I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: kimcanada on June 06, 2008, 06:27:09 PM

Title: manual PD
Post by: kimcanada on June 06, 2008, 06:27:09 PM

I am in my 3rd week of manual PD, I am dying to not fill before bedtime... I haven't had a good nights sleep in 3 weeks.  Has anyone not filled for overnight, so they can get a good nights sleep?

Title: Re: manual PD
Post by: rookiegirl on June 06, 2008, 08:08:06 PM

Hi Kimcanada,

I know exactly what you are going through.  I've been on CAPD (manual) for 8 months.  After my PD training, I started CCPD (cycler).  I was only able to tolerate 4 nights on the cycler.  The 5th night I called it quit.  I did a manual exchange that night so I could get some sleep.  I had enough, 4 nights with no sleep and still getting use to the full sensation of the fluid in my belly plus the pain of the drain.  I had enough.  Since then, I've been on CAPD and loving it.

I don't know how many exchanges you do and I don't know if this is an option.  But maybe you can do a manual exchange for the night so you can get some sleep.  Be sure to talk to your PD Nurse or Doctor.  You see, I only do 2 exchanges.  I do one in the morning using Icodextrin 7.25% solution (last up to 12-16hrs) and Dextrose 2.5% solution (6-8hrs) before bed.  I'm very fortunate for now.  I'm hoping this will continue for a long time.

I wish you the best and good night sleep.

Title: Re: manual PD
Post by: mikey07840 on June 06, 2008, 08:10:00 PM

I am now on CCPD with the cycler. I found and find that if I sleep on my back, I am okay. Have you tried that?

Good luck hun!  :grouphug;  mikey

Title: Re: manual PD
Post by: kimcanada on June 07, 2008, 03:35:14 AM

I will make those suggestions, I find that the reason I can't sleep is because I get short of breath with all that dang fluid in my belly.  I hope I get used to it soon

Title: Re: manual PD
Post by: Ginger on June 08, 2008, 01:26:53 PM

Kim,
Is it possible for you to raise the head of your bed a little to help relieve some of the pressure on your diaphram from the PD fluid when you are laying down and trying to sleep?

Title: Re: manual PD
Post by: KICKSTART on June 09, 2008, 03:25:05 AM

I have been doing manual pd for 4 years now , i wonder if its really the fluid stopping you from sleeping ? The shortness of breath could be a fluid overload? as i have never had shortness of breath with pd fluid. You do get used to the heavy feeling after a while , like others suggested maybe dont lie flat.

Title: Re: manual PD
Post by: twirl on June 09, 2008, 04:44:20 PM

still concerned for you

Title: Re: manual PD
Post by: kimcanada on June 09, 2008, 04:48:37 PM

well today I decided that I would do 5 exchanges, I have already done 4 and I have takin off abunch of fluid... my blood pressure is going down slowly , but going down... and I accually slept ok last night, I have been really watching my fluid intake the last 2 days....  when I get a kidney, I am going to drink so much its going to come out my freakin ears!

thanks for worring Twirl :)  I am still going to win on the other post :)

Title: Re: manual PD
Post by: MyRenalRomance on June 09, 2008, 05:20:35 PM

Kim,
Glad you slept better last night.  Hope you resolve your situation. Good luck and hang in there!  :cuddle;
Charlene

Title: Re: manual PD
Post by: kimcanada on June 09, 2008, 05:23:17 PM

Thanks MRR

I will be getting the overnight one in a few months thank god!