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Subject Started by Replies Views Last post
Free Webinar with PKD Expert Dr. Ronald Perrone okarol 0 4283 Last post October 07, 2008, 11:24:56 AM
by okarol
OPTN/UNOS Policy Proposals Distributed for Public Comment okarol 1 4946 Last post October 15, 2009, 03:34:14 PM
by Sunny
"A unified approach" MooseMom 10 6858 Last post January 06, 2011, 07:45:13 PM
by MooseMom
** Speak Up and Be Heard ! ** Zach 3 5120 Last post January 30, 2009, 03:52:32 PM
by paul.karen
*** August 19, 2013 Deadline for ESRD Patient Comments on Quality Care *** Zach 0 2359 Last post August 11, 2013, 05:11:01 AM
by Zach
*** NKF conference call to address patients' rights and responsibilities *** Zach 2 5375 Last post February 10, 2009, 11:07:20 AM
by Chris
*** The Power of People Like Us -- Be Your Own Best Advocate *** Zach 1 5235 Last post March 02, 2009, 09:43:51 AM
by okarol
*** Webinar on Latest Dialysis Practice Monitor Data *** Zach 2 2891 Last post April 13, 2015, 06:08:27 AM
by Zach
**Dial In for Dialysis Info** Zach 0 4733 Last post January 14, 2011, 07:42:40 AM
by Zach
2nd Annual NxStageUsers Meet-Up and Conference M3Riddler 0 4692 Last post August 20, 2011, 02:13:13 PM
by M3Riddler
A California dialysis tech training school: Whats good and bad about people? okarol 0 6244 Last post January 14, 2011, 11:09:56 PM
by okarol
A Letter to President Barack Obama - The Ten Point Plan: Renal Patient’s View okarol 5 6337 Last post March 09, 2009, 11:18:58 AM
by Bill Peckham
AAKP's 41st Annual Meeting Sept. 25-27 in Nashville noahvale 4 1240 Last post September 15, 2015, 05:16:08 AM
by noahvale
Adventures on E-bay (yes, this is advocacy!) Meinuk 5 5966 Last post January 05, 2012, 05:51:49 AM
by Meinuk
Advocate for Kidney Patients - Join AKF’s Advocacy Network okarol 0 4751 Last post September 02, 2010, 08:03:23 AM
by okarol
AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info natnnnat 0 3763 Last post May 02, 2012, 08:50:45 PM
by natnnnat
Announcement: 10th ANNUAL CKD/ESRD Patient Education & Awards Luncheon in NYC SugarBear 1 1082 Last post October 28, 2015, 05:19:39 PM
by Zach
Anyone PERSONALLY know anyone in advocacy in San Francisco area? CW 1 1060 Last post January 15, 2017, 12:26:08 PM
by Michael Murphy
Are you looking for ways to educate others about kidney disease? okarol 3 5365 Last post February 01, 2011, 11:56:16 PM
by okarol
Are you on the road to transplant? natlarson 4 5310 Last post October 12, 2010, 05:39:36 PM
by MooseMom
Ask your Representative to Extend Immunosuppressive Drug Coverage okarol 8 7041 Last post June 20, 2009, 04:39:59 PM
by TiffanyJean
Call to Action via NKF re proposed Commisioning. Act Now JW77 9 2537 Last post January 29, 2015, 02:30:51 PM
by okarol
cell phones and sense of well-being Everlasting 0 5006 Last post August 11, 2009, 10:28:27 AM
by Everlasting
CMS End Stage Renal Disease (ESRD) Open Door Forum okarol 1 5994 Last post February 15, 2009, 04:35:34 PM
by dialysisbiller
CONGRESS: Immunosuppressive Drug Coverage for Kidney Transplant Patients okarol 11 6884 Last post July 02, 2008, 08:21:17 PM
by pelagia
Creating Change for the Future okarol 14 8673 Last post August 28, 2008, 09:17:27 PM
by pelagia
DaVita Asking Us To Support Congress Rerun 6 5089 Last post July 17, 2008, 07:52:31 PM
by Jill D.
DC Diary: Bringing Kidney Disease to Capitol Hill Meinuk 1 5520 Last post February 17, 2010, 07:04:32 PM
by paris
DSEN: Deeply confused New York Times article is a disservice to dialyzors Zach 5 5639 Last post April 27, 2012, 12:39:00 PM
by MomoMcSleepy
Emergency Contact Information willowtreewren 0 5508 Last post December 17, 2009, 12:40:44 PM
by willowtreewren
establishing an informal support group Everlasting 3 5499 Last post July 31, 2009, 10:17:44 AM
by peleroja
Etta's Gift Business Card kellyt 2 4730 Last post December 20, 2010, 06:08:41 PM
by jbeany
expectations and reassurances re stem cell benefits Everlasting 4 5686 Last post January 04, 2010, 12:03:24 PM
by CCStan
financially supported airfares for out of province/country treatments Everlasting 1 5009 Last post August 21, 2009, 03:11:12 AM
by kimcanada
FREE HDC Webinar: Treatment Options & Informed Consent M3Riddler 0 5133 Last post August 12, 2009, 09:43:32 PM
by M3Riddler
Free lapel pins - organ donation - April is National Donate Life Month « 1 2 » okarol 42 26362 Last post June 08, 2011, 12:08:05 PM
by okarol
Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy okarol 4 5509 Last post April 29, 2010, 05:02:46 PM
by Meinuk
Free Webcast: Cardiovascular disorders in patients with chronic kidney disease okarol 0 5108 Last post December 05, 2008, 11:58:37 AM
by okarol
Getting hemodialysis unit in your own town littlesister 3 5156 Last post November 18, 2009, 01:17:21 PM
by Hanify
Have an Impact: U.S. Dialysis Center Standards Up for Revision Zach 5 2554 Last post April 13, 2015, 06:15:53 AM
by Zach
Help! a stroke has entered the picture! Everlasting 7 5796 Last post September 18, 2009, 05:28:07 PM
by Bill Peckham
HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST] nsdq 2 1455 Last post July 07, 2014, 10:41:30 AM
by SooMK
Home Dialysis Actin Plan for Bundling M3Riddler 0 5026 Last post October 28, 2009, 09:32:10 PM
by M3Riddler
Home Dialyzors United, Indiana University Team Up to Present “The Road Home” Zach 0 1446 Last post August 31, 2014, 06:01:13 PM
by Zach
House GOP eyeing major Medicare overhaul in 2017 Bill Peckham 21 3415 Last post December 14, 2016, 05:44:36 PM
by Simon Dog
How can I help stuman413 2 2061 Last post January 29, 2014, 01:50:42 PM
by cassandra
I need help really bad kidneyless_In_PA 7 6378 Last post August 01, 2009, 12:26:26 PM
by kidneyless_In_PA
Immunosuppressive Drug Coverage Legislation Introduced okarol 2 5302 Last post April 06, 2009, 10:07:07 PM
by Rerun
Information on Disaster Relief and Assistance okarol 0 2445 Last post July 02, 2008, 03:39:43 AM
by okarol
Informed consent natnnnat 4 6565 Last post July 08, 2010, 07:59:31 PM
by cariad
Is this naughty? MooseMom 10 6525 Last post October 11, 2010, 10:43:29 PM
by okarol
It's always either cops or cancer MooseMom 3 2957 Last post January 05, 2013, 06:17:36 PM
by boswife
Join AAKP at its 39th Annual Patient Meeting August 9-11, 2012 in Atlanta, GA! Zach 3 3969 Last post August 03, 2012, 10:22:52 AM
by noahvale
Join George Lopez and his celebrity friends okarol 0 5262 Last post March 10, 2009, 01:09:45 PM
by okarol
Keeping a relationship strong while dealing with kidney transplant issues Everlasting 7 7302 Last post August 12, 2009, 06:35:33 PM
by kellyt
Kidney Patients & Physicians Team-Up for Hill Day Visits Zach 1 3489 Last post December 22, 2012, 07:02:01 AM
by Dgayle
Let's find another avenue to pay our BILLS!!! Rerun 6 6570 Last post March 14, 2009, 07:16:25 PM
by Rerun
Living Kidney Donation and Sharing Your Story (Free Talk) EndPKD 0 2332 Last post March 08, 2013, 05:59:44 PM
by EndPKD
look at my new license plate! xtrememoosetrax 22 10521 Last post August 18, 2009, 12:16:51 PM
by paris
Los Angeles Walk for PKD livecam 4 4285 Last post October 07, 2008, 05:15:20 AM
by pelagia
Make Your Voice Heard About Allocation for Kidney Transplant okarol 0 4472 Last post November 03, 2008, 10:55:45 AM
by okarol
March 2009 PKD E-News: Today is World Kidney Day! okarol 0 5041 Last post March 12, 2009, 02:31:30 PM
by okarol
March is National Kidney Month Zach 1 4274 Last post March 02, 2012, 09:12:10 AM
by Rerun
Medigap Supplemental Policy okarol 1 4346 Last post July 02, 2008, 08:45:01 AM
by Zach
meeting the costs of stem cell therapy Everlasting 0 4901 Last post November 16, 2009, 04:13:50 PM
by Everlasting
My homework assignment RE: Etta's Gift jbeany 5 5219 Last post December 20, 2010, 08:37:29 PM
by kellyt
New blog post from DaVita CMO on quality of life cattlekid 5 4581 Last post May 09, 2012, 08:01:40 PM
by dialysisadvocate
NEW BOOK: “Giving Life” - compelling stories about organ transplantation okarol 3 4364 Last post July 29, 2008, 07:12:31 PM
by Chris
NKF Calls for Action in Organ Donation “END THE WAIT!” Campaign okarol 3 5916 Last post February 20, 2009, 05:38:26 PM
by karen547
NKF: Get Ready for an Emergency okarol 1 5007 Last post September 03, 2009, 05:32:33 PM
by Rerun
No dialysis in local hospital wahoozer 14 7014 Last post August 01, 2009, 05:43:56 PM
by Hanify
Nominations for 2011 AAKP Medal of Excellence Award Being Accepted okarol 0 4668 Last post October 16, 2010, 08:02:57 PM
by okarol
NxStageUsers Announces 2nd Annual Meet-Up and Conference M3Riddler 0 4763 Last post April 12, 2011, 06:57:03 PM
by M3Riddler
Obama cuts to Medicare Whamo 14 4457 Last post April 06, 2013, 06:51:04 PM
by Bill Peckham
Open Door Forum Panel - development of new quality measures for ESRD okarol 0 5224 Last post February 05, 2010, 06:50:08 PM
by okarol
Opinions needed from living donors okarol 0 4973 Last post November 19, 2008, 04:48:26 PM
by okarol
Oprah recommends Giving Life okarol 2 4912 Last post November 17, 2008, 01:23:13 PM
by okarol
OPTN/UNOS meetings are open to the public okarol 1 4981 Last post September 11, 2009, 11:26:51 PM
by Chris
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 1 3347 Last post July 02, 2008, 09:59:58 AM
by pelagia
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 0 4795 Last post September 10, 2010, 05:05:49 PM
by okarol
OPTN/UNOS: Upcoming kidney allocation public forum okarol 0 5035 Last post November 21, 2008, 10:35:37 AM
by okarol
OPTN: Public comment is needed on these current proposals okarol 0 4033 Last post March 16, 2012, 11:13:41 AM
by okarol
Organ donors and health insurance - fact or spam?? okarol 2 5109 Last post October 21, 2009, 05:44:15 AM
by tyefly
Outdated or no? MooseMom 11 5402 Last post May 12, 2012, 05:43:05 PM
by MooseMom
Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada EndPKD 2 4863 Last post February 27, 2012, 05:22:00 PM
by EndPKD
Passive Advocay Meinuk 11 7558 Last post June 21, 2010, 10:38:15 PM
by natnnnat
Patients influencing quality of care hatedialysis2 10 2372 Last post May 16, 2016, 05:11:25 PM
by Simon Dog
perseverence - donor searching Everlasting 4 5483 Last post October 22, 2009, 06:36:16 PM
by okarol
Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar okarol 0 5297 Last post April 28, 2011, 08:53:48 AM
by okarol
PKD Foundation: Learn the latest news and information about kidney transplants okarol 0 5182 Last post February 25, 2009, 05:49:44 PM
by okarol
PKD Nutrition: FREE Healthy Eating Webinar okarol 0 5376 Last post January 02, 2009, 02:50:35 PM
by okarol
Please sign a petition to support me and others on dialysis « 1 2 3 » Bill Peckham 56 25432 Last post July 22, 2009, 12:13:02 AM
by Hanify
Please support lifetime Medicare Coverage for transplant drugs noahvale 8 6303 Last post April 10, 2013, 07:39:35 PM
by Bill Peckham
Policy Proposals Issued for Public Comment okarol 0 4785 Last post February 06, 2009, 02:11:12 PM
by okarol
Policy Proposals Issued for Public Comment okarol 0 4580 Last post October 15, 2008, 04:58:21 PM
by okarol
ProPublica launches a new patient safety section okarol 0 3134 Last post September 24, 2012, 01:24:23 AM
by okarol
Public Comment: Deceased donor initiated KPD chains okarol 0 802 Last post August 11, 2017, 11:47:15 PM
by okarol
QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb Bill Peckham 0 4699 Last post August 28, 2011, 06:25:59 PM
by Bill Peckham
Questions dialysisadvocate 15 6019 Last post May 09, 2012, 07:50:48 PM
by dialysisadvocate
QUESTIONS FOR THE CONGRESSMAN MooseMom 8 6394 Last post March 18, 2011, 10:35:29 PM
by okarol
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