I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: prospector on July 25, 2008, 10:57:22 AM

Title: Nocturnal PD
Post by: prospector on July 25, 2008, 10:57:22 AM
I will be starting nocturnal PD soon.Currently I wake up at least once, sometimes more, to urinate. Since I still have some  kidney function, will the urge still occur during the nightly dialysis sessions?
Title: Re: Nocturnal PD
Post by: IUNurse on July 26, 2008, 07:51:40 PM
Are you on any type of dialysis now?  I tell my patients that most people will urinate less after they start dialysis (in part because they take you off all of your water pills once you start).  One of the first things they report is that they don't have to get up in the middle of the night.  I think that would be one of the few "good" things about starting dialysis- no more water pills and no more frequent trips to the bathroom!  You will probably not stop urinating all together for some time, but should decrease the number of times in which you go.  Worst case scenerio is that you can keep a urinal next to the bed in case you have to go!  Good luck!
Title: Re: Nocturnal PD
Post by: prospector on July 26, 2008, 09:10:40 PM
Thanks for your comments. No, I'm not on any dialysis yet but will be going on CCPD shortly. I am unsure on what to expect so this forum really helps to obtain some insight into the whole process.
Title: Re: Nocturnal PD
Post by: twirl on July 26, 2008, 09:17:59 PM
when I stated hemo center dialysis almost 3 years ago I had to get off the machine to go to pee pee about two hours in the session.
I had to go real bad and there was no way I could hold it.
As time goes on, I pee pee less and usually can make it thru the session.
wish I still had to pee
I could drink more and get by with it
may be the same way for you
Title: Re: Nocturnal PD
Post by: oleboy on July 27, 2008, 07:27:19 AM
I am doing CCPD and may trips to the bathroom have decreased some from maybe 3-4 a night to 1-2,My Neph says my kidneys are still trying to work because of my labs I don't have to use EPO, just the Iron , calcium and vitamins and phosphorus binder.I have been doing CCPD since April of this year.
Title: Re: Nocturnal PD
Post by: highlite36 on July 27, 2008, 08:36:43 AM
The BEST thing that my nurse suggested was to use the extra "hook-up" sets that you can add onto the original set of lines.  It's great because it allows you to unhook multiple times if you need to!!!  I had a couple of small kids spend the night with me and was out of bed about four times.  I only add it on after I have already disconnected once, but the extras allow me to unhook three more times.  And MORE if I need it....  You just have to unhook the "old" ones and add a new set of "new" hook ups.  It's great!!!!  Maybe this will help with your nightly potty calls.....
Title: Re: Nocturnal PD
Post by: MyRenalRomance on July 27, 2008, 06:23:07 PM
When I was on Manual PD, I'd need to get up during the night to pee approx. once - once in awhile.

When I was using my nighttime cycler, I was using the Baxter Home Choice Nighttime Cycler.  It has a feature that allows you to disconnect yourself, and cap  your tubing (for up to 1/2 hour) without disrupting the cycler process.  I sometimes needed to get up in the middle of the night to pee, so when I did, this feature was extremely helpful! (yes, I did have some kidney function).

The urinal (by your bed) is a good idea!

Good luck to you!
Title: Re: Nocturnal PD
Post by: carla13 on August 08, 2008, 01:42:09 PM
Ok not sure if I should admit this being so new to the site n all, but I have a bucket next to my bed for night time 'emergencies' as I'm not keen on disconnecting during a dwell due to the slightly increased risk of contaminating the line. I've found as I went on with the dialysis, I was peeing more or less the same, (almost normally), so i haven't experienced any changes.
It may help you if you don't drink anything for a couple of hours before going to bed.
Hope all goes well! :)

xx
Title: Re: Nocturnal PD
Post by: IUNurse on August 15, 2008, 08:38:08 PM
your center could give you a prescription for a bedside commode if you don't want to have a bucket!!!  But both do the job!