I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: esperanza1 on August 28, 2008, 08:14:29 AM

Title: Hello everybody
Post by: esperanza1 on August 28, 2008, 08:14:29 AM: Hi
I"ve been visiting this website for the longest. It has been very helpful to me, so I decided to participate. I'm 33 years old. I've been diagnosed with FSGS for about 10 years. My kidney function is at 30. My nephrologist has told me that when I get to 20 I need to get in the transplant list. I'm still in shock. I've been feeling quite ok.

thank you guys for being there for people with kidney disease
Title: Re: Hello everybody
Post by: willieandwinnie on August 28, 2008, 08:23:30 AM: :welcomesign; esperanza1. Glad you came out of lurking to join us. We have bunches of information and the greatest support you'll find. :cuddle;
Title: Re: Hello everybody
Post by: peleroja on August 28, 2008, 08:27:02 AM: Welcome, Esperanza! I'm not familiar with FSGS, what is it? Lots of good info here; hope you find everything you need.
Title: Re: Hello everybody
Post by: esperanza1 on August 28, 2008, 08:43:29 AM: Quote from: peleroja on August 28, 2008, 08:27:02 AM
Welcome, Esperanza! I'm not familiar with FSGS, what is it? Lots of good info here; hope you find everything you need.

Focal Segmental Glumerolosclerosis. Basically, scars in the kidney. A lot of protein spill.
Title: Re: Hello everybody
Post by: monrein on August 28, 2008, 09:12:58 AM: :welcomesign;
Title: Re: Hello everybody
Post by: Romona on August 28, 2008, 09:16:41 AM: :welcomesign;
Title: Re: Hello everybody
Post by: Zach on August 28, 2008, 09:18:18 AM: Welcome to our community!
:beer1;
Title: Re: Hello everybody
Post by: keith on August 28, 2008, 09:23:11 AM: :welcomesign;
Title: Re: Hello everybody
Post by: annabanana on August 28, 2008, 10:23:48 AM: :welcomesign; :welcomesign;
Title: Re: Hello everybody
Post by: Bajanne on August 28, 2008, 11:03:49 AM: Welcome to our community! I love welcoming lurkers. You know that they already appreciate IHD, or they would remain lurkers! So I don't have to explain anything or try to convince you - just tell you 'WELCOME TO THE IHD FAMILY!' :grouphug;
Looking forward to hearing more from you. :flower;

Bajanne, Moderator
Title: Re: Hello everybody
Post by: cookie2008 on August 28, 2008, 11:16:47 AM: :welcomesign;
Title: Re: Hello everybody
Post by: paris on August 28, 2008, 12:02:44 PM: :welcomesign; So glad you decided to join us. There are many of us here with FSGS. Some pre-dialysis, on dialysis and with transplants, so there are many people to gain information from. I was diagnosed with FSGS 4 years ago @ 30%. They told me in would be on dialysis in 6 to 12 months. I am @ 14% and still holding off dialysis. I follow a renal diet (most of the time), started taking much better care of myself and found a neph I can work with. I hope you continue at the function you are at for quite some time. I give a lot of credit to the members here for giving me the power to take more control of my life. I hope we can be of some help to you, too. Looking forward to reading more of your posts. Welcome to the best site!

Paris,moderator
Title: Re: Hello everybody
Post by: Joe Paul on August 28, 2008, 12:37:57 PM: Welcome Esperanza, good to have you aboard.
Title: Re: Hello everybody
Post by: boxman55 on August 28, 2008, 02:05:31 PM: Hi Esperanza, we knew you where lurking and placed bets on when you would join. We all are so glad to have you aboard. Stick around and have a little fun. I am kidding about the bets...

Boxman, Moderator
Title: Re: Hello everybody
Post by: Ang on August 28, 2008, 06:03:11 PM: :welcomesign;
Title: Re: Hello everybody
Post by: RichardMEL on August 28, 2008, 06:25:49 PM: G'day Esperanza,

I was in a similar position to you - FSGS that was diagnosed 13 years before I eventually had to start dialysis. You are in a different position to me. Down here we don't get on the transplant list until we START dialysis, so you may very well get the option of a transplant before you are forced to start dialysis, which is a very good thing (should you wish to go down that path). I can understand being in shock! When I was first diagnosed in 1993 the first neph I went to basically sat me down in his office and the first thing he said was "You've got 2 years" - and it wasn't even clear what he was saying I had 2 years till? Till dialysis? till death do us part? till what... anyway we ditched him because he was a jerk and got to a much more senior fellow, and well I proved that initial bloke wrong since I'm still going strong 15 years later :) Well OK with the aid of dialysis now.

I think, though, you have warning and with a GFR of 30, you have some time to go till you will be forced onto dialysis... this is similar to me. I could plan to do things *I* wanted, and try and live as much as I could. This is what I would suggest to you - travel... get out... LIVE!!! Not that dialysis is going to ruin your life, but when you get there (if!) it will definitely cramp your style (and no, that's not meant to be a pun!).

Either way please join in our community! I am sure we can help you handle all the things you need to get a grip on and prepare more for what lies down the track.

:welcomesign;
Title: Re: Hello everybody
Post by: G-Ma on August 28, 2008, 07:07:04 PM: :welcomesign;
Title: Re: Hello everybody
Post by: Kini on August 29, 2008, 05:34:08 AM: :welcomesign; :cuddle;
Title: Re: Hello everybody
Post by: RobinM on August 29, 2008, 04:09:14 PM: Hi Esperanza! :welcomesign;

Robin
Title: Re: Hello everybody
Post by: kitkatz on August 31, 2008, 09:07:41 PM: Welcome to the forums. Good to see you here. Ask your questions to get informed so you can deal with the medical establishment in your care.

kitkatz,moderator