I Hate Dialysis Message Board

Off-Topic => Other Severe Medical Conditions => Topic started by: UkrainianTracksuit on January 13, 2021, 03:19:43 AM

Title: Hematologist now...
Post by: UkrainianTracksuit on January 13, 2021, 03:19:43 AM
My husband went for blood work last week. It was a general requisition for a CBC and basic stuff. He had pre-surgical blood work prior and I guess that looked fine because no one said anything.

Well, now, his GP called to say (according to my husband) that "all his blood cells are out of whack." I asked for specifics but he didn't have any.  :stressed; They've referred him to a hematologist. They are going to book him for a bone marrow aspiration and biopsy. That didn't blow my mind too much because I know they just want to see if it is healthy and it is sometimes done for basic issues like anemia.

The question that got me was that they asked him if he had a family history of leukemia. He said no, but then realized a cousin had it (bone marrow transplant and recovered now.) Not exactly a family history, but you know.

So wtf is going on here? Not like anyone knows but the unknown and his male lack of specifics has me worried.
Title: Re: Hematologist now...
Post by: PrimeTimer on January 13, 2021, 06:27:11 PM
Wow. I don't like the sound of this, UT. Hope they can provide you with more details. Seems like a bone marrow biopsy is an invasive test and that they'd have good reason to want to perform one. Maybe as a "process of elimination"? A Hematologist will get to the bottom of it. My husband was once sent to a Hematologist and his whacky labs at the time turned out to be nothing. Or at least not anything on the scale that they were thinking. Maybe that's what they are doing in your husband's case, just wanting to be thorough. Is the cousin that had Leukemia a first cousin? Just curious. Altho I don't know them I apparently have 2 first cousins who were also diagnosed with auto-immune disorders and I thought that interesting since there was no talk of any other familial history of such disorders. Of course, generations ago people discussed their various illnesses much differently than they do today. Back in the day people either had no access to a doctor or couldn't afford one and in a lot cases, didn't think they needed to see one. They just went about their business as if nothing was wrong and kept going until they couldn't and by then it would be too late to do anything about it. Times (and people) have indeed changed. So I am glad that your husband is actually having things looked into and by a specialist. I'll be thinking of you. Please let us know what you find out (if you want to share it). We're here for you. 
Title: Re: Hematologist now...
Post by: kristina on January 14, 2021, 01:44:45 AM
Hello Ukrainian Tracksuit,
I am hoping, that some mistake or misreading occurred with your husband's blood work last week, especially since his pre-surgical blood work not long ago seemed perfectly fine ?

Hopefully the doctors just want to make sure ... and I keep my fingers crossed and hopefully "things" go alright for both of you.

Take great care and best wishes from Kristina. :grouphug;

Title: Re: Hematologist now...
Post by: UkrainianTracksuit on January 14, 2021, 05:47:17 AM
Thank you for your thoughts and kind words, Pea Tea and kristina.

It would be really nice that his statement that "all his cells are out of whack" could have been expanded upon. Dealing with doctors, I know they must have mentioned the basics (red or white) or even leukocytes when- God forbid - leukemia was mentioned. Yet, when I asked "which ones?", he gives the caveman answer of "all of them."

While I truly hope it is a fluke like kristina mentions, I also know a bone marrow biopsy wouldn't be called for the heck of it. I am siding with Pea Tea right now that it is a process of elimination. One thing I forgot to mention in the original post was that a Vitamin D test has specifically been ordered (besides other blood work) and anytime I look up hematology and Vitamin D, oncology topics come up.

And yep, Pea Tea, it was a first cousin, but at the time everyone just chalked it up to the fact he lived/worked in the one of the most polluted cities in the world. They had to move out of there first so that he could get the bone marrow transplant, recover, and then somewhere "better." That sounds so easy to a lot of people, but it was a rough time for working class Russians. You do mention a really interesting point about family histories. I remember when my relatives lived in multi-generational housing that they spoke about health conditions in this person and that. That died out when the elders passed, but through extended family, I've had a handful of (older) family members also on dialysis and a second cousin with a kidney transplant. Never met him, but hey. My mother has gone as for to say if they had genetic testing back then, she wouldn't have got pregnant.  :P

Anyway, I've hold him not to tell his mother until he knows for sure. That means after he gets booked for the biopsy. This will make me the evil one at the end of the day, but it is better than making her worry over his vague information right now.
Title: Re: Hematologist now...
Post by: MooseMom on January 14, 2021, 10:13:28 AM
What?  WHAT?????
Title: Re: Hematologist now...
Post by: PrimeTimer on January 14, 2021, 07:55:03 PM
I agree with you, UT. Better to wait to tell his mother. He doesn't need (and you don't either) any added stress from a worried mother (and any other family members she tells) who will probably ask a million questions that he can't answer right now. I know this won't sound right but hopefully he is just anemic and it's nothing else. Maybe because he is Russian and a first cousin had Leukemia they want to rule it out. And over time a low Vit D level can affect bones so I imagine when it does that it can affect marrow. For instance, with my having Sarcoidosis they also have to watch my Vit D levels, plus of course the Prednisone I've been on for over a year can start affecting my bones and marrow. And speaking of Prednisone, does hubby take any kind of steroids for muscle building? Sorry, didn't know how else to ask that, you don't have to answer if too personal. But we all know what steroids can do. These days I am as white as a sheet...I haven't been able to even walk outdoors and I know my Vit D level had been low months back. I was on prescription strength but need to follow up and haven't been able to yet. I fear what the low level (and prednisone) might be doing to me. Is hubby pale or gotten more pale? I imagine a lot of people have just from being on these Covid lockdowns and quarantines. Probably by next year the whole world will need some extra Vitamin D. The beaches and parks are going to be crowded...

Please keep posting and tell us how you are doing. Sending positive thoughts and prayers your way.     
Title: Re: Hematologist now...
Post by: UkrainianTracksuit on January 15, 2021, 03:05:14 AM
Agreed about his mother. She would blow the whole situation out of proportion. She'd demand answers and there are none at the moment. You know, it's -43 C where they are right now and I think she uses drama to keep them warm.

I'm in line with your thinking that I am hoping it is something like anemia or something else not so bad, but I guess still bad enough. It's odd that I'm hoping he has an infection even though I know that can lead to sepsis (which is deadly). We should get a call any day now for his appointment time, but we also have new stay at home/state of emergency orders due to corona, so I have no idea. It's not funny, but it is, in that he is scared the procedure is going to hurt.

Nope, he doesn't take any steroids for muscle building or any supplements. And thank goodness, if he ever was one of those "bro types", I'd have divorced him! He doesn't take any medications as he has been healthy as a horse. That's often how some of the great horses have gone down though. He does drink regularly, but not to "problem drinker" limits. Since legalization, he smokes pot from time to time too. And it's totally fine to ask these questions!

And yep, he has been cooped up a lot so he is paler than usual. Usually, during the winter, he has his winter sports that get him outside, but even that is not possible because his shoulder is healing. And to be honest, it is taking forever to heal, even the incision wound. The other weird symptom he reports is that his mouth tastes like salt all the time. On its own, not a big deal, but that also hints at oral bleeding, and we all know what they say about bleeding gums and leukemia. Not going to jump to conclusions though.

Thank you for the kind thoughts and prayers. Heaven knows we need them.
Title: Re: Hematologist now...
Post by: UkrainianTracksuit on January 20, 2021, 05:56:09 PM
Well, tomorrow is the big day. Booked for his biopsy and aspiration at the hospital tomorrow. Sucks that he has to go alone because of corona. Hopefully, though, that means answers will come soon.
Title: Re: Hematologist now...
Post by: kristina on January 21, 2021, 01:58:56 AM
Best of luck wishes to you both from Kristina and take good care and hopefully the biopsy goes well! :grouphug;
Title: Re: Hematologist now...
Post by: MooseMom on January 21, 2021, 12:28:46 PM
How did things go, You Tea?
Title: Re: Hematologist now...
Post by: UkrainianTracksuit on January 21, 2021, 03:49:31 PM
Hehehe, You Tea! Love it as long as it's not You Tea Eye!

Thanks for asking.

It was rougher than I thought it would be although I completely understand the procedure. How dumb of me.

He obviously misinterpreted the instructions or didn't understand them. He drove there when he should have had a ride. But that's a headache for another time...

He had IV sedation so he's out like a light for now. Tylenol for pain. No bathing for 24 hours. We have to be on the lookout for heavy bleeding (we were warned it is a distinct possibility with his CBC results), drainage, worsening pain and a fever. He has to take is really easy for a couple days, but then a general take it easy for a week.

So, a week away from physiotheraphy for his shoulder. When it rains, it pours. Ha!

And oh, more blood was pulled. Hopefully the results come sooner rather than later and this is all just one big giant non-cancerous or "nothing serious" medical mystery. My nerves can't take it.  :P
Title: Re: Hematologist now...
Post by: MooseMom on January 21, 2021, 04:50:50 PM
I'm glad he made it back home in one piece and is now in recovery mode.  I hope there are no nasty side effects from the procedure.

But, doesn't this seem so, well, random?  I mean, this has just come out of the blue, you know?  I'm still rather shocked by all of this, so I can well imagine what YOU must be feeling!  I am REALLY curious to find out what's going on, if anything.

I hope his physiotherapy is helpful.

Thanks for the update, and keep 'em coming.
Title: Re: Hematologist now...
Post by: UkrainianTracksuit on January 21, 2021, 05:42:51 PM
Yes, it IS indeed so very random and out of the blue. That's why I hope it's all just a big fluke in blood work results.

At any other period of time, I would think, "Well, he doesn't go to the doctor at all" so while it would be a shock, it wouldn't be so...shocking? It's more of a shock because he had indeed had pre-surgical blood work to check clotting and platelets. That had to have been "normal", right? No one said anything.

It's just when he went to his GP for a wound check-up/general check up for the first time in 500 years. I think he's only seen this GP twice (maybe three times?) since his time in the country. He didn't feel doctor appointments are necessary if you feel fine.

To be honest, I don't know what to think at all. Half in the camp that it's all a big mistake and the other half in "I hope it's nothing serious and since he doesn't have a lot in his medical file, they just want to narrow things down."
Title: Re: Hematologist now...
Post by: enginist on February 21, 2021, 08:51:23 PM
It's been a month with no followup.  What happened?