Comment: Deceased donor initiated KPD chains okarol 0 802 Last post August 11, 2017, 11:47:15 PM
by okarol
Sign Petition- US House of Reps: H.R.3976--Dialysis Help kickingandscreaming 3 1022 Last post April 13, 2018, 09:21:54 AM
by iolaire
You can provide input into the development of new devices for kidney patients Zach 0 1043 Last post August 07, 2015, 11:19:46 AM
by Zach
Anyone PERSONALLY know anyone in advocacy in San Francisco area? CW 1 1060 Last post January 15, 2017, 12:26:08 PM
by Michael Murphy
Announcement: 10th ANNUAL CKD/ESRD Patient Education & Awards Luncheon in NYC SugarBear 1 1082 Last post October 28, 2015, 05:19:39 PM
by Zach
Understanding Patients’ Preferences: Stimulating Medical Device Development Zach 0 1111 Last post June 15, 2015, 07:28:23 PM
by Zach
AAKP's 41st Annual Meeting Sept. 25-27 in Nashville noahvale 4 1240 Last post September 15, 2015, 05:16:08 AM
by noahvale
Home Dialyzors United, Indiana University Team Up to Present “The Road Home” Zach 0 1446 Last post August 31, 2014, 06:01:13 PM
by Zach
HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST] nsdq 2 1455 Last post July 07, 2014, 10:41:30 AM
by SooMK
How can I help stuman413 2 2061 Last post January 29, 2014, 01:50:42 PM
by cassandra
Living Kidney Donation and Sharing Your Story (Free Talk) EndPKD 0 2332 Last post March 08, 2013, 05:59:44 PM
by EndPKD
*** August 19, 2013 Deadline for ESRD Patient Comments on Quality Care *** Zach 0 2359 Last post August 11, 2013, 05:11:01 AM
by Zach
Patients influencing quality of care hatedialysis2 10 2372 Last post May 16, 2016, 05:11:25 PM
by Simon Dog
Information on Disaster Relief and Assistance okarol 0 2445 Last post July 02, 2008, 03:39:43 AM
by okarol
Call to Action via NKF re proposed Commisioning. Act Now JW77 9 2537 Last post January 29, 2015, 02:30:51 PM
by okarol
Have an Impact: U.S. Dialysis Center Standards Up for Revision Zach 5 2554 Last post April 13, 2015, 06:15:53 AM
by Zach
Tell Congress to Support Organ Donation Programs okarol 0 2636 Last post April 27, 2007, 08:29:52 AM
by okarol
Senate Bill 2320 isurvived 0 2714 Last post April 20, 2008, 06:31:10 AM
by isurvived
RSN SALUTES KIDNEY MONTH ON YOU TUBE okarol 0 2808 Last post March 07, 2008, 03:34:27 PM
by okarol
*** Webinar on Latest Dialysis Practice Monitor Data *** Zach 2 2891 Last post April 13, 2015, 06:08:27 AM
by Zach
It's always either cops or cancer MooseMom 3 2957 Last post January 05, 2013, 06:17:36 PM
by boswife
UNOS - participate in the policy-making process okarol 2 3129 Last post July 02, 2008, 09:49:16 AM
by pelagia
ProPublica launches a new patient safety section okarol 0 3134 Last post September 24, 2012, 01:24:23 AM
by okarol
the nerve of people mistreating the elderly patients, amoung others... gothiclovemonkey 9 3152 Last post May 16, 2014, 06:50:14 PM
by Charlie B53
Sign a petition to Congress asking them to improve US dialysis program this year Bill Peckham 4 3220 Last post April 25, 2008, 02:21:08 PM
by Bill Peckham
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 1 3347 Last post July 02, 2008, 09:59:58 AM
by pelagia
House GOP eyeing major Medicare overhaul in 2017 Bill Peckham 21 3415 Last post December 14, 2016, 05:44:36 PM
by Simon Dog
Kidney Patients & Physicians Team-Up for Hill Day Visits Zach 1 3489 Last post December 22, 2012, 07:02:01 AM
by Dgayle
AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info natnnnat 0 3763 Last post May 02, 2012, 08:50:45 PM
by natnnnat
To All Southern Californians peleroja 0 3798 Last post August 01, 2008, 10:59:17 AM
by peleroja
TRIO will be having a 3-day symposium in St. Louis Sept. 25-27 okarol 0 3876 Last post August 27, 2008, 12:40:51 PM
by okarol
S 323 and H.R. 1325 should not be supported Bill Peckham 5 3876 Last post March 31, 2013, 06:25:12 PM
by Speedy1wrc
Join AAKP at its 39th Annual Patient Meeting August 9-11, 2012 in Atlanta, GA! Zach 3 3969 Last post August 03, 2012, 10:22:52 AM
by noahvale
OPTN: Public comment is needed on these current proposals okarol 0 4033 Last post March 16, 2012, 11:13:41 AM
by okarol
RSN bracelets honoring our Okarol! MooseMom 6 4111 Last post November 05, 2012, 01:40:24 AM
by natnnnat
Senate Passes PKD Awareness Week okarol 1 4175 Last post September 25, 2008, 02:55:16 PM
by willieandwinnie
March is National Kidney Month Zach 1 4274 Last post March 02, 2012, 09:12:10 AM
by Rerun
Free Webinar with PKD Expert Dr. Ronald Perrone okarol 0 4283 Last post October 07, 2008, 11:24:56 AM
by okarol
Los Angeles Walk for PKD livecam 4 4285 Last post October 07, 2008, 05:15:20 AM
by pelagia
Medigap Supplemental Policy okarol 1 4346 Last post July 02, 2008, 08:45:01 AM
by Zach
NEW BOOK: “Giving Life” - compelling stories about organ transplantation okarol 3 4364 Last post July 29, 2008, 07:12:31 PM
by Chris
Obama cuts to Medicare Whamo 14 4457 Last post April 06, 2013, 06:51:04 PM
by Bill Peckham
Make Your Voice Heard About Allocation for Kidney Transplant okarol 0 4472 Last post November 03, 2008, 10:55:45 AM
by okarol
Policy Proposals Issued for Public Comment okarol 0 4580 Last post October 15, 2008, 04:58:21 PM
by okarol
New blog post from DaVita CMO on quality of life cattlekid 5 4581 Last post May 09, 2012, 08:01:40 PM
by dialysisadvocate
Nominations for 2011 AAKP Medal of Excellence Award Being Accepted okarol 0 4668 Last post October 16, 2010, 08:02:57 PM
by okarol
2nd Annual NxStageUsers Meet-Up and Conference M3Riddler 0 4692 Last post August 20, 2011, 02:13:13 PM
by M3Riddler
QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb Bill Peckham 0 4699 Last post August 28, 2011, 06:25:59 PM
by Bill Peckham
Etta's Gift Business Card kellyt 2 4730 Last post December 20, 2010, 06:08:41 PM
by jbeany
**Dial In for Dialysis Info** Zach 0 4733 Last post January 14, 2011, 07:42:40 AM
by Zach
Advocate for Kidney Patients - Join AKF’s Advocacy Network okarol 0 4751 Last post September 02, 2010, 08:03:23 AM
by okarol
NxStageUsers Announces 2nd Annual Meet-Up and Conference M3Riddler 0 4763 Last post April 12, 2011, 06:57:03 PM
by M3Riddler
Policy Proposals Issued for Public Comment okarol 0 4785 Last post February 06, 2009, 02:11:12 PM
by okarol
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 0 4795 Last post September 10, 2010, 05:05:49 PM
by okarol
Transplant Recipients International Organization rsudock 0 4808 Last post June 26, 2011, 11:27:45 AM
by rsudock
UNOS: Policy Proposals Issued for Public Comment okarol 0 4846 Last post September 24, 2011, 02:50:48 PM
by okarol
Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada EndPKD 2 4863 Last post February 27, 2012, 05:22:00 PM
by EndPKD
meeting the costs of stem cell therapy Everlasting 0 4901 Last post November 16, 2009, 04:13:50 PM
by Everlasting
Where is the research advocacy? Bill Peckham 16 4908 Last post April 23, 2015, 08:53:14 PM
by PrimeTimer
Oprah recommends Giving Life okarol 2 4912 Last post November 17, 2008, 01:23:13 PM
by okarol
OPTN/UNOS Policy Proposals Distributed for Public Comment okarol 1 4946 Last post October 15, 2009, 03:34:14 PM
by Sunny
Opinions needed from living donors okarol 0 4973 Last post November 19, 2008, 04:48:26 PM
by okarol
OPTN/UNOS meetings are open to the public okarol 1 4981 Last post September 11, 2009, 11:26:51 PM
by Chris
cell phones and sense of well-being Everlasting 0 5006 Last post August 11, 2009, 10:28:27 AM
by Everlasting
NKF: Get Ready for an Emergency okarol 1 5007 Last post September 03, 2009, 05:32:33 PM
by Rerun
financially supported airfares for out of province/country treatments Everlasting 1 5009 Last post August 21, 2009, 03:11:12 AM
by kimcanada
World Kidney Day 2010 okarol 2 5023 Last post March 01, 2010, 12:54:12 PM
by okarol
Home Dialysis Actin Plan for Bundling M3Riddler 0 5026 Last post October 28, 2009, 09:32:10 PM
by M3Riddler
OPTN/UNOS: Upcoming kidney allocation public forum okarol 0 5035 Last post November 21, 2008, 10:35:37 AM
by okarol
March 2009 PKD E-News: Today is World Kidney Day! okarol 0 5041 Last post March 12, 2009, 02:31:30 PM
by okarol
DaVita Asking Us To Support Congress Rerun 6 5089 Last post July 17, 2008, 07:52:31 PM
by Jill D.
World Kidney Day - videos found on the internet okarol 1 5105 Last post March 16, 2009, 05:41:56 PM
by Sluff
Free Webcast: Cardiovascular disorders in patients with chronic kidney disease okarol 0 5108 Last post December 05, 2008, 11:58:37 AM
by okarol
Organ donors and health insurance - fact or spam?? okarol 2 5109 Last post October 21, 2009, 05:44:15 AM
by tyefly
** Speak Up and Be Heard ! ** Zach 3 5120 Last post January 30, 2009, 03:52:32 PM
by paul.karen
FREE HDC Webinar: Treatment Options & Informed Consent M3Riddler 0 5133 Last post August 12, 2009, 09:43:32 PM
by M3Riddler
Getting hemodialysis unit in your own town littlesister 3 5156 Last post November 18, 2009, 01:17:21 PM
by Hanify
PKD Foundation: Learn the latest news and information about kidney transplants okarol 0 5182 Last post February 25, 2009, 05:49:44 PM
by okarol
Your support and loving kindness Everlasting 3 5184 Last post September 26, 2009, 12:32:14 PM
by thegrammalady
My homework assignment RE: Etta's Gift jbeany 5 5219 Last post December 20, 2010, 08:37:29 PM
by kellyt
Open Door Forum Panel - development of new quality measures for ESRD okarol 0 5224 Last post February 05, 2010, 06:50:08 PM
by okarol
*** The Power of People Like Us -- Be Your Own Best Advocate *** Zach 1 5235 Last post March 02, 2009, 09:43:51 AM
by okarol
Join George Lopez and his celebrity friends okarol 0 5262 Last post March 10, 2009, 01:09:45 PM
by okarol
Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar okarol 0 5297 Last post April 28, 2011, 08:53:48 AM
by okarol
Immunosuppressive Drug Coverage Legislation Introduced okarol 2 5302 Last post April 06, 2009, 10:07:07 PM
by Rerun
Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill! okarol 2 5304 Last post March 31, 2009, 12:25:18 PM
by paul.karen
Are you on the road to transplant? natlarson 4 5310 Last post October 12, 2010, 05:39:36 PM
by MooseMom
SSI for children with ESRD willieandwinnie 0 5338 Last post March 28, 2009, 11:43:13 AM
by willieandwinnie
Are you looking for ways to educate others about kidney disease? okarol 3 5365 Last post February 01, 2011, 11:56:16 PM
by okarol
*** NKF conference call to address patients' rights and responsibilities *** Zach 2 5375 Last post February 10, 2009, 11:07:20 AM
by Chris
PKD Nutrition: FREE Healthy Eating Webinar okarol 0 5376 Last post January 02, 2009, 02:50:35 PM
by okarol
Tell Your Senators to Co-Sponsor the Organ Donation Clarification Act okarol 1 5386 Last post November 18, 2008, 07:39:21 PM
by pelagia
UNOS public comments accepted until Sept. 14, 2009 okarol 1 5386 Last post August 03, 2009, 12:16:08 AM
by Chris
Outdated or no? MooseMom 11 5402 Last post May 12, 2012, 05:43:05 PM
by MooseMom
perseverence - donor searching Everlasting 4 5483 Last post October 22, 2009, 06:36:16 PM
by okarol
establishing an informal support group Everlasting 3 5499 Last post July 31, 2009, 10:17:44 AM
by peleroja
Emergency Contact Information willowtreewren 0 5508 Last post December 17, 2009, 12:40:44 PM
by willowtreewren
Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy okarol 4 5509 Last post April 29, 2010, 05:02:46 PM
by Meinuk
DC Diary: Bringing Kidney Disease to Capitol Hill Meinuk 1 5520 Last post February 17, 2010, 07:04:32 PM
by paris
DSEN: Deeply confused New York Times article is a disservice to dialyzors Zach 5 5638 Last post April 27, 2012, 12:39:00 PM
by MomoMcSleepy
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