I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: ckaluza on June 27, 2016, 07:41:26 PM

Title: Introduction
Post by: ckaluza on June 27, 2016, 07:41:26 PM

I have FSGS which seems to be familial.  I limped along for 8 years with immunosuppressents, steroids, Lasix and antihypertensives but started peritoneal dialysis 2 years ago.  The neurological changes were driving me nuts...not that I had far to go.  I am dramatically healthier today than I was two years ago even though my labs remain crummy.  Waiting my turn for a kidney and am 0 for 6 on potential donors.

Working hard at enjoying life and retirement but I will admit that dialysis sucks.  Still fishing and travelling some but with the restrictions of dialysis.  Writing helps on the days that are not so good as it gives me a place to escape to when the rheumatoid arthritis flares up.  Ever thank full for the support of my bride of 44 years.

Charlie

Title: Re: Introduction
Post by: PrimeTimer on June 27, 2016, 09:03:59 PM

 :welcomesign;  Welcome to the site, ckaluza! You've come to the right place. You'll get plenty of support here, we all need it time to time. Ups/downs and a whole lot of info shared here. And I agree, writing does help.

Title: Re: Introduction
Post by: cassandra on June 28, 2016, 03:03:35 AM

Welcome to the site Charlie

     :welcomesign;


Take care, Cas

Title: Re: Introduction
Post by: iolaire on June 28, 2016, 12:09:10 PM

Welcome, I'm glad you are still able to travel!  The forum has a nice section on travel from RV's and dialysis to global incase you are looking for ideas.