I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: weezy on August 10, 2008, 01:17:43 PM
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hi, I'm weezy and about 2 months ago my dad was diagnosed with acute kidney failure which has since become chronic. He has immune glomerulonephritis and we are scheduled to have PD catheter surgery on Tuesday. I have gone through a nasty depression trying to deal with this disease and although this has to be the most informative of all websites I have found, it makes me so sad to read some of the posts. But overall I am grateful to have some place to come to and relate, but more than that the experiences of all the other members has been invaluable. As a lurker I just want to say Thanks, Weezy
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:welcomesign;
Don't be a lurker, join in...this site will help so much if you participate..ask any questions and I'm sure you can also help us. This I'm sure is frightening for you. I have been a child of a disease and a parent with it and watch my children, however they have grabbed on to all the knowledge they can get and that really helps me...my oldest son even has been reading all info he can find on this site and there is a lot. I am overwhelmed by the love they show in doing this with me. You will be fine.
Ann
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:welcomesign; weezy. We all know how you feel in our own way. Post your questions and fears and we'll be here to help and listen. :cuddle;
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Welcome weezy. Please don't hesitate to come here to unload your feelings of sadness about your Dad. I'm so sorry that you and your family are having to go through this and all of us here know the dialysis story inside and out from all the different perspectives. No one person has had all the experiences but collectively we've had them all. I'm sending you a big hug today and I do hope that you'll find a way NOT to let depression and sadness rob you (or your Dad) of any more of your quality of life than kidney disease already has. :big hug:
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Thank you so much all of you, your kindness makes me want to cry. I am so grateful that I have a place to come to where I can learn so much and cry at times, yet at the same time I hate that I know about any of this. We have been fortunate that my Dad's treatment thus far at our local Davita center have thus far been OK, he is scheduled for a PD catheter this Tues and I am worried that we are making a mistake. What if this is worse for him than hemo? At this point I'm afraid of every single thing associated with this disease.
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:welcomesign;
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Don't worry about the choice of PD over hemo. If it doesn't work as well for him he can switch back. I've only done hemo but several people here have done both.
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Weezy, Welcome to the IHD community. There is a lot of support here for you whenever you need it. Lurking is optional. :cuddle; Linda
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Welcome, Weezy I"ve been on PD for 5 years now and I think it's the best choice for me. I hope it works out for your dad. Ask lots of questions, someone here is bound to have the answer!
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:welcomesign;
you are with like people here . We all need someone to cry on everyonce in awhile .
Read the posts and check out the options.
Katonsdad
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Hi Weezy and welcome. This is a stressful situation your dad and your entire family are going through - everything is new ans scary for everyone involved. I think if IHD shows you anything it should be that your dad can live and do OK on whatever mode of dialysis suits him the best - and as time goes on he will get to decide what works best for him - Hemo or PD etc. Also as he settles into treatment hopefully he will feel better and you will also become more used to the whole thing.
In the meantime feel free to rant here, or just ask questions. We don't bite... mostly :)
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Welcome Weezy, good to have you aboard.
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:welcomesign; Please use us a shoulder to lean on :cuddle; This is a good place for you to learn and to vent. We are all here for you :grouphug;
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welcome to our group :flower;
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:welcomesign; Weezy to the IHD Family!
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:welcomesign;, I'm here for my Dad too. Please come on in, don't just lurk! Everyone will welcome you and answer any questions, there are also things to make you smile - God knows we all need a smile sometimes. :)
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:welcomesign; :welcomesign; :welcomesign;
Love, Mimi
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:flower; Weezy,
Wonderful support group here! Welcome!!!
Lori/Indiana
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:welcomesign;
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:welcomesign;
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Take your time and read the information available to you about your Dad's condition. The more you know the better informed you will be in helping him make medical decisions. Welcome!
Kitkatz,moderator
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Kitkatz said it as well as I could... more information, less worry.
I was very anxious and overwhelmed too before I came here to IHD. The prospect of being on a machine for the rest of my life was a real terror. I found IHD to be a great place to educate myself and get comfortable with this disease and the procedures associated with it. I hope you find the same.
Perhaps if you look at this way, you might find some strength... Your Dad is the one with the disease. Imagine what he must be going through? He needs your support and encouragement as you both work your way through this. This experience might be a bridge to your relationship with him and bring you closer together. Share your feelings with him. You're in this together.
-Devon
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What I've found is the patient is often more accepting of the dialysis than the family and/or caregiver(s). I know I think nothing of it any more. Now that's not to say all my days are great, but I have few down days. My husband, on the other hand, has a much harder time. He's forever worried about me. I've told him not to be but he is. I think it's because he can't fix me, and I can understand his frustrations. He's not perfectly well and I wish I could fix him...Give your Dad some time to adjust. It'll become just like brushing your teeth!!
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A belated WELCOME to our community. I just realized I had missed this one. You introduced yourself at a time I was having some Internet problems. I trust that you have now come to terms with the situation. My dad was diagnosed with kidney failure at age 89, but they refused to put him on dialysis, so we just had to say goodbye to him. I am glad that you are there for your dad - your signing up with us is proof of that. I am sure that you realize already that here you have information, support, a place to vent, and even some fun. Just keep posting (in the appropriate sections) and let us know how your dad is doing.
Looking forward to hearing from you :flower;
Bajanne, Moderator
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:welcomesign; and glad you decided to speak up. you'll find lots of help here and lots of fun too.
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We all welcome you to IHD weezy. Please ask a bunch of questions because the help is here...
Boxman, Moderator