I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: 7piglets on June 18, 2008, 07:03:40 PM
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Ok so I just recently started dialsyis and havent had a beer in months but so would love one sitting on the deck hanging out with friends.
Do any of you still drink?? I am not looking to get drunk so have a beer. I got my bloodwork back today and everything was perfect other than my iron and anemia levels (which I have always had problems with and they they up'ed my meds) I am not on a restricted diet I just need to watch of course my potassium and take binder for phosphorus.. they said whatever I do must be working because all my levels are on target..
just curous.. thanks for info .
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I don't drink at all any more, I save every ounce for water
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7 piglets
if you wish to have a beer thats fine,are you still going to the toilet,?,if so you need to measure urine output every couple of weeks, then your daily allowance + urine output is your daily allowance.
beware urine output will eventually cease,enjoy it while you can.
it comes down to where / when wil i drink(try and stay within your limits)
stack the freezer with ice blocks,they tend to help if your having trouble with fluid.
good luck with it all. :thumbup;
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I hope Flip reads this and comments on the post.
I will drink a few swallows of a beer but that is all.
I will sometimes have a glass of wine.
It does not seem to hurt.
I still pee some.
A nurse at dialysis told me to drink liquor instead of beer, but I don't.
I don't think one would hurt you, drink less of other fluids that day and stay away from salt and see how it goes---
trial and error
I did drink on my anniversary last year - 3 little 8 ounce bottles of cheap wine-- I got a little drunk because I hardly ever drink---
It was fun.... did not feel awful the next day....ate oysters and shrimp too------- good luck and please take care
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There's nothing like an ice cold beer on a hot day!
If you've been working outside when it's hot, you've probably lost enough fluid to have 12 onces.
:beer1;
If you're really concerned about the fluid volume, then have a Jack Daniels on the rocks.
It's all about moderation in food and drink ... and the 48 hours between hemodialysis treatments.
8)
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thanks everyone ..see my concern is I have been told no fluid or food restrictions. just moderation.. What does ice blocks mean??
Yes I am still urinating..how long until that stops ???? I am trying to get pd working (has been in since Feb but since o/r table have not been able to get working) but was told if I do pd I will continue to urinate..I hate that they are not giving me all the info but am so so happy I found this site. ..thanks
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ice blocks is water put in a tray with 12-15 tiny compartments then placed in your freezer for a couple of hours then you just suck on a few to quench your thirst,you have to work out what works best for you.
ask questions, information is power,cause you can't always rely on dialysis staff to always do the right think by you.
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when you stop urinating is anyones guess, its an individual thing i lasted about 6 months,
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Eh, I don't booze at all anymore. One doesn't do anything for me and more than that and I feel like garbage the next day...
I do miss it quite a bit though. Not so much the "getting a buzz" part...but just the social aspects more than anything.
If you've ever gone out with a group of friends whom are drinking and you're the only sober one it's can get kinda miserbale...although they have had a reliable designated driver for some time now. :)
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I still drink in moderation with no harmful effects but you also should consider that: (a) I'm not diabetic and don't have any liver problems (b) I'm on no meds other than vitamins and (c) I still have good urine output.
I guess if fluid ever gets to be a problem, I'll have my bourbon straight.
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I still drink in moderation with no harmful effects but you also should consider that: (a) I'm not diabetic and don't have any liver problems (b) I'm on no meds other than vitamins and (c) I still have good urine output.
I guess if fluid ever gets to be a problem, I'll have my bourbon straight.
:rofl; :rofl; :rofl;
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dat is ur call just b mindful of wat u drink here to u :beer1;
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Fluid is fluid no matter what form , just as long as you count that beer as part of your intake although i was told 'shorts' are better than a beer if your going to drink (because its purer) As for urine output well im still going after 7 years!!!! As long as you do it in moderation but remember it takes longer to get it out of your system now , so be carefull say like if your going to drive !
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Otto still will have a beer or 2 now and then BUT his Dr said enjoy fluid while you can. He still pee's so :beer1;
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If you can, you should! I've been told not to...having no kidneys means easy drunk, nasty hangover when the machine pulls the alcohol out. My neph just thinks I really won't enjoy the feeling...but I miiss it, oh BOY do I miss it. And it's like Robby said...I don't want to get drunk, but the social aspect of wine with dinner with friends, or holding a bottle of beer at the bar while watching a game is something I miss terribly. The plastic glass of Sprite just isn't the same.
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I say go for it, just don't overdo it. Rob has a beer every now and then along with some binders. He also has a cheeseburger now and then too (again with his binders). His levels are fine and he's feeling great. Then again, he does home hemo, so he's dialyzing a lot more than in center.
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My doctor explained it like this:
Enjoy life.. having *a* beer isn't going to hurt you, count it as your fluids, and just like when you enjoy foods you shouldn't have/have lots of, don't over do it, and take your binders.
As for how long peeing will last... everyone is different, and some people will always urinate a little, and other's will lose it completely. I personally think if you are keeping your labs in good range, maybe it will last longer and have some control over it... but then again, some people lose urination no matter how good labs are. Just watch your weight gain from the fluids in between dialysis treatments and you will be fine.
Good luck and enjoy life. :grouphug;
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My husband's nephrologist told us a story about a dialysis patient who would go out beer drinking on occasion. Apparently he would challenge an unsuspecting bar mate to a contest to see who could drink the most beer without peeing. :beer1; That's one way to win a bet, I guess. I wonder how his dialysis center felt about him when he went in the next time!
I think I remember reading that some of the dark beers are higher in phosphorus.
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7 piglets: I don't think an occasional drink will hurt either.
I wanted to help answer your question about when the peeing will stop. As Angela said everyone is different. However, Hemo patients tend to lose whatever little kidney function (peeing) they have faster than PD patients do. It is linked to dehydration. So do your best to not let the hemo staff take too much weight off of you and make you crash.
By the way, how is your PD catheter working?
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I have a drink every now and then - like they said, you just have to watch your fluids. I agree - enjoy life!
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I had dialysis this afternoon and I'm having a drink right now. I must confess that I feel pretty damn good.
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thanks everyone. .. I must say one thing is I have not been told to 'watch' fluids or calculate anything so for those who say count it as your fluid.. I dont really know what that means. I think tomorrow I am going to tell hubby I am going to go out with some friends to tiki bar site outside and have an ice cold draft beer :) I cant wait ..
As for my pd (for who asked ) still not working..It has been in since Feb and I am having NO luck finding a dr fix it. However, now that I started at dialysis center someone over heard me talking about how I so wish it worked (given hubby works second shift and we have the little ones it would make my life somewhat normal) and she said she knows of a dr who is suppose to be a specialist with the pd..so I go to him next Thurs.. (fingers and toes crossed he can get it to work) but anyway thanks for asking..
To everyone else ..cheers to you :beer1;
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7piglets - YES!! Have a couple of beers!!
Right now you are one of the lucky ones (must come with the looks ;) ) not having any fluid restrictions... you can be assured (alas) at some point they will kick in... so I say drink and enjoy while you can. Not heaps.. but just enjoy yourself without going overboard.
One tip with the fluids since you're not on any restrictions yet - you'll know if you've had too much if you find breathing hard - this is an indication that you could be overloading on fluid.. also watch your ankles for fluid retention.. if you find that you're retaining fluid best to go minimal and talk to the neph or dialysis staff.
I have a friend (also amazingly good looking) who has been on hemo for 8 months or so and goes out almost every weekend... she has no fluid restrictions and if I didn't lust after her I'd be insanely jealous!!! :) As it is I'm just envious :)
Anyway, yes enjoy some beers... and have one for me please!
(Incidently while I AM on fluid restrictions I have a beer every so often...the most I'll have though is 2 - not so much for the labs or anything like that but simply for the amount of flud - 2 beers=over 600ml! :( )... it's easy to rack up the fluids when you're not thinking about it).
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Who are these people that dont have fluid restrictions ?????? :banghead; :sir ken; to you i say !!!! :rofl;
EDITED: Fixed smiley tag error-kitkatz,moderator
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There's nothing like an ice cold beer on a hot day!
If you've been working outside when it's hot, you've probably lost enough fluid to have 12 onces.
:beer1;
If you're really concerned about the fluid volume, then have a Jack Daniels on the rocks.
It's all about moderation in food and drink ... and the 48 hours between hemodialysis treatments.
8)
Amen on the jack and moderation...Boxman
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My fluid restrictions are very minimal since I still have excellent urine output. I'm sure there will come a time when it decreases so, for now, I will continue to enjoy.
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When on HD and going out with mates, I would have a beer and then switch to shots or vodka on the rocks. As Zach mentioned it is what you eat/drink between each dialysis session.
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Piglet,
ice blocks is ice cube trays ;) My son has a snow cone machine that works great to quench the thirst
Loir/Indiana
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That reminds me of Jello Shots. Not bad and not much fluid. Very popular at Jimmy Buffet concerts.
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Kickstart sorry I didnt ask for it they just have not given me any restrctions..
OK so hubby watched kids tonight and i went out with neighbors ..Had great time am totally buzzed and hope tomorrow is not too bad...:)
thanks everyone for info
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Good for you! :2thumbsup; I hope you had one for me! :wine;
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Absolutely! Well done piglets... you had a good time that's the main thing. I reckon half the issue with dialysis and coping can be your emotional state of mind as much as the physical. I know when I feel down or blah emotionally somehow the body feels worse too and dialysis is a chore.. well OK it's always a chore, but if I'm feeling more upbeat and positive it can go better. So I reckon feeling good kicking back with some friends and taking your mind off things for even a bit would have done a world of good.
So hope you had a beer for kickstart AND me.. in fact one each so we're kicking back too.. along with her Cylon buddy.. *giggle* xoxox to KS
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Richard trust me I had enough for you guys and some LOL
Funny part I didnt make dialysis on Sat (couldnt find a sitter and it was a change day due to family obligation on Fri I couldnt make my normal treatment) but when I went in Mon I still felt great and had no fluid retention..
I wonder if I really have kidney problems.. :rofl; (OK just kidding) But then again its my birthday so as I tell Hubby I can get away with anything today :) Unfortunately I have dialysis at 5am from now on arghhh but at least that helps with no having to find a sitter because hubby works 2nd shift so when I get home he leaves.. I am just going to be real real tired.. and now I cant' wait up for him to come home which I usually do.. oh well got to do what I got to do right ???
:birthday; :birthday; TO ME :beer1;
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:birthday; to you :birthday; to you :birthday; dear 7piglets :birthday; to you
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Happy burpday to you piglets... and if you had a few beerskis then burpday could be appropriate!! :)
Well done on having no fluid issues... trust me I am SO envious you have NO IDEA!!! I've not had a drink all day just so I can enjoy a small latte for afternoon tea....
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A belated :birthday; to you Piglets!
Glad you had some fun and even skipped a day with no problem. I took 3 days off last week (normally I get 2) and felt fine as well...perhaps this kidney stuff is just a weird Punk'd episode you and I are in!!!! :rofl;
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A belated :birthday; to you Piglets!
Glad you had some fun and even skipped a day with no problem. I took 3 days off last week (normally I get 2) and felt fine as well...perhaps this kidney stuff is just a weird Punk'd episode you and I are in!!!! :rofl;
:rofl; :clap; :rofl; :clap; :rofl;
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I had dialysis this afternoon and I'm having a drink right now. I must confess that I feel pretty damn good.
Flip is it the dialysis that makes you feel good or the vodka
you always have such a wonderful attitude on life
it is refreshing
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It's neither....I just refuse to let the evil monster take control of my life.