I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: gilders on April 12, 2019, 12:26:32 PM

Title: Looks like I'm rejecting new kidney
Post by: gilders on April 12, 2019, 12:26:32 PM
I'm 3 1/2 weeks post transplant and since the beginning of this week my kidney function has been declining from 47% to 36%.
The transplant team suspect that I'm having an acute rejection to the kidney. I need to return tomorrow morning for the fourth lot of blood tests this week and if no improvement they will re-admit me to the ward and begin anti-rejection treatment. Usually they would biopsy the kidney before starting treatment, but as it's the weekend and they're so certain it's rejecting, they're going to start treatment immediately.

The best news is that acute rejection is often controllable. The bad news is that I am likely to be on high dose steroids for 6 months. I managed about 15 years of steroids on and off, but the for the last 10 years I've really struggled with them and feel awful on them. I expected to feel somewhat better after transplant, not worse. At the moment I feel physically very well, after all my function is at 36% and I've spent a long time before the transplant below 10 %.

I don't want this post to put anyone off getting a transplant. I'm still expecting to get this likely rejection under control and not require dialysis. I have no regrets, just really concerned about how bad I feel on steroids.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 12, 2019, 02:09:37 PM
I am so extremely sorry to hear this.  You are right in that acute rejection IS often treatable; transplant teams have a protocol for this occurrence ready at all time.  But that doesn't make it easier for you.

I'm sure that the proper response to your post is something along the line of, "Well, 6 months of high dose steroids is a small price to pay for a new kidney that works better."  But this sort of minimizes your past experience with steroids, which sounds pretty awful.  I'm sure it is a very daunting prospect.  I am assuming you've told your transplant team about how you have felt in the past on steroids; have they offered you any ideas on how to manage the anticipated side effects?  Is there anything that could make you feel better?

Good luck to you, gilders, and do let us know how you get on.  I'm wishing you the best of luck.  Please let us know how we can help.  I am feeling optimistic on your behalf. :2thumbsup;
Title: Re: Looks like I'm rejecting new kidney
Post by: kickingandscreaming on April 13, 2019, 08:24:49 AM
Really sorry to hear this. I hope it can be turned around-- at not too high a cost to you.
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 14, 2019, 08:01:19 AM
From what I understand -
There's 2 types of acute rejection, acute cellular rejection and antibody-mediated acute rejection. The acute cellular rejection responds well to steroids and the the antibody one is much trickier to control.
Unfortunately as they already new before my transplant that I have 1 antibody against the donor, it looks extremely likely that I have the complicated one.
I had IV steroids yesterday and today and my function has dropped very slightly again. I had a ultra sound scan yesterday which showed that I have good blood flow through the kidney, no blood clot and no massive lesions or anything that would cause these symptoms. This was good news as I don't think physical damage to kidney can be treated.
I will be having a biopsy tomorrow that should give some clearer answers. I am concerned that my original illness (vasculitis) may be relapsing as I'm showing some signs and this could cause permanent damage to the kidney. It is unlikely though as some of the anti-rejection meds are the same as those used for vasculitis, but it can't be ruled out until I've had the biopsy.

If it is my antibody attacking my kidney there is ways to combat this with plasma exchange and various strong drugs that will completely deplete my immune system. The problem is they can't keep my immune system so drastically suppressed for long (I would need to live in a bubble). So I think the plan will be to lower the immuno-suppresion and hope when my antibodies begin to build back up, they don't detect the new kidney. I really don't know what my chances are for that?
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 14, 2019, 08:57:10 AM
OK, so, they've ruled out physical damage caused by poor blood flow or clotting.  You are right; this is good news.  It's always good to be able to rule out possible scenarios.

I don't have any answers to your question about the success rate of the treatment plan you outlined (plasma exchange, etc.), but I am hoping that once YOU have the answer, you'll let us know.  I am saddened by your predicament, but I am also very interested to learn from it.  This is what IHD is for.  I've learned a lot from you in this discussion, so thank you for posting.  I look forward to reading more of your posts on this subject, and needless to say, I wish you the very best.

Good luck with the biopsy.  I hope your team gets some clear answers.
Title: Re: Looks like I'm rejecting new kidney
Post by: iolaire on April 14, 2019, 01:48:24 PM
Gilders sorry you are going through this. I hope the treatments end up working.
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 15, 2019, 10:36:45 AM
I had my third and final steroid infusion today.
Biopsy did not occur today as I'd expected for 2 reasons - 1. I had been told to cease warfarin on Saturday, but carry on with heparin jabs. I followed this plan, but was told today that the heparin has to cease the night before the biopsy (I had taken my heparin jab at 6pm yesterday) 2. The main reason - The biopsy had not even been booked.

As a day/outpatient the earliest they could book me in for biopsy would be Thursday. The problem with this is that biopsy results are ready the next day, except weekends and bank holidays. This friday is Good Friday and results wouldn't be ready until next Tuesday, i.e. after Easter Monday. This is leaving it too long in my and the dr's opinion.
As an inpatient you can jump the queue as an urgent case. I was due to be admitted tonight ready for biopsy on Tuesday, or Wednesday at the latest. BUT there is definitely no beds available on the renal ward. They are trying to get me on a general surgery ward, but as it stands there's is no bed available for me. This is a bit of a national crisis within the UK's NHS and has been going on for a few years now. I don't want to come across as anti-immigration and can't say for a fact that any of the beds are been taken up by immigrants, but realistically it is putting a massive strain on the NHS.
They have even said that a bed can't be guaranteed for me tomorrow.

I hate spending the night in hospital, especially when it's just to "jump the queue", but I really need this biopsy doing before Thursday, so appropriate treatment can commence this week, not from Tuesday next week!

My kidney function has been stable at 35% (it had dropped from 46% within 5 days) since I started IV steroids (500mg) each day for the last 3 days, but from tomorrow I will be on oral steroids at a MUCH lower dose. I don't know if this lower dose will keep my kidney function stable, or if it will begin to rapidly decline again.

If only there was an available bed and a slot for my biopsy, I would feel much safer!

Thank you for showing interest and wanting updates. It's helps as a release to report what I'm going through and hope it helps anyone else in a similar situation.
I'm still happy that I chose to have a transplant and hope my story doesn't put people off. I am a complicated case and most patients won't go through these difficulties. Even if the worse happens and I have to go on dialysis, I will know that I gave transplant my best shot!
Title: Re: Looks like I'm rejecting new kidney
Post by: Kathymac2 on April 15, 2019, 11:02:22 AM
I am so sorry you are going through all these difficulties. I am still hoping for a transplant (6+ years on the waiting list) so I find your posts very compelling.  I wish you all the best and hope that at the very least all of these bureaucratic issues get resolved quickly so that the doctors can get on with the business of saving your kidney 
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 15, 2019, 01:20:42 PM
Good luck Kathy. I hope you get the call soon. Is there anyone wiling to donate to you, but not compatible. If so, and they are willing, there are schemes that allow people to swap kidneys around with other couples to greatly increase chances of a match and have all the advantages of a planned live donor operation.
I am glad that my difficulties aren't making you second guess if transplant is for you. I'm still glad I chose to go for transplant rather than dialysis and certainly haven't given up on this new kidney.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 15, 2019, 01:27:51 PM
No one likes spending more time in the hospital than is absolutely necessary, but in your case, I think it's worth it to be able to get that biopsy ASAP.  You want to begin treatment soonest, and they can't do that without biopsy results.

There are few things more stressful than having to wait for results of this nature.

We are all wishing you the very best and are grateful for your updates.  Thank you!
Title: Re: Looks like I'm rejecting new kidney
Post by: Kathymac2 on April 15, 2019, 03:50:14 PM
Good luck Kathy. I hope you get the call soon. Is there anyone wiling to donate to you, but not compatible. If so, and they are willing, there are schemes that allow people to swap kidneys around with other couples to greatly increase chances of a match and have all the advantages of a planned live donor operation.
I am glad that my difficulties aren't making you second guess if transplant is for you. I'm still glad I chose to go for transplant rather than dialysis and certainly haven't given up on this new kidney.

Thanks gilders. At my age (69) I am not willing to ask for a kidney from a (living) younger person and everyone I know has health issues that preclude donation. So, I wait and hope my health doesn't go south before a match is found. All I can say is thank God for dialysis. Without it I wouldn't even have the option to wait for transplant.

Please keep posting as your health allows.  Sending all good thoughts.

Kathy
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 18, 2019, 02:26:47 AM
Some EXCELLENT news!

Went in for biopsy on new kidney yesterday. They did bloods to check my coagulation level and all the other bloods they usually take 3 times/week.
Amazingly my kidney function had shot up to 51% from 36%. I haven't had a function that high for many years. I hate the side effects of steroids, but if the last 3 days of IV steroids is the reason for this improvement, I'll have to stop seeing them as the devil's pills.

I asked if the biopsy was now necessary as the treatment seemed to be working. They still wanted to do it to get answers and confirm it was a rejection episode. If there's no sign of rejection, then steroids can stop, but I can't see what else it could have been.

The biopsy itself was much better than the previous ones I had in my back, on my original kidneys. But for 10mins to 2 hrs after, I was in a lot of pain. After lying flat on my back for 7 hours they let my wife bring me home at 10pm last night.

I just hope my function remains around 50%!
Title: Re: Looks like I'm rejecting new kidney
Post by: Cupcake on April 18, 2019, 07:40:07 AM
Congrats! hope the biopsy look good.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 18, 2019, 07:49:05 AM
Oh, this is terrific news!  I am so very happy for you!  What a relief!  I'm still curious to know what the biopsy shows.

Thanks again for letting us know, and please keep us posted!
Title: Re: Looks like I'm rejecting new kidney
Post by: iolaire on April 18, 2019, 08:53:25 AM
Amazingly my kidney function had shot up to 51% from 36%.

Good news.

How do they measure and report "kidney function" to you?  Is that a value you see in your labs or do they only communicate it to you with those terms?

I've never been given/told a measure like that, instead I'm always told (and can read on LabCorp or Quest laboratory patient portals) my Creatinine level, now settled in the 1.4 mg/dL with a "normal" Reference Range: 0.76-1.27 mg/dL. I'm also tested for eGFR If NonAfricn Am where my level of 61 is reported as normal in a Reference Range: >59 mL/min/1.73.  (The eGFR If Africn Am 70 normal - that doesn't apply to me.)  Additionally sometimes when they were calling on the phone they would report the BUN now 17 normal with Reference Range: 6-24 mg/dL.
Title: Re: Looks like I'm rejecting new kidney
Post by: Charlie B53 on April 18, 2019, 09:31:36 AM
Seems as though Prayers are working.

I will continue.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 18, 2019, 11:00:22 AM
I've never been given/told a measure like that, instead I'm always told (and can read on LabCorp or Quest laboratory patient portals) my Creatinine level, now settled in the 1.4 mg/dL with a "normal" Reference Range: 0.76-1.27 mg/dL. I'm also tested for eGFR If NonAfricn Am where my level of 61 is reported as normal in a Reference Range: >59 mL/min/1.73.  (The eGFR If Africn Am 70 normal - that doesn't apply to me.)  Additionally sometimes when they were calling on the phone they would report the BUN now 17 normal with Reference Range: 6-24 mg/dL.

Wait a minute.  I've never been near an egfr of 61!  The highest egfr I've ever had (and I also go through Quest's patient portal) was 58 this past October, and that was with my lowest ever creatinine 1.04 (I think these readings are outliers.)  My egfr usually hovers around 50 and my creatinine around 1.2, so with this in mind, I don't understand your readings of 61/1.4.   How can your egfr be that high with a creatinine also that high?  I'm guessing that age is a factor?  I'm probably older than you are!

I had a mysterious hike in creatinine a couple of years ago, and I had one reading of egfr 38/creatinine 1.42.  And you have an egfr of 61 with a creatinine at 1.4?  Do you think age is that big a factor (I am over 55, I'll say that much  :P)?  That's a pretty big discrepancy in our readings!  What do you think would explain that?  (All of my other values have been well within normal range for all of these years.)

Thanks for any thoughts you may have.  I'm a bit baffled.

edited to add:  I just found out from an NKF publication that "men have a higher GFR than women at the same level of serum creatinine...due to the higher average muscle mass and creatinine generation rate in men."  I guess that explains it, assuming this statement holds true for transplant patients, too.  So, I'm old AND female, which is a pretty sad state of affairs on just about every level.  Sad.  Still, I value my invisibility.  LOL!
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 18, 2019, 01:09:40 PM
Iolaire, your eGFR number roughly translates as a percentage of function.
Title: Re: Looks like I'm rejecting new kidney
Post by: iolaire on April 19, 2019, 05:12:53 AM
Thanks gilders.  Moosemom yes Iím male and turn 45 next month so I have sex and age going for me. I think Iíd take your creatinine!

My egfr was as low as 28 once with a creatinine at 1.4x, normally is closer to 51, but in the last few months has been just above 60.
Title: Re: Looks like I'm rejecting new kidney
Post by: UkrainianTracksuit on April 19, 2019, 06:54:08 AM
Sorry I am so late to this posting. Gilders, I am sorry for what you've been through but glad that treatment seems to be on the up and up!

I have some cellular rejection but there is a plan for that in place. I just don't know it yet. My egfr hasn't been influenced yet but you guys really scared me/got me thinking.

At what point did your egfr slide into the 50's and 60's? Was it right after transplant or did it decline after a few years? I see posts such as "I have never been near 61" and such. I'm a year past tx and my egfr has consistently been over 100. Using US measurements, my creatinine has been as low as 0.58 but often around 0.76. (There was a point I went down into the 80s egfr because I caught some strange virus they couldn't pinpoint.)

I know drugs slowly take their toll on a new kidney so I literally have anxiety about my number starting to fall. You guys are obviously doing well with your numbers though as you seem to feel good/keep active. I guess my numbers come down age. Kinda scared now though... guess I want to hoard all the function.
Title: Re: Looks like I'm rejecting new kidney
Post by: iolaire on April 19, 2019, 07:12:34 AM
At what point did your egfr slide into the 50's and 60's? Was it right after transplant or did it decline after a few years? I see posts such as "I have never been near 61" and such. I'm a year past tx and my egfr has consistently been over 100. Using US measurements, my creatinine has been as low as 0.58 but often around 0.76. (There was a point I went down into the 80s egfr because I caught some strange virus they couldn't pinpoint.)
Mine has always been at this level, same with creatinine.  Your creatinine is extremely good -  Normal creatinine clearance for healthy women is 88-128 mL/min. and 97 to 137 mL/min. in males (normal levels may vary slightly between labs). - https://www.medicinenet.com/creatinine_blood_test/article.htm .  Personally I'm not worried about my levels as they are in the just out of normal range.  But on the flip side I completely understand gilders's concerns, but I also hope/think that a person can enjoy a long healthily life with kidney function in the 30% range once its stabilized.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 19, 2019, 08:25:17 AM
UT, the most important think I've learned is that creatinine and egfr are not really the most important numbers to look at.  They are maybe the FIRST numbers to look at, but they are not the most important.  My numbers are only half of what yours are, and always have been, but ALL of my other lab values are perfect.  My blood pressure is perfect, my phos and potassium is perfect, my blood sugar is perfect, I am not anemic, my WBC counts are all normal, and all of my mineral values are normal (although my magnesium is on the low side of normal, despite taking supplements).
Title: Re: Looks like I'm rejecting new kidney
Post by: UkrainianTracksuit on April 19, 2019, 11:25:46 AM
Iolaire, yes, I agree that (once stabilized) a person can enjoy a pretty decent life around 30% eGFR. It gives freedom from dialysis and still relative liberty in regard to diet/travel/exercise/life in general. It's important though that any conditions that led to the renal failure in the first place are actively managed to keep that new kidney working.

And MooseMom, you're correct as well. My local neph told me that with creatinine levels this low, the number can bounce all over so I might not get a "great picture" at that moment but rather, a larger view that things are working well enough. As for working well enough, you're so correct in that other parameters matter too to illustrate a "happy kidney." If all is "balanced" as it should be, obviously things are well.

I guess going into this whole thing (I was pretty much rubber stamped onto the list; very little discussions with tx coordinator or surgeon) it was never discussed with me what to expect in regard to numbers. Obviously, docs can't predict this at all but I guess I have no idea of a successful threshold, if that makes sense. I honestly didn't know that around 60% was considered successful. No idea at all! To be honest, I have anxiety over the numbers, since it became such as focus in the years leading up to dialysis. For instance, my potassium and phosphorus were always on target and only my egfr/creatinine/urea and CBC showed something was up. Without that collection of tests, everything looked normal.

So, my post-tx blood work is very similar to my dialysis blood work, until it comes to the egfr/urea/creatinine. Blood pressure is a different story LOL. Seems as though some SPK tx patients get low blood pressure. With cellular rejection, it hasn't showed a change in numbers, but I at least know something is going on. So, numbers definitely can be deceiving. Better to approach it all more holistically.

At the end of the day, as long as a new kidney achieves whatever function, get off and stay off dialysis for awhile, the patient feels good and is able to live a more normal life, that is what matters. I just want to hoard all the function for me!  ;D
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 19, 2019, 02:19:59 PM
UT, your eGFR numbers look amazing to me. Before transplant I was down to just 8. Immediately after transplant it was 14, day after 32, 2 days after 41 and the first few weeks after I was moving around 44-49. Then I the drop from 47 - 36, 3 weeks post transplant.

All my other bloods are looking good and blood pressure is around 135/80 (but is jumping around a little). I would have never imagined a eGFR of 100, so I'm very happy with 51 and hope it stays around that number.
Title: Re: Looks like I'm rejecting new kidney
Post by: UkrainianTracksuit on April 20, 2019, 03:50:11 PM
Gilders, I hope that your new kidney stabilizes and allows you the best health for a long time!  :cheer: Also, it is wonderful that you have a team on top of it and making sure it all works out in the long run.  :) I understand what you mean about the BP jumping around but once all is stable, with a BP of 135/80, you'll be all set to go.

In my case, I guess I just have to accept what the docs say to be happy with a really good kidney (I am...) and don't go crazy asking existential questions over it. But it leads me to believe my donor was rather young or very (very) healthy. Sighhhh....
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 21, 2019, 06:36:48 AM
I have been very happy with my care and treatment and although things haven't gone smoothly, the drs and nurses have been on top of everything and reacted quickly.

Well, this was until Easter came into play!

As previously mentioned, a week last Monday my kidney function began to drop and by the Friday it had dropped from 47% to 36%. The drs believed this was rejection, but I was pleased how quickly they responded and the day after (last Saturday) I began treatment of 500mg IV steroids. This immediately stopped the decline and the day after my 3rd and final IV steroid infusion, my kidney functioned had jumped to 51%. It was on that day (last Wednesday) that I had the biopsy and changed to oral steroids (20mg). I expressed my concern that dropping from 500mg IV steroids to 20mg oral steroids seemed like a massive reduction. I was reassured that oral steroids worked differently and the dose wasn't really comparable.
Since last Wednesday I have been VERY worried. Firstly the biopsy result wasn't ready by the next day (Thursday). This means that due to Easter the earliest that anyone will look at the biopsy is next Tuesday. I went for a blood test yesterday (Saturday) and if my kidney function had of stayed stable at 51% I wouldn't have been concerned about the biopsy result delay. BUT within 3 days of dropping the 500mg IV steroids to 20mg oral steroids, my function has dropped 9% to 42%. If this rate continues, my function could be as low as 30% by Tuesday. If the biopsy doesn't get looked at on Tuesday, I feel that my function will drop to irreversible levels!
I feel at the moment I'm just sat at home with my kidney being rapidly rejected and nothing is being done (beyond 20mg steroids). There will only be a registrar dr in hospital at the moment and know that if I get to speak to him the reply will be that they don't know what course of action to take until they get biopsy result. I just hope it won't be too late by then!

My only option is to contact a dr on Tuesday when the hospital will be running at normal levels again and get him/her to push for my biopsy to be looked at asap.
I'm really not happy that, at least in the UK, hospitals (except A&E) grind to a complete halt during weekends and especially bank holidays. How they can morally expect patients who are in precarious positions to receive no care from Good Friday to the following Tuesday is beyond me. My wife works at a supermarket and she has to work bank holidays, yet people who have others lives in their hands can just say "no thanks, I fancy taking 4 days off in a row". They should of course not lose these bank holiday days, but should have them spread out throughout the year so that there is some limited cover for bank holidays.
Sorry about the rant, I'm just very concerned at the moment.
Title: Re: Looks like I'm rejecting new kidney
Post by: Cupcake on April 21, 2019, 11:44:37 AM
Maybe you would be a little reassured to remember that kidney function/failure is not especially linear; they are right to say that IV solumedrol is not the same as oral prednisone dosage wise

There is some margin of error in measuring kidney function (as all lab tests); I don't know what it is, but it may be as much as +/- 5%. So maybe it overestimated one time, the under estimated the next. Different labs, different machines, etc.

I would hope for the best and I am wishing you good luck. Meanwhile stay hydrated and enjoy the holiday!
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 25, 2019, 04:13:09 AM
I have some potentially excellent news!

The biopsy result is back and shows NO signs of rejection!!!
But, as always, with me, things are never quite so simple.
The surgeon was very pleased to inform me that there was no signs of rejection. He said there was some slight signs of damage to the tubules in the kidney, but this is quite common due to the trauma that the kidney goes through during the transplant process and there's a good chance function will improve again.
So all was looking great until he asked how long I'd been on steroids. He then realised that I'd started treatment for rejection (i.e. the IV steroids) before the biopsy. Therefore there is a chance that I WAS suffering from rejection and the steroids worked quickly and by the time I had the biopsy, signs of rejection had disappeared. I was originally told that if the biopsy shows no sigh of rejection I would not need the steroids and could cease them, but now that the biopsy can't be 100% relied upon, he wants me to continue steroids until he's discussed it with the rest of the team of transplant drs.

The only way for the biopsy to show for certain what was going on was to have it BEFORE any treatment. I do not have an issue with the dr who decided to commence treatment before the biopsy for the following reason - I had to wait 5 days for biopsy and due to Easter I had to wait a further 7 days for the results. If treatment had of being held off until I had the biopsy, I believe too much damage could have been done to my kidney. In an ideal world I would have had the biopsy done the same day as rejection was suspected, but that was never going to happen with the NHS.

If my blood results show an improvement in function then it almost certainly means there's no rejection, either because there never was any or the steroids are working well. If there is further decline, then it could be that the IV steroids were working (and gave a false clear reading on the biopsy) and the oral steroids aren't at a high enough dose to prevent rejection.

Blood results came through as I was typing.
Well, as usual with me, there's never a simple answer as my function has neither increased or declined. Although this doesn't give me a clear answer to what's going on, I think stability in function strongly suggest that there's NO rejection, either because there never was any rejection (just post transplant blip) or the 20mg steroids are stopping rejection.

The main thing is that currently my new kidney is NOT declining in function. So overall I'm very happy.  :2thumbsup;

My function only went above 50% once post transplant. It mainly fluctuated 1-2% around 45%. So my current level of 42% is fairly reasonable. I have been eating more since on steroids and an increased intake of meat can increase your creatinine levels, which in turn can effect your estimated function percentage.

I'll definitely sleep easier tonight. But can imagine I'm going to be nervous before every blood test for a while to come.

The surgeon has also said that he's happy for me to come to clinic on a weekly basis now, instead of 3 times/week. So he must be confident that things are good!
Title: Re: Looks like I'm rejecting new kidney
Post by: iolaire on April 25, 2019, 04:45:45 AM
Thatís good news.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 25, 2019, 11:00:38 AM
Outstanding!!!  :yahoo;
Title: Re: Looks like I'm rejecting new kidney
Post by: cassandra on April 25, 2019, 03:32:41 PM
Good news!!! Now drink!!!


    :yahoo;
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 26, 2019, 03:25:15 AM
Good news!!! Now drink!!!


    :yahoo;

My daily intake was 9 Litres (over 300 US fl oz) per day once I came off IV fluids. This has been reduced until I got as low as 3.5 Litres (118 US fl oz). I have lost some weight this week and when I measured my output, it was over 4 Litres. Therefore I'm having to increase my intake to 4.5 litres (just over 150 US fl oz). It feels like a lot to get through, but if that's what my kidney needs, then I'll make sure I keep drinking.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 26, 2019, 12:09:49 PM
Golly gosh, that IS a lot of fluid to get down your throat in just one day!  But you're right; if that's what you need, that's what you do.
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on April 30, 2019, 09:36:04 AM

The stent came out earlier today.  :yahoo;
I watched the video feed while the nurse "fished around" for the stent. It was a bit tricky to grab as the stent had managed to to lie completely flat against my bladder wall. Therefore she struggled to grab the stent without grabbing my bladder wall.
If anything, even with the slight difficulties, it wasn't quite as bad as I was expecting.

So happy that that should be the last of the invasive procedures.

I'll be back at hospital tomorrow for my, now weekly, check-up. So long as my kidney function is stable/improved, I think things should go very well from now on.

More good news, my INR was in range, so after 7 weeks of injecting my stomach with heparin, I no longer need them. Also, after 6 weeks of wearing compression stockings, I no longer need them.
Title: Re: Looks like I'm rejecting new kidney
Post by: MooseMom on April 30, 2019, 09:45:19 AM
Good for you!  You've passed some big milestones; you must feel so relieved!!

Congrats!  :yahoo;
Title: Re: Looks like I'm rejecting new kidney
Post by: cassandra on April 30, 2019, 01:01:20 PM



   :beer1;
Title: Re: Looks like I'm rejecting new kidney
Post by: gilders on May 01, 2019, 01:00:26 PM
Blood tests showed kidney function is still stable at eGFR 42, so it looks like whatever caused the dip is now in the past.  :2thumbsup;
Title: Re: Looks like I'm rejecting new kidney
Post by: cassandra on May 02, 2019, 08:17:28 AM



  :cheer:     :cheer:     :cheer:  Keep it up buddy, and go on, have that extra special drink on me.  :angel;




Lots of love, luck and strength, Cas