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1
Political Debates - Thick Skin Required for Entry / Re: Brexit to go?
« Last post by kristina on Today at 03:41:51 AM »
.... suspicion has it that the whole "circus" around Brexit is merely used as a tactical "magic trick" to distract/divert our attention from something much more important, which is supposed to be happening right now in front of our eyes without being noticed ...

Now I would like to know : What is it really all about ?  ???

Could anyone please enlighten me ?

Thank you.
2
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by kristina on Today at 01:52:49 AM »
Hello and good luck for tomorrow with your lab-tests and I am glad that you are determined to take "things" a bit more easy during the first year after your transplant.
Good-luck-wishes from Kristina. :grouphug;
3
Dialysis: Spouses and Caregivers / Re: What To Surprise Them With?
« Last post by kristina on Today at 01:49:11 AM »
Hello PrimeTimer,
I really enjoyed reading your lovely post and it very much shows your care and your husband is a very lucky man! Your thoughts are very inspiring and I shall surprise my husband with his favourite sweetie, which is a very special "brownie" sweets-treat.
Thanks for the inspiration from Kristina. :grouphug;
4
Dialysis: Spouses and Caregivers / What To Surprise Them With?
« Last post by PrimeTimer on Today at 12:03:49 AM »
Halloween is coming and I want to surprise my husband with some treats. I'm thinking of getting him either a tiny pumpkin basket or new coffee mug and filling it with small Halloween candy. Of course I will have to consider his diabetes and dialysis but figure a few small treats will be okay. Maybe some Sweet tarts, Werthers, mints, red cinnamon balls, lemon drops and a little candy corn. Can't leave out a bite size Butterfinger or Mr. Goodbar either (his old favorites). I just want to put a smile on his face and have a little fun with it. He loves it when I leave little lovey-dovey post it notes so thought I'd surprise him and leave him a goodie basket. Or goodie cup.

Anyone else going to surprise their precious little ghouls at home?  :)  This is gonna be fun!   
5
Dialysis: General Discussion / Re: My time has come?
« Last post by Riki on October 19, 2019, 11:26:37 PM »
You can set up the machine ahead of time, so that when it's time for bed, you just connect and you're done.  My mom used to do it for me when I worked nights.  She'd come into my apartment in the evening and set up my machine and go back home again (though sometimes she'd stick around for a while and play on my pogo account, cuz mine was paid and her wasn't).  When I got home around 4am, it was all ready for me.  When I moved home, we would take turns every night, setting it up.  We even timed each other, to see who could do it faster.  Mom could get it done in 4 minutes.  I couldn't get it below 7 minutes.
6
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by Aaisha.Dar on October 19, 2019, 02:19:57 PM »
Hi all,
Im writing to hopefully get some advice or insight on my situation. So im sure most of you know this is my second kidney transplant and I did have delayed graft function as well as acute rejection so I am undergoing plasmapheresis treatments.
With my first kidney transplant it was my dads kidney and immediately we saw signs of rejection so I did undergo plasmapheresis. After a year rejection occured but at this point it was irreversible and they removed the kidney and I was placed on dialysis.
With this recent transplant the only reason we started to see function in the new kidney was because of these treatments. What I am trying to say is I am afraid if we stop these treatments rejection sill will occur again. I dont want to have to do these treatments just to keep the kidney alive afterall I got the transplant to have a bit more freedom and improve my quality of life. As you can see I am double minded and stressed about this situation.
The good news is the doctor said we will just try plasma once next week as opposed to twice a week so lets see how that goes.

Hello,
I just wanted to mention that every kidney-transplant, just like every dialysis-treatment, is experienced by everyone in their own individual way differently ...

The most important "thing" for me to do, if I would experience such symptoms like yours, would be, to ask a nephrologist straight away and ask them kindly, what they think is going on with the new kidney and the reaction of the body to the new kidney  .... and what does he/she think about it. You could also ask them about their experiences with kidney-patients with symptoms like yours after the transplant etc. Please ask them about it. Perhaps they do not know about your distress?
I have also noticed that you have not yet mentioned the function of your new kidney? What does it suggest in your blood tests? Do you know ?

I do hope your kidney is doing well and please be aware, that most nephrologists warn their transplant-patients, that the first year can be very difficult and very confusing and apparently after one year the body "learns" to calm down after this huge kidney-transplant-upheaval.
Good-luck-wishes from Kristina. :grouphug;

Kristina,
At first my creatnine wouldnt move from 5 but ever since I started these treatments it has slowly trended down. I will get labs done Monday. I have also heard the first year is the hardest so I need to remember to try to take things easy and be prepared and stay on top of things.
7
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by kristina on October 18, 2019, 01:50:11 PM »
Hi all,
Im writing to hopefully get some advice or insight on my situation. So im sure most of you know this is my second kidney transplant and I did have delayed graft function as well as acute rejection so I am undergoing plasmapheresis treatments.
With my first kidney transplant it was my dads kidney and immediately we saw signs of rejection so I did undergo plasmapheresis. After a year rejection occured but at this point it was irreversible and they removed the kidney and I was placed on dialysis.
With this recent transplant the only reason we started to see function in the new kidney was because of these treatments. What I am trying to say is I am afraid if we stop these treatments rejection sill will occur again. I dont want to have to do these treatments just to keep the kidney alive afterall I got the transplant to have a bit more freedom and improve my quality of life. As you can see I am double minded and stressed about this situation.
The good news is the doctor said we will just try plasma once next week as opposed to twice a week so lets see how that goes.

Hello,
I just wanted to mention that every kidney-transplant, just like every dialysis-treatment, is experienced by everyone in their own individual way differently ...

The most important "thing" for me to do, if I would experience such symptoms like yours, would be, to ask a nephrologist straight away and ask them kindly, what they think is going on with the new kidney and the reaction of the body to the new kidney  .... and what does he/she think about it. You could also ask them about their experiences with kidney-patients with symptoms like yours after the transplant etc. Please ask them about it. Perhaps they do not know about your distress?
I have also noticed that you have not yet mentioned the function of your new kidney? What does it suggest in your blood tests? Do you know ?

I do hope your kidney is doing well and please be aware, that most nephrologists warn their transplant-patients, that the first year can be very difficult and very confusing and apparently after one year the body "learns" to calm down after this huge kidney-transplant-upheaval.
Good-luck-wishes from Kristina. :grouphug;
8
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by gilders on October 18, 2019, 11:33:08 AM »
Hi Aaisha,
I'm sorry I can't give you any useful advice, but wanted to say that I hope things settle soon. I'm just over 6 months post transplant and must admit I was VERY scared when it looked like I was having a rejection episode and would hate to be in the position you are in.

Please keep us updated.
9
Dialysis: General Discussion / Re: My time has come?
« Last post by Mr. B 123 on October 18, 2019, 11:01:23 AM »
Well it has been 3 weeks on PD, I am getting the hang of the entire process.  Lots of stuff to get ready to start and to disconnect from the machine.  Takes about 9 hours connected to the PD machine but then you have to load the solution wait for it to warm up and then do all the things to disconnect and put everything away so right now it takes a total of 11 hours from the time I get on the machine until I can walk out of the house to go to work, a doctor appointment or church.  Had a 7:30 a.m. doctor appointment last week and I had to be on the machine at 8:00 p.m. to give me time to shower and everything and then drive to the doctor's office.  I am learning to plan my time ahead so I can be ready to go, I am not complaining just have to make adjustments to get out of the house on time.  Over all the dialysis center says everything looks good, weight, BP and all of the other tests.  Have to do the P.E.T. test next week, that will be an all day event as I need to be at the dialysis center every 2 hours, it will be a full day.  I thank God and my family for being there with me thru this process.  That is my latest update on my PD saga, thanks for listening to my rant.  Take care!
10
Dialysis: Home Dialysis / Anyone experimented with intermittent or incremental hemo?
« Last post by rcjordan on October 17, 2019, 02:32:22 PM »
Backstory: A few weeks ago, due to a screw-up with a replacement cycler delivery, I had to skip 3 sessions.  I did fine, no detrimental effects during or after. Labs 10-12 days afterward came in within range.  Prior to this, my urine output had been dwindling --down to 800ml from 1.3L.  Being off session seemed to kick-start my output, I even had one 1.7L day.  So. I went researching in order to have something authoritative to present to my neph when I tell him I want to experiment.  Found these:

Incremental approach to hemodialysis: twice a week, or once weekly hemodialysis combined with low-protein low-phosphorus diet?. - PubMed - NCBI
https://www.ncbi.nlm.nih.gov/pubmed/26845205


Incremental haemodialysis | Oxford Academic
https://academic.oup.com/ndt/article/30/10/1639/2337128
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