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1
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by kristina on Today at 01:50:11 PM »
Hi all,
Im writing to hopefully get some advice or insight on my situation. So im sure most of you know this is my second kidney transplant and I did have delayed graft function as well as acute rejection so I am undergoing plasmapheresis treatments.
With my first kidney transplant it was my dads kidney and immediately we saw signs of rejection so I did undergo plasmapheresis. After a year rejection occured but at this point it was irreversible and they removed the kidney and I was placed on dialysis.
With this recent transplant the only reason we started to see function in the new kidney was because of these treatments. What I am trying to say is I am afraid if we stop these treatments rejection sill will occur again. I dont want to have to do these treatments just to keep the kidney alive afterall I got the transplant to have a bit more freedom and improve my quality of life. As you can see I am double minded and stressed about this situation.
The good news is the doctor said we will just try plasma once next week as opposed to twice a week so lets see how that goes.

Hello,
I just wanted to mention that every kidney-transplant, just like every dialysis-treatment, is experienced by everyone in their own individual way differently ...

The most important "thing" for me to do, if I would experience such symptoms like yours, would be, to ask a nephrologist straight away and ask them kindly, what they think is going on with the new kidney and the reaction of the body to the new kidney  .... and what does he/she think about it. You could also ask them about their experiences with kidney-patients with symptoms like yours after the transplant etc. Please ask them about it. Perhaps they do not know about your distress?
I have also noticed that you have not yet mentioned the function of your new kidney? What does it suggest in your blood tests? Do you know ?

I do hope your kidney is doing well and please be aware, that most nephrologists warn their transplant-patients, that the first year can be very difficult and very confusing and apparently after one year the body "learns" to calm down after this huge kidney-transplant-upheaval.
Good-luck-wishes from Kristina. :grouphug;
2
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by gilders on Today at 11:33:08 AM »
Hi Aaisha,
I'm sorry I can't give you any useful advice, but wanted to say that I hope things settle soon. I'm just over 6 months post transplant and must admit I was VERY scared when it looked like I was having a rejection episode and would hate to be in the position you are in.

Please keep us updated.
3
Dialysis: General Discussion / Re: My time has come?
« Last post by Mr. B 123 on Today at 11:01:23 AM »
Well it has been 3 weeks on PD, I am getting the hang of the entire process.  Lots of stuff to get ready to start and to disconnect from the machine.  Takes about 9 hours connected to the PD machine but then you have to load the solution wait for it to warm up and then do all the things to disconnect and put everything away so right now it takes a total of 11 hours from the time I get on the machine until I can walk out of the house to go to work, a doctor appointment or church.  Had a 7:30 a.m. doctor appointment last week and I had to be on the machine at 8:00 p.m. to give me time to shower and everything and then drive to the doctor's office.  I am learning to plan my time ahead so I can be ready to go, I am not complaining just have to make adjustments to get out of the house on time.  Over all the dialysis center says everything looks good, weight, BP and all of the other tests.  Have to do the P.E.T. test next week, that will be an all day event as I need to be at the dialysis center every 2 hours, it will be a full day.  I thank God and my family for being there with me thru this process.  That is my latest update on my PD saga, thanks for listening to my rant.  Take care!
4
Dialysis: Home Dialysis / Anyone experimented with intermittent or incremental hemo?
« Last post by rcjordan on October 17, 2019, 02:32:22 PM »
Backstory: A few weeks ago, due to a screw-up with a replacement cycler delivery, I had to skip 3 sessions.  I did fine, no detrimental effects during or after. Labs 10-12 days afterward came in within range.  Prior to this, my urine output had been dwindling --down to 800ml from 1.3L.  Being off session seemed to kick-start my output, I even had one 1.7L day.  So. I went researching in order to have something authoritative to present to my neph when I tell him I want to experiment.  Found these:

Incremental approach to hemodialysis: twice a week, or once weekly hemodialysis combined with low-protein low-phosphorus diet?. - PubMed - NCBI
https://www.ncbi.nlm.nih.gov/pubmed/26845205


Incremental haemodialysis | Oxford Academic
https://academic.oup.com/ndt/article/30/10/1639/2337128
5
Introduce Yourself / Re: I have been a Member since 2006, I wanted to revisit and share
« Last post by SooMK on October 17, 2019, 01:53:38 PM »
Thank you for this message of hope! It is so wonderful to hear.
6
Good to read such a positive story. Thanx for your update, and great you are doing so well.


Love, Cas
7
Dialysis: Transplant Discussion / Re: Few conerns
« Last post by cassandra on October 17, 2019, 11:19:19 AM »
Hi Aaisha I understand your stress etc in the situation you find yourself in. However as your Dr said to try 1x a week with plasmapheresis next week, I would see that as a positive.


Lots of love, luck and strength, Cas


   :flower;
8
Dialysis: Transplant Discussion / Few conerns
« Last post by Aaisha.Dar on October 17, 2019, 10:47:33 AM »
Hi all,
Im writing to hopefully get some advice or insight on my situation. So im sure most of you know this is my second kidney transplant and I did have delayed graft function as well as acute rejection so I am undergoing plasmapheresis treatments.
With my first kidney transplant it was my dads kidney and immediately we saw signs of rejection so I did undergo plasmapheresis. After a year rejection occured but at this point it was irreversible and they removed the kidney and I was placed on dialysis.
With this recent transplant the only reason we started to see function in the new kidney was because of these treatments. What I am trying to say is I am afraid if we stop these treatments rejection sill will occur again. I dont want to have to do these treatments just to keep the kidney alive afterall I got the transplant to have a bit more freedom and improve my quality of life. As you can see I am double minded and stressed about this situation.
The good news is the doctor said we will just try plasma once next week as opposed to twice a week so lets see how that goes.
9
Thank you for coming back to share your story.  I've emailed your update to my wife as its a good positive story.
10
Introduce Yourself / Re: Introducing myself...Dialysis Director
« Last post by Jaybird on October 17, 2019, 07:06:14 AM »
Home Hemo and PD are awesome for the mental health of the patient if they can swing it. Its been so long since I had dialysis, but I remember it was depressing at the clinic. I went back before they had smart phones though, things hopefully have gotten better.
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