I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Airellewolf on May 11, 2020, 12:35:10 PM

Title: Introduction
Post by: Airellewolf on May 11, 2020, 12:35:10 PM
Hi all and hope you all are feeling the best you can .

Started pd in Oct 2018 . Quickly went from death warmed over to feeling better . As time went on I felt even better and doc slowly dropped my sessions from 7 nights to 6 and every few months to 5 , 4 , 3 , 2  . Me feeling amazingly well and getting no Uf drainage to speak of I dropped it to 1 and doc took me off dialysis 3 weeks ago . And while now I don't feel what you would call bad , I had forgotten how queasy your stomach can feel and I certainly wouldn't say I feel amazing but not bad .  Did not want to call clinic but did and they said I was no longer their patient and had to talk to nephrology now , sigh , I feel like an unwanted step child or something now . Went from having 10 people care about me to make an appointment . I was also told that this was possibly temporary , which of course I knew , and when I call Nalco hoping they tell me to do a treatment < probably going to do 1 tomorrow because machine still here and hope I feel better better >I truly got nothing .

But that's the story for now !
Title: Re: Introduction
Post by: Cupcake on May 12, 2020, 08:08:09 AM
Congrats on weaning off dialysis! That rarely happens with hemodialysis-another plug for peritoneal (of course you must have had good residual function to begin with)

Don't hesitate to yell and holler until someone hears you--call your previous nephrologist ASAP and get evaluated. Should be easy to restart since you have the equipment and have the skills to do it.

Best of luck!
Title: Re: Introduction
Post by: PrimeTimer on May 19, 2020, 11:23:50 PM
 :welcomesign; Welcome to the site, Airellewolf! Hope you keep us posted.
Title: Re: Introduction
Post by: cassandra on May 20, 2020, 10:06:19 AM
Welcome to the site Airellewolf


How are you getting on now?

Take care, Cas