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Subject Started by Replies Views Last post
Speech to social workers for home dialysis advocacy Adam_W 5 6182 Last post July 14, 2009, 06:18:58 PM
by David13
House GOP eyeing major Medicare overhaul in 2017 Bill Peckham 21 3268 Last post December 14, 2016, 05:44:36 PM
by Simon Dog
S 323 and H.R. 1325 should not be supported Bill Peckham 5 3790 Last post March 31, 2013, 06:25:12 PM
by Speedy1wrc
Terrible YouTube video series - what should be done? Anything? « 1 2 » Bill Peckham 33 20301 Last post April 22, 2009, 08:17:45 PM
by Zach
Sign a petition to Congress asking them to improve US dialysis program this year Bill Peckham 4 3166 Last post April 25, 2008, 02:21:08 PM
by Bill Peckham
Where is the research advocacy? Bill Peckham 16 4760 Last post April 23, 2015, 08:53:14 PM
by PrimeTimer
Please sign a petition to support me and others on dialysis « 1 2 3 » Bill Peckham 56 25190 Last post July 22, 2009, 12:13:02 AM
by Hanify
Video from RSN presenting the concerns about expanding the dialysis bundle Bill Peckham 11 8757 Last post February 15, 2009, 04:46:46 PM
by dialysisbiller
QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb Bill Peckham 0 4626 Last post August 28, 2011, 06:25:59 PM
by Bill Peckham
New blog post from DaVita CMO on quality of life cattlekid 5 4484 Last post May 09, 2012, 08:01:40 PM
by dialysisadvocate
Which charity to donate to? cattlekid 11 5691 Last post May 12, 2012, 11:04:50 AM
by smcd23
research for BK Polyoma Virus cure cmazure 3 6929 Last post March 24, 2009, 06:52:49 AM
by Zach
Anyone PERSONALLY know anyone in advocacy in San Francisco area? CW 1 998 Last post January 15, 2017, 12:26:08 PM
by Michael Murphy
Questions dialysisadvocate 15 5904 Last post May 09, 2012, 07:50:48 PM
by dialysisadvocate
Living Kidney Donation and Sharing Your Story (Free Talk) EndPKD 0 2257 Last post March 08, 2013, 05:59:44 PM
by EndPKD
Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada EndPKD 2 4781 Last post February 27, 2012, 05:22:00 PM
by EndPKD
Keeping a relationship strong while dealing with kidney transplant issues Everlasting 7 7203 Last post August 12, 2009, 06:35:33 PM
by kellyt
Your support and loving kindness Everlasting 3 5106 Last post September 26, 2009, 12:32:14 PM
by thegrammalady
expectations and reassurances re stem cell benefits Everlasting 4 5598 Last post January 04, 2010, 12:03:24 PM
by CCStan
establishing an informal support group Everlasting 3 5419 Last post July 31, 2009, 10:17:44 AM
by peleroja
perseverence - donor searching Everlasting 4 5403 Last post October 22, 2009, 06:36:16 PM
by okarol
financially supported airfares for out of province/country treatments Everlasting 1 4941 Last post August 21, 2009, 03:11:12 AM
by kimcanada
cell phones and sense of well-being Everlasting 0 4940 Last post August 11, 2009, 10:28:27 AM
by Everlasting
Help! a stroke has entered the picture! Everlasting 7 5706 Last post September 18, 2009, 05:28:07 PM
by Bill Peckham
meeting the costs of stem cell therapy Everlasting 0 4830 Last post November 16, 2009, 04:13:50 PM
by Everlasting
the nerve of people mistreating the elderly patients, amoung others... gothiclovemonkey 9 3053 Last post May 16, 2014, 06:50:14 PM
by Charlie B53
Patients influencing quality of care hatedialysis2 10 2244 Last post May 16, 2016, 05:11:25 PM
by Simon Dog
Senate Bill 2320 isurvived 0 2670 Last post April 20, 2008, 06:31:10 AM
by isurvived
My homework assignment RE: Etta's Gift jbeany 5 5147 Last post December 20, 2010, 08:37:29 PM
by kellyt
Call to Action via NKF re proposed Commisioning. Act Now JW77 9 2411 Last post January 29, 2015, 02:30:51 PM
by okarol
Etta's Gift Business Card kellyt 2 4666 Last post December 20, 2010, 06:08:41 PM
by jbeany
Who needs the help more? Opinions please... kellyt 10 6197 Last post September 18, 2010, 06:54:39 AM
by kellyt
Sign Petition- US House of Reps: H.R.3976--Dialysis Help kickingandscreaming 3 910 Last post April 13, 2018, 09:21:54 AM
by iolaire
I need help really bad kidneyless_In_PA 7 6281 Last post August 01, 2009, 12:26:26 PM
by kidneyless_In_PA
Getting hemodialysis unit in your own town littlesister 3 5076 Last post November 18, 2009, 01:17:21 PM
by Hanify
Los Angeles Walk for PKD livecam 4 4231 Last post October 07, 2008, 05:15:20 AM
by pelagia
2nd Annual NxStageUsers Meet-Up and Conference M3Riddler 0 4616 Last post August 20, 2011, 02:13:13 PM
by M3Riddler
Home Dialysis Actin Plan for Bundling M3Riddler 0 4959 Last post October 28, 2009, 09:32:10 PM
by M3Riddler
FREE HDC Webinar: Treatment Options & Informed Consent M3Riddler 0 5067 Last post August 12, 2009, 09:43:32 PM
by M3Riddler
NxStageUsers Announces 2nd Annual Meet-Up and Conference M3Riddler 0 4693 Last post April 12, 2011, 06:57:03 PM
by M3Riddler
Passive Advocay Meinuk 11 7431 Last post June 21, 2010, 10:38:15 PM
by natnnnat
Adventures on E-bay (yes, this is advocacy!) Meinuk 5 5839 Last post January 05, 2012, 05:51:49 AM
by Meinuk
DC Diary: Bringing Kidney Disease to Capitol Hill Meinuk 1 5446 Last post February 17, 2010, 07:04:32 PM
by paris
When did the NKF become the National Transplant Foundation? « 1 2 » Meinuk 33 16258 Last post June 10, 2010, 06:45:16 AM
by Meinuk
"A unified approach" MooseMom 10 6734 Last post January 06, 2011, 07:45:13 PM
by MooseMom
RSN bracelets honoring our Okarol! MooseMom 6 3997 Last post November 05, 2012, 01:40:24 AM
by natnnnat
Is this naughty? MooseMom 10 6439 Last post October 11, 2010, 10:43:29 PM
by okarol
QUESTIONS FOR THE CONGRESSMAN MooseMom 8 6283 Last post March 18, 2011, 10:35:29 PM
by okarol
It's always either cops or cancer MooseMom 3 2883 Last post January 05, 2013, 06:17:36 PM
by boswife
Outdated or no? MooseMom 11 5297 Last post May 12, 2012, 05:43:05 PM
by MooseMom
Are you on the road to transplant? natlarson 4 5214 Last post October 12, 2010, 05:39:36 PM
by MooseMom
AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info natnnnat 0 3692 Last post May 02, 2012, 08:50:45 PM
by natnnnat
Informed consent natnnnat 4 6463 Last post July 08, 2010, 07:59:31 PM
by cariad
Please support lifetime Medicare Coverage for transplant drugs noahvale 8 6175 Last post April 10, 2013, 07:39:35 PM
by Bill Peckham
AAKP's 41st Annual Meeting Sept. 25-27 in Nashville noahvale 4 1167 Last post September 15, 2015, 05:16:08 AM
by noahvale
HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST] nsdq 2 1385 Last post July 07, 2014, 10:41:30 AM
by SooMK
March 2009 PKD E-News: Today is World Kidney Day! okarol 0 4972 Last post March 12, 2009, 02:31:30 PM
by okarol
TRIO will be having a 3-day symposium in St. Louis Sept. 25-27 okarol 0 3837 Last post August 27, 2008, 12:40:51 PM
by okarol
Advocate for Kidney Patients - Join AKF’s Advocacy Network okarol 0 4683 Last post September 02, 2010, 08:03:23 AM
by okarol
Ask your Representative to Extend Immunosuppressive Drug Coverage okarol 8 6968 Last post June 20, 2009, 04:39:59 PM
by TiffanyJean
Tell Your Senators to Co-Sponsor the Organ Donation Clarification Act okarol 1 5341 Last post November 18, 2008, 07:39:21 PM
by pelagia
Information on Disaster Relief and Assistance okarol 0 2403 Last post July 02, 2008, 03:39:43 AM
by okarol
World Kidney Day 2010 okarol 2 4951 Last post March 01, 2010, 12:54:12 PM
by okarol
Free Webcast: Cardiovascular disorders in patients with chronic kidney disease okarol 0 5057 Last post December 05, 2008, 11:58:37 AM
by okarol
Are you looking for ways to educate others about kidney disease? okarol 3 5278 Last post February 01, 2011, 11:56:16 PM
by okarol
NKF Calls for Action in Organ Donation “END THE WAIT!” Campaign okarol 3 5841 Last post February 20, 2009, 05:38:26 PM
by karen547
UNOS: Policy Proposals Issued for Public Comment okarol 0 4765 Last post September 24, 2011, 02:50:48 PM
by okarol
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 1 3300 Last post July 02, 2008, 09:59:58 AM
by pelagia
NEW BOOK: “Giving Life” - compelling stories about organ transplantation okarol 3 4307 Last post July 29, 2008, 07:12:31 PM
by Chris
Immunosuppressive Drug Coverage Legislation Introduced okarol 2 5232 Last post April 06, 2009, 10:07:07 PM
by Rerun
Make Your Voice Heard About Allocation for Kidney Transplant okarol 0 4425 Last post November 03, 2008, 10:55:45 AM
by okarol
UNOS public comments accepted until Sept. 14, 2009 okarol 1 5321 Last post August 03, 2009, 12:16:08 AM
by Chris
OPTN/UNOS meetings are open to the public okarol 1 4917 Last post September 11, 2009, 11:26:51 PM
by Chris
Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar okarol 0 5223 Last post April 28, 2011, 08:53:48 AM
by okarol
A Letter to President Barack Obama - The Ten Point Plan: Renal Patient’s View okarol 5 6243 Last post March 09, 2009, 11:18:58 AM
by Bill Peckham
Creating Change for the Future okarol 14 8578 Last post August 28, 2008, 09:17:27 PM
by pelagia
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 0 4734 Last post September 10, 2010, 05:05:49 PM
by okarol
Opinions needed from living donors okarol 0 4924 Last post November 19, 2008, 04:48:26 PM
by okarol
OPTN/UNOS Policy Proposals Distributed for Public Comment okarol 1 4876 Last post October 15, 2009, 03:34:14 PM
by Sunny
CMS End Stage Renal Disease (ESRD) Open Door Forum okarol 1 5942 Last post February 15, 2009, 04:35:34 PM
by dialysisbiller
Medigap Supplemental Policy okarol 1 4288 Last post July 02, 2008, 08:45:01 AM
by Zach
Open Door Forum Panel - development of new quality measures for ESRD okarol 0 5154 Last post February 05, 2010, 06:50:08 PM
by okarol
CONGRESS: Immunosuppressive Drug Coverage for Kidney Transplant Patients okarol 11 6818 Last post July 02, 2008, 08:21:17 PM
by pelagia
Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy okarol 4 5425 Last post April 29, 2010, 05:02:46 PM
by Meinuk
Free Webinar with PKD Expert Dr. Ronald Perrone okarol 0 4227 Last post October 07, 2008, 11:24:56 AM
by okarol
Tell Congress to Support Organ Donation Programs okarol 0 2577 Last post April 27, 2007, 08:29:52 AM
by okarol
PKD Foundation: Learn the latest news and information about kidney transplants okarol 0 5122 Last post February 25, 2009, 05:49:44 PM
by okarol
Join George Lopez and his celebrity friends okarol 0 5191 Last post March 10, 2009, 01:09:45 PM
by okarol
OPTN: Public comment is needed on these current proposals okarol 0 3960 Last post March 16, 2012, 11:13:41 AM
by okarol
Oprah recommends Giving Life okarol 2 4861 Last post November 17, 2008, 01:23:13 PM
by okarol
Policy Proposals Issued for Public Comment okarol 0 4737 Last post February 06, 2009, 02:11:12 PM
by okarol
Free lapel pins - organ donation - April is National Donate Life Month « 1 2 » okarol 42 26030 Last post June 08, 2011, 12:08:05 PM
by okarol
Public Comment: Deceased donor initiated KPD chains okarol 0 727 Last post August 11, 2017, 11:47:15 PM
by okarol
ProPublica launches a new patient safety section okarol 0 3063 Last post September 24, 2012, 01:24:23 AM
by okarol
World Kidney Day - videos found on the internet okarol 1 5030 Last post March 16, 2009, 05:41:56 PM
by Sluff
Senate Passes PKD Awareness Week okarol 1 4131 Last post September 25, 2008, 02:55:16 PM
by willieandwinnie
OPTN/UNOS: Upcoming kidney allocation public forum okarol 0 4995 Last post November 21, 2008, 10:35:37 AM
by okarol
A California dialysis tech training school: Whats good and bad about people? okarol 0 6170 Last post January 14, 2011, 11:09:56 PM
by okarol
Organ donors and health insurance - fact or spam?? okarol 2 5038 Last post October 21, 2009, 05:44:15 AM
by tyefly
UNOS - participate in the policy-making process okarol 2 3073 Last post July 02, 2008, 09:49:16 AM
by pelagia
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